I had a skin rash that eventually was diagnosed as folliculitis. At the time I was afraid it was Herpes so I insisted I’d be checked for herpes to have peace of mind and to my horror the test came back positive for HSV2 and negative for HSV1. I had never had an outbreak of any kind so the doctor told me that until I had blood blisters I did not have herpes.
I went into a deep depression for a period of about two to three months and lost about 20 pounds not being able to sleeps or eat due to the uncertainty. Then I started having mouth sores. I went immediately to my doctor and was refused a culture because they claimed that my insurance would not pay for it but that I could go to a lab and have it taken. I went to a nationally recognized lab and was told at the lab that it would be too of an invasive procedure so they would not take the culture either.
Two weeks went by and I had two more lesions appear so I went back to my doctor and then they took a culture, and after a couple of weeks the results came back with “No Virus Isolated”. I was told the culture checked for viruses but not for bacteria.
Since all this started, I don’t know if I’ve had what I think have been three different outbreaks or just one continuous outbreak with maybe one week break in between the three periods of time I’ve noticed or think I’ve had symptoms. I don’t know if it’s because I’ve been so stressed out, but every couple of weeks since first time getting the mouth sores I’ve been getting some kind of mouth lesion. The first couple of times they looked like canker sores and took close to a week to heal and now they appear to be blood blisters that that range from very tiny to somewhat larger blood blisters. They mostly heal in one or two days, three days at the most and all been either inside the lower lip or inside the cheeks and never on the same spot; and never on the tongue, gums, or the palate.
I’ve always had a habit of biting my lips but and since all this started I’ve been trying to make an effort to quit, but now I don’t know if at night while sleeping since my stress level is still very high I’ve been biting myself.
This last time before the last blood blisters appeared, for about two weeks I had been having a slight itch around my face from the sides of my eyes down through the sides of my cheeks, down to my chin. Not a constant itch or a burning itch, but the kind you get every now and then, the ones you feel like something is crawling on your skin and you have to scratch it. That had been going on for about two weeks and every now and then I feel some kind of numbness in the area of my chin.
Also, the same day the initial mouth sores appeared I started to smell some kind of foul smell when I would breathe in and sometimes even feel as if could swallow whatever it was I was breathing in. Two different doctors told me that the smell was in my sinuses and I believed it since I suffered from severe allergies all my life. I was put on antibiotics twice but the smell never went away. I went to an Ear-Nose-Throat doctor and had both MRI and CT scan taken and was told that I had accumulation of bacteria in my sinuses and again was put on antibiotics and steroids.
I asked the Ear-Nose-Throat doctor if it was possible for a sinus bacterial infection to cause the mouth lesions and did not get an answer. After three months I can still smell that foul smell in my sinuses when I breathe in, and now I’m scheduled to have surgery to flush out my sinuses but I’m not sure that’s the cause of the foul smell and the mouth lesions.
I’m on Valtrex 500 mg one per day and also taking the following vitamins: L-Lysine 1000 mg, Vitamins E 1000 mg, Vitamin C 1000 mg, Vitamin B Complex, Vitamin B-12 1000 mg, Zinc 30 mg, and Garlic 1250 mg. I'm not sure if taking all of this is doing me any good but I'm hoping that it will start to work soon
I’ve made an appointment with the only infectious disease doctor my insurance would cover but he’s out of town and my appointment is not for another month, which leads me to the following questions:
1. Can anyone tell me how all of this ties in. Is it that I’m just stressed out to the limit and causing all of this, is it herpes, is it caused by some type of nasal fungal or bacterial infection, or is it simply something else?
2. Since I’ve come back negative for HSV1 and positive for HSV2 and have never had any symptoms in my genitals other than when I was told I had folliculitis, and assuming what’s going on in my mouth is HSV2; is it true that mouth HSV2 virus prefers the genital location does not have the tendency of recurring; and if so, why have I had what appears to be a three month or longer continuous outbreak in my mouth.
Your input would be greatly appreciated.