Neurological manifestations of HSV

[joojee2010]

If you get neurological manifestations of HSV do you need to take addtional medical precautions or is there concerns about my longterm health I should watch?  

I am concerned that the HSV will go to my brain or spread throughout my body.

[gracefromHHP]

no doctor's do not think that herpes is so bad that they don't even want to learn about it or talk about it.  it's actually the exact opposite, it's so darn common and the vast majority of folks have such an easy time with either oral or genital herpes that most providers just don't bother with it. They spend their time concentrating on things like heart disease , cancer and diabetes etc.

follow up with a neurologist as needed.  

[joojee2010]

So if you neurological manifestations of HSV there's no way to figure out what to do about them?  

And there is no way to figure out how immune health effects HSV?

I guess the answer is "No".  Dr.'s think HSV is so bad they don't even want to learn about it, talk about it and they certainly don't want you to bring up you have it.  The urologist I saw didn't even realize you take Valtrex for HSV (boy she was clueless).

Crap, I am running out of ideas on how to learn about this. Thanks for the  heads up, if I get systemic herpes I won't be able to type..  I guess I will look forward to that... lol..

[joojee2010]

Have you found a Dr. that knows anything about HSV? Cause I sure haven't.

[gracefromHHP]

if you had a systemic herpes infection or herpes encephalitis, you'd either be dead or be so ill that you wouldn't be able to coherently type your questions here.

daily suppressive therapy would control your herpes so you wouldn't have many symptoms of recurrences.  

continue to follow up with your neurologist regularly and your other providers to hopefully get better answers and treatment for your symptoms.

[petal130]

Have you spoken to your physician about this?  No one on this site can (or should) replace what a medical professional can tell you, based specifically on them knowing your medical history and examining you. I'd suggest asking him/her these exact questions.

[joojee2010]

I'm certain the censation on the top of my left foot is HSV, it comes and goes and was a quite annoying symptom of my first OB but lets not argue about what is or isnt a prodrome.

My main concern is herpes encephalitis and systemic herpes. How can I be assured this isn't what I have?  What signs would a Dr. be looking at to tell if there is a lesion on the spinal column?

It seems like all of a sudden my medical concerns are crazy because I have HSV. I'm a scientist not a mentally challenged individual. I'm looking for answers to legitimate questions, especially since I HAVE an autoimmune disease.

Can the autoimmune disease make HSV go systemic?

No I don't take suppressive therapy because my liver is to weak and it makes me very ill the whole time I take it and why would I take it? to prevent the top of my foot from burning?  the urinary retention I suppose is a good reason to take it but it just makes me so sick and I have to stay home in bed while I take it and I can't take off work like that to stay home and take medication.

[gracefromHHP]

odds are whatever they found on the MRI is part of what is causing your foot pains, not your hsv2.

do you take daily suppressive therapy to keep your herpes recurrences few and far between?

grace

[joojee2010]

Everything unlikely happens to me!  I have an autoimmune disease therefore my immune system, hormones, electrolytes etc.. are constantly out of whack.

I have the prodrome feeling on my left foot quite frequently and sometimes what looks like herpes whitlock? on my upper lip and nose. I also have the neurological manifestation of urinary retention with each OB and recently, they found something on my spine in an MRI.

I want to be informed about the possibilites and be able to ask intelligent questions to the nuerosurgeon. I don't want anyone! to discount that this could be related to the HSV.

Thanks for the feedback :)
Jee

[gracefromHHP]

it's highly unlikely you'll have herpes encephalitis or a systemic herpes infection. why are you worrying about this?

grace