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250084 tn?1303311035

Week 10 post tx & hello to all

  Hi all! Haven't been on much. Trying to get back to work, life after tx, etc.
I have been briefing thru post, checking in on here, keeping in touch with a few posters a bit.
Waiting on a VL test any day now. Did an extra one as I was there for the pneum.  last week.
Shands doing more test on my lungs as pneumonia not clearing, but that’s good news as no signs of anything worse in there in all the test.  More good news is still all free thru trial, except ER. I am, however, feeling MUCH better now, into week 10 post, even with the pneum.!

    To brief newbies….Geno 2b, 24 weeks tx.  80% down thru it, stopped work week 5.
Muscle pain/fatigue was intense the whole tx. My bed and I have a new relationship now, my mattress has had it with me on it full time, lol.  While 24 weeks is the Hep lotto, it still isn’t easy!! But thankful it was shorter!

  Just getting back to work (the physical job) P/T. Did do paperwork area’s of jobs thru tx, not to well tho -deciphering 150 posty notes all over the house got difficult! First 3 weeks off of tx were some of my worst!   Emotions were just all over the board!  All has slowly gotten better. With no sugar coating, I was quite surprised how coming off of these drugs went, has been. Your just chomping at the bit to get out there again, get back to normal. Than it doesn’t happen that way! While geno 2, 24 weeks, UND week 4, all test and chances are great and intensely grateful of all that, it is still frustrating in different ways for each. 3 weeks post, abscess tooth, sick, 8 weeks post got pneumonia, very sick. Muscle pain still bad, tho much better. Dr. insist it can be 6-12 mths, before ‘back to normal’ and to stop trying to go back to my normal pace, which was quite busy, hyper, non-stop. (A friend went with me last week, ‘told’ on me,lol! He said ‘knock it off’!)

  For any coming off of tx….don’t expect to just jump back into routine. Some can, but if you can’t, go with it and heal up!  Over doing kept putting me back to bad shape. I learned! (same as on tx) When your emotions go haywire, it’ll pass. Just don’t get discouraged as our bodies have been thru hell and have a lot of healing, adjusting to do. Be prepared for that and to give it more time.
  All on tx now…..I am soooooooooo rooting for you. Hang in there, hold on, TLC yourself as much as you can and if your ever ready to quit, come here to the forum. They (we) will all push you on. In comfort ways and ‘buck up’ ways. I needed them both!  You’ll get thru this. Your 'last dose day' will come and it’s a great feeling!
All deciding on tx, just starting with bx or the news……ask everything, learn everything and make your choices for YOU after that. All views and opinions on tx are here to help you decide. I wish you the best in however you decide for yourself. It is so devastating, scary at first, the more you learn, ‘talk’ here, trust me, the easier it’ll get to handle all this. There IS life with Hep and after Hep.
  There’s a few that are finished and decided to get back to life, far away from Hep C, tx, the whole ordeal and that’s what they need for themselves. Everyone here whether it be thru tx and gone, or before tx, on tx and here to stay gives a lot to the forum and others in however long they are here.
  And last on this long post …..so much thanks to all you wonderful, caring, knowledgeable, funny, giving people that help sooooo much. All the many different personalities, opinions, even debates makes this a great place to be sick :)

While this sounds like a ‘good bye’ post…it’s not!  All on tx usually post more, on here more. I will continue to lurk within med help!

Best to all, coming, going, lurking, on tx, off tx, thinking about tx and also those here supporting their loved one thru tx,

LL
11 Responses
Avatar universal
Hello lady, i am v happy to see that you are done with the nasty meds..sorry 'bout yr ongoing post-trx traumas...this too shall pass..take care of yurself,easy does it and CONGRATS.!...yu kicked virus BUTT
Avatar universal
Hi there.  I'm proud of you for hanging in there and not giving up!  That's the key to all of this cr*p, you know?   Just putting one foot in front of the other, not looking back and questioning yourself and looking forward to the day of wellness.  That's all I've been able to do.  I'm still in there, pushing forward to that day.  I hope you're feeling back up to par soon.  If you're up to it, I'll connect with you in about a little over 2 weeks when I come through your town on the way back from my appt.  I'll keep in touch.

Susan400
173975 tn?1216261375
Laurie,
I read your post about still not being back to normal physically and how frustrating it is.  Thanks for posting.  i need a reality check, too.  While I am MUCH better, 13 days post meds;  energy levels much higher, mood much brighter, tolerance level increased, I can FEEl the back thigh flab, which I NEVER had before, and can actually pinch the skin between two fingers.  UGHHHHHH!!!!
Funny thing is i weigh LESS than before TX, dropped a size or two, and still feel the excess flabbies.   So I'm planning on joining a gym within the next two months and try to slowly build muscle again.  (And i HATE the gym!!!!!)

Other than that, I have my fingers crossed for my 4 week, May 26 post TX PCR..
Keep us posted and drop a note now and then to let me know how you're feeling.

PS - the 8belles tragedy had me in tears for days.  i will never follow horse racing again.  :-(
475300 tn?1312426726
I am 7 - 8 weeks post tx and still have 3 - 4 awful days a week and the other days are playing catch up with my work so I'm not really getting ahead in the scheme of things. Hubby is having a hard time beleiving that it is lasting this long.  The good times I am a moving machine and don't stop, like yesterday I put an asparagus bet (lots of work) I'm paying today.  It is hard when one's job is for themselfe. paperwork, taxes, payroll taxes and dealing with customers.  I pup paperwork in the right spot and then I can't find it, boy does he get mad which makes matters worse.  I try really hard to act like I remember everything but I don't.  I need this to go away, the tax lady is getting irratable.  In 15 years I have never been in this position with the business.  Brain fog just sounds like a cop out to someone who does not know, or memory loss sounds like an excuse.  But it is the truth.  Hopefully it goes away soon.

Denise
Avatar universal
I am so happy for you as you have endured so much while on tx and post tx.  You are one 'tough cookie' lady!  I really enjoyed ready your post and caring words or wisdom.  I will be finished my tx on Friday (48 wks) and am so excited my mind is ahead of my body.  It is as if I am off tx now and just want to get everything done around the house etc.  It's all thoughts and no action right now.  I will try to chill out and take it slow.

A friend of mine was on the same trial as you and it is very good news knowing how successful the meds have been thus far.  I told her to contact you when I read your profile and saw that you were on the Albumen trial.  It has been difficult for her as she wasn't allowed rescue drugs.  Did you take any rescue drugs?

Please keep us posted ;-)

Peace and Love to you!

Trish

250084 tn?1303311035
I have replies to each of you!! Gotta run for an app. with a GP.

Feel sickly today (over did it AGAIN) but don't give a sheeeeeet as still not detected :) :) :)

Back later!!

LL
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