Doctor has lowered my anti-rejection Prograf yet again to 1.5 mg daily. He is very aggressive yet cautious in lowering this anti-rejection medicine. In the long run, Prograf can cause kidney failure because it is toxic. So when he lowers it, I have do blood work in one month to see if the volume of Prograf in my body isn't too low, otherwise, I would have to go back to the former dosage. Dec. 3rd will be four years post transplant and time for celebration. Doctor said one glass of champagne is not the end of the world, so there...
Magnum, great to see you, Mike as well!
Lynn I agree with Mike. There is newer research and I think some people are still parroting what they learned in school.
You are doing well, keep the faith dear Lynn
Hi Magnum - I love hearing you're doing so well. I wish you continued health and happiness. You are a tremendous inspiration!
Flyinlynn - I don't know what your numbers look like but if the look alright I'd be pretty skeptical of your NP's prognosis. I respect medical personnel in general but there are some issues that should be left to a hepatologist and this is one of them. I learned many years ago never to solicit an opinion about a serious issue from anyone but a bona fide expert. All it does is create anxiety and stress and even if the opinion is positive you're never satisfied until you hear it from the person you really trust. Personally, I wouldn't buy into it at this stage for one basic reason - there is absolutely no upside in buying into it. People always say that we should prepare for the worst but my experience has been we are never prepared for the worst but if it comes we deal with it like we deal with everything. All we do trying to prepare for the worst is waste our time worrying and believe me, I have wasted way too much time worrying about things that never eventuated. I would get to someone I trusted and see if you don't get a more optimistic view of your situation.
Good luck and be happy.
Michael
Hi Magnum so glad to hear you are doing so well! Yeah real quiet around here lately seems like everyone is cured and gone off into the sunset.
I was cured almost 2 years ago with Harvoni but had a bummer visit with my NP at the liver center. She said even though I am cured she still expects because of my age and that I have had cirrhosis for so long (9 years) plus had some symptoms of portal hypertension like esophageal varicies I had banded back in 2012 with no reoccurrence (thankfully) that eventually I will decompensate.
This is at odds with most of what I have read that once the cause is removed that the liver might begin to heal or at least not progress any further so I am thinking about transferring my care to UW in Seattle.
I sure wish Hector was still here to ask what he would have to say about this.
Anyway congrats and keep on keeping on