My current situation with Hep C and Liver Cancer

[HectorSF]

Hi.

I case some have wondered what happened to me and why I have not been posting.

I am officially not able to get a liver transplant at the current time because my liver cancer is outside of the UNOS criteria to be eligible for a liver transplant. Meaning that based on known data from following transplant patients with AFP numbers as high as mine (667), to give me a transplant at this time, would be not a good use of such a limited resource as a cadaver liver, as my chance of survival post transplant is so poor.

My and my doctor's hope is that my TACE treatment last week will destroy the tumor and lower my AFP number to under 500. Then I would be active on the transplant list again. At that time there will be a small window where I will need to get a transplant before my AFP starts rising again.

So in 3 weeks the MRI and AFP results that will be the decision point.

I am hoping for the best but what I am dealing with is harder than anything I could have imagined. So I am playing it by ear. There is no map for where I am in my life experience so just know I am trying to do the best I can whatever happens.

-`ღ´-
Hector

[ill13632]

I hope you get a transplant soon!  would glutathione shots, NAC, sam-E help you?

[heart_in_the_keyes]

Hector...just from the length of this post and the posters you can tell you are in everyone's heart and on everyone's mind.  Am rooting for you to get back on that list.  

Will says prayers and send best wishes your way....to the most positive, inspirational person I know.

Bunny Hugs for you....wishing you a peaceful Easter....Summer

[Revalation]

I haven't heard any fat ladies singing recently.
So, I will be praying with the rest of your friends.

Reva

[stormy456]

H-  I'm sending you massive light and love from  So. Cal.  You're so much closer to that TP than you've ever been, am hoping and praying that the TACE works better than it ever has, and brings those number well below 500.   You've been through challenges that most could not handle, you can get through this with your usual strength and grace.  - H

[crossroadsec]

Wow. What a journey you've been on. And still going strong. I'm believing that the next news from the doc will put you back on the list. You've come this far....
Your wisdom and tenacity helped me so much. Be here now. I know how you use the power of each moment to help you to endure whatever life throws at you. You will prevail!
xoxo Karen:)

[Dee1956]

So happy to see you posting, I hope you will be around more
Dee

[Dee1956]

Dear H, I am so very very sorry.
I am praying for you.  You are so important to everyone here.  You have helped so many of us, supported us, given advice.

I pray that you will get the numbers you need from the TACE and TP that you need.

All my best to you
Love
Dee

[AjaLee]

Thinking of you and hoping for the best. You've been my inspiration for so long. It. Must be so hard to deal with this for so long, but I hope that knowing that so many people care so much for you makes it a bit easier.

[RCM829]

Remember me?
I treated in '09 and you were an inspiration to me. You have helped so many people. You're at the top of the list for those I'm truly rooting for.
Hang in there.
Robert

PS Was back in SF over Xmas and loved it...again.

[orphanedhawk]

Thanks for posting. I've been thinking so much about you, hoping, as always for the best.

Oceans of love,
OH

[juli4591]

Please add my prayers and good wishes for a good outcome on your numbers and a transplant soon!

[jsf52]

You always give to others no matter what you are experiencing - now is the time for all of us who have you have touched to give to you.  Our thoughts and prayers are with you.
jsf52

[BoceprevirGal]

I'll be praying for you, Hector~   Katy

[child24angel]

Sending lots of hugs Hector!!
Elaine

[ActingBrandNew]

Your an inspiration and my prayers are with you.

[ronny12]

The most altruist,awesome person i have ever heard and known through this forum.Hector wishing you all the best, hope you have the transplant very soon and also the recovery to be quick.

p.s i am an hbv sufferer and i have read a lot of your posts on the hcv forum.You are a unique person hector. You are in my thoughts and prayers. My best regards ronny.

[willbb]

Best of luck  H...

Will

[gerard11]

Hector you have to catch a break. It is just that simple. Hector needs a break!!!!!!! You have been around and seen enough to know these breaks happen. Why, and when we don't know, or do we care. We just accept breaks when they come and are thankful. Hector,  you have helped and indirectly saved many people from so much misery, now it's your turn to catch a break. You are in the best hands in the world, your karma is in order, so it's time for Hector to get his break, and  get this transplant.
Keep fighting, you never know what's around the bend in the road!!!!

[PaulaAnn]

YOU'RE A GIFT TO ALL OF US!!!  

Ditto on what everyone has been saying about you.  When you're not on the forums...Cirrhosis, Hep, etc...you are so missed.  It feels like a huge part of us is missing.
Even on your bad, down days...you still take the time to answer a question.
You're really needed and you have lots more to do in this world. So, lets hope and prayer that you'll get those numbers down.  You've gone thru too much to not get that transplant.
AND you know we are all PRAYING for you.  I think of you daily and offer up prayers for you.
Hector...you're an imspiration to all of us.  Keep your chin up and get yourself a treat at the grocery store.  
Hugs, prayers, good wishes, positive thoughts.....Paula  OH

[HappyByChoice]

We love you, Hector... all of us!!

[WOG1964]

Prayers your way Hector.

[creewoman]

You will not leave this life as long as you are needed!I strongly belive this and you still have work to do..There are still so many that need your conquiring spirit and devotion to fellow sufferers.Never too wrapped up on your own problems to help.
I have been in some personal turmoil lately and I burned some cedar and smudged me we sage and prayed.I will do this for you tommorrow!
Snowbank woman

[1swimmer]

Certainly, all anyone of us has, is the now. I sure hope you have some yummy, good stuff on your grocery list.
Cheers,
C

[lapis]

Hector, thanks so much for giving this update.  I am really sorry you are having to go through this, but like the others, I believe in you and I know you can do it!  You're an amazing person, and you have a really big team of cheerleaders!  Hang in there, and remember to breathe deeply...

Love and hugs,
Sally