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Leg/Butt Pain. Muscles Twitching> Herpes Related??

I'm a 26 yr old male that has never had any health issues or problems in my entire life beside the occasional cold/flu that everyone else gets. That all changed a little over 4 months ago.

Had brief unprotected oral sex from a girl i met the day before and about 40 secs of brief unprotected intercourse. The rest was protected sex. 6 days later while driving, I began experiencing short sharp random stinging pains in my groin mostly above the right testicle area but the pain didn't feel like it was from the testicles.More like deeper in the groin. Also, my perineum area felt swollen like I was sitting on something near my rectum. 1 day later i got a sore throat and my neck lymph nodes felt slightly swollen. 2 days after that, I noticed a raised bump on my penis shaft on the bottom right side. It looked like it maybe an ingrown hair cause it didn't hurt and it never turned to a blister but I have never seen a bump on my penis like that before. Also, when i would shower, I would feel a sting in one area on the rim of my penis head when the water from the shower head touched it but there was never any sign of redness, bumps, cuts, or abrasion whenever i checked it.This weird pain lasted in the penis head rim for almost 2wks. Went to get tested for all STDs/HIV and all tests came back Negative. I know 1 week is too soon for HSV and HIV test but both were negative so I had no previous exposure. Urine sample, clean. Girl also said she was clean on everything but i'm not convinced she had herpes testings. Doctor did turn and cough test on me and said I might have a hernia. Doctor looked at bump and thought, ingrown hair or irritation. Prescribed 10 days of Doxy as a precaution if I had any bacterial infections. The bump went away in about 3-1/2 days. Had a surgeon rule out hernia and thought pain was due to some type of strain.
Then got sick with cold-like symptoms that lasted almost 2 weeks. Very rare for me. Was treated for sinus infection. During this time, i developed the random burning pain up and down both legs and buttocks, sometimes in arms and back. Then the muscle twitchings started. mainly in legs when i would sit and relax. Every couple days or so I would notice very tiny tiny white head like pimples on my penis shaft that would last for like maybe a few hrs or so maybe 1 day tops. Never more than one at a time. They looked just like pimples you get on your arms or face but then again, I've never seen this on my penis before. Ever.
Got blood tested again for HSV and HIV at 6 wks. Tests came back Negative again. Showed doctor one of the tiny whitehead pimples and he said it wasn't herpes.
The random pain in my body, mainly in the legs, groin, penis, and buttocks have been on and off ever since. I seem to get a pain in my penis minutes after i urinate every now and then but never while urinating. Urologist said I may have prostatitis but all my urine samples have been clean for bacterial infections. The swelling in my perineum was gone by then but I still feel the random groin pains.

Still convinced that I had something wrong with me, I went and got tested again at 12wks. HSV 1 and 2 were again Negative. All herpes tests have been Herpes Select Type specific IgG. I began to believe that i didn't get herpes but then the pains would come back and change all of that. I then got another bump like the one i described in the very beginning near the base of the penis by the pubic hair region which again didn't hurt. Doctor saw it and said she was certain it wasn't herpes and was probably folliculitis/ clogged hair follicle. Bump completely went away in about 5 days.

It has now been almost 5 months past expose and i still don't feel normal. Some days i would have a day or two of little to no symptoms but then it would all come right back. I don't know what to think. This issue has been driving me crazy. If its not herpes, then what is it? The bumps i got don't point to herpes but all the nerve pain and constant non-stop muscle twitching mainly in my legs seems to say that it may be nerve damage from herpes. I have done tons of searching on the web and I have seen ppl saying they got leg twitchings from herpes but all the experts don't seem to think its related. I take all sorts of vitamins so, i can't have any deficiencies. And i had an xray of my back to rule out spinal abnormalities. My next step will be an MRI of the spine but I'm almost certain it will show up normal.

I try to live a normal as possible life so i won't get stressed over this but the symptoms won't let me move forward. Anybody experienced these issues but never tested positive for herpes or any type of virus? Sorry for the long post but i wanted to give everyone specifics of what I'm going through. I actually left out way more information but that's just how complicated these past 4-1/2 months have been for me. Any help is appreciated.
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Avatar universal
Hi!! A cold sore on your lip is caused by one of two herpies virus. Most likely herpies simplex type 1. HSV1 is most common in the mouth but now with all the crazy oral sex practices hsv1 can also be transmitted to your crotch. As goes the same for Hsv2 which is most common in the crotch but as I said with oral sex it can be transmitted to the mouth. So if you have had a cold sore on your lip... You have herpies. And so the nerve symptoms you are experiencing are probably from herpies irritating your nerves. I have the same problems, acutely much worse than most and it's hard to convince your doc that it's related to herpies. I haven't convinced mine yet, I'm going in again for another appointment with a shipload of informTion I have printed off the internet. It's a type of nerve disorder kinda the same as what shingles causes. Shingles, chicken pox, hsv1,and hsv2 are all herpies viruses and live in the nerves of the spine. All of them...
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Avatar universal
Hey guys I'm currently having the same problem. Do u guys have any idea how to figure it out ? I'm suffering with muscle ache and twitching all over my body.
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Avatar universal
That's disheartening. What specific symptoms did you have? Did they continue during and up to 9 months?

When you say detected, were you confirmed positive? If so, what was your antibody count? Did you ever get sores and have them swabbed?

9 months doesn't make sense. Did you ever get a WesternBlot? I'm getting this done at 4 months post exposure next week.
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Avatar universal
detected igg antibodies hsv1 9 months adter exposure and no risky activities in between. Symptom as the poster told..so much for a window period ...sigh
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Avatar universal
Man, read this entire thread. Give or take a few symptoms, this describes my situation to the T!! Multiple negative bloodwork, swabs, tests with no answer.

I'm curious if this person did in fact have HSV1. If he did, I honestly believe I have herpes type 1. He's literally me fast forward a year.

This sucks. Anybody ever get a diagnosis??
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3149845 tn?1506627771
please start your own question
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