Aa
To Terri W (confused)
Hi Terri, I am probably driving all the poor counselors crazy, I am normally a normal low key, awesome ICU nurse who is very intelligient and in grad school to become a ARNP. I was wondering if you could look at my posts under confused and Dr. H answered my posts . Everyone has been so supportive but I am so worried and stressed, I am not the same person. I will repeat my whole story but it would probably be easier if you looked at it under confused or under Dr H. confused about s/s. Grace and mistakenguy have also been helpful. Could you review my case at the suggestion of grace, they now want me to have an MRI tomorrow and if this could just be post herpatic neuropathy, I am spending all kinds of money for tests that are not necessary. From woman to woman, I need that.. Thank you I am usually logical but scared. I totally respect Dr. H and everyone, I just need it from a woman who specializes, I am not trying to cause any problems at all, just need to know if I should proceed with all these MRI's and such.
MEDICAL PROFESSIONAL
No, you have decided that herpes is ruining your life and you don't even know if that's what is going on that is causing your symptoms. Yes you have HSV 1 but you could have had that since childhood without knowing it. HSV 1 does not cause constant symptoms. two thirds of the US population has this infection, most with no clue that they have it. this man may or may not have given you herpes, but I"m not at all surprised that he has left you, given all the pressure and blame and frantic behavior that you are displaying.
I'm sorry, but your psychological and emotional problems are way beyond the scope of this board. as always, I suggest intense psychotherapy for you, as soon and as often as you can arrange it.
this will be my final post on this thread.
terri
I'm sorry, but your psychological and emotional problems are way beyond the scope of this board. as always, I suggest intense psychotherapy for you, as soon and as often as you can arrange it.
this will be my final post on this thread.
terri
He refuses to get tested any further, I am going to try to explain to him, his test may be the 1 in 10 missed.
My swabs are negative but continue with the groin pain and sores in mouth. Mayo is the best besides of course your facility.
Where would I get a test for him. I would pay for it and maybe he would do it.
I have experienced weight gain this past few months and am wondering if all the Valtrex is doing that or if the ATivan I started to help me sleep.
I do continue to have anal itching and occ bleeding.
It is strange though, everyone says it's rare for one time encounter, for for to be false negative, 1 in 10, rare to pass on genital to genital 1 and rare to get oral 1 with oral sex I gave him. Also, Dr. H said he has never seen in 30 years one contracting 1 both orally and genitally at the same time.
I really think I am the rare one and all these rare encounters, all affect me.
I would really like him to take the western blot but he pretty much has left and said he was negative.
I am so relieved it is not hsv 2 but I just feel awful. the anal itching and bleeding, the groin pain and the mouth sores.
Can I expect to have less outbreaks and I really don't like this Valtrex. I have gained weight this summer and blame it on the Valtrex or I do take ativan once in awhile with this now to help me sleep.
This has really ruined my life and want to do the right thing. Should I present this to him and try to encourage this test. I really need to know. Where can i get it.
should I stay on the valtrex for someday a new partner which I am not looking for at all after all this. It really ruins a life. Pain and anxiety are constant.
Thanks Terri, just trying to get to the bottom of this and try to treat it best. I am seeing someone for the guilt of being with this guy who just walked away and said I have nothing. Wrong, he did and that is my hsv 1 pelvic pain with no answer any other way suggests neuropathy from the herpes. Can I do anything about that. I don't want meds that make me pack on pounds. I have a constant sore throat, anxiety which I never had and pain in my groin and anal area. I want to have a chance with someone but how and please continue to hhelp. I just don't want this man to do this to someone else.
And does valtrex
My swabs are negative but continue with the groin pain and sores in mouth. Mayo is the best besides of course your facility.
Where would I get a test for him. I would pay for it and maybe he would do it.
I have experienced weight gain this past few months and am wondering if all the Valtrex is doing that or if the ATivan I started to help me sleep.
I do continue to have anal itching and occ bleeding.
It is strange though, everyone says it's rare for one time encounter, for for to be false negative, 1 in 10, rare to pass on genital to genital 1 and rare to get oral 1 with oral sex I gave him. Also, Dr. H said he has never seen in 30 years one contracting 1 both orally and genitally at the same time.
I really think I am the rare one and all these rare encounters, all affect me.
I would really like him to take the western blot but he pretty much has left and said he was negative.
I am so relieved it is not hsv 2 but I just feel awful. the anal itching and bleeding, the groin pain and the mouth sores.
Can I expect to have less outbreaks and I really don't like this Valtrex. I have gained weight this summer and blame it on the Valtrex or I do take ativan once in awhile with this now to help me sleep.
This has really ruined my life and want to do the right thing. Should I present this to him and try to encourage this test. I really need to know. Where can i get it.
should I stay on the valtrex for someday a new partner which I am not looking for at all after all this. It really ruins a life. Pain and anxiety are constant.
Thanks Terri, just trying to get to the bottom of this and try to treat it best. I am seeing someone for the guilt of being with this guy who just walked away and said I have nothing. Wrong, he did and that is my hsv 1 pelvic pain with no answer any other way suggests neuropathy from the herpes. Can I do anything about that. I don't want meds that make me pack on pounds. I have a constant sore throat, anxiety which I never had and pain in my groin and anal area. I want to have a chance with someone but how and please continue to hhelp. I just don't want this man to do this to someone else.
And does valtrex
MEDICAL PROFESSIONAL
Has the guy been tested by western blot for HSV 1? If not, he should be. the test does miss one of out of 10 cases.
without a positive PCR test, you can't know where you have the HSV 1 infection.
If you have sex with someone new, I would recommend that they be tested for HSV 1 and 2. If they are positive for only HSV 1, then I think you can safely have sex and not worry about getting this in a new location on your body or reinfecting him. If he has HSV 2, then that's a whole new ballgame, right?
terri
without a positive PCR test, you can't know where you have the HSV 1 infection.
If you have sex with someone new, I would recommend that they be tested for HSV 1 and 2. If they are positive for only HSV 1, then I think you can safely have sex and not worry about getting this in a new location on your body or reinfecting him. If he has HSV 2, then that's a whole new ballgame, right?
terri
Went to Mayo clinic today, to a specialist. He said this could be possibly a hsv 1 genitally and orally even though no swabs are coming back positive. He is more on the symptoms than these swabs he said. The s/s all started within one week with this guy even though he is negative. He is still open but cannot be for sure. No swabs positive, just igg for hsv 1 and we don't know if that was positive before. He said it seems so strange to have all these s/s after this guy. He may be the 1 of 10 false negatives. We had a long talk and it's sad... Should I stay on the Valtrex 1 gm a day. He suggests yes if I find a new partner to protect for 1 if my new partner does not have 1... He did say I can be glad I don't have 2
My PCR swab came back negative from an open area that was actually bleeding between my vagina and rectum. My hsv 1 is pos and hsv 2 is negative at 16 weeks. I am past herpes 2 thank goodness just continue to worry about the occasional sores in mouth and groin pain. I guess I have one question. Since I do have hsv 1 , where I don't know and if I had it before this event, I don't know. If I find a partner some day and right now I have no interest and am so frightened to think of a relationship, but should I be on Valtrex 1 gm or 500 mg daily to not pass it on? Just want what's best for a partner someday that may be negative for both. Right now I have no interest in the idea but someday I may meet the right one. Thanks.
I am talking to someone- this has financially, emotionally and physically caused many setbacks in my life.
Thanks for helping and supporting.
Teres
I am talking to someone- this has financially, emotionally and physically caused many setbacks in my life.
Thanks for helping and supporting.
Teres
MEDICAL PROFESSIONAL
Any chance you have a hemorrhoid or an anal fissure? Your complaint of severe anal pain makes me wonder. Also, I very very rarely see herpes bleed.
Your fear of having herpes clearly has as much to do with your feeling of guilt and shame over your behavior on that night as it does fear of the actual disease. I think herpes is the place you've put your guilt and shame, but for your own benefit, you need to start separating those two issues.
I know you need support, you need that whether or not have have genital herpes.
If your child had an emotional problem, would you ask them to look for answers on the internet, or would you line them up with a professional therapist? I think we both know the answer to that.
Please, please seek a professional therapist. I feel like even your writing has deteriorated since you last posted here, you are clearly so distressed.
Terri
Your fear of having herpes clearly has as much to do with your feeling of guilt and shame over your behavior on that night as it does fear of the actual disease. I think herpes is the place you've put your guilt and shame, but for your own benefit, you need to start separating those two issues.
I know you need support, you need that whether or not have have genital herpes.
If your child had an emotional problem, would you ask them to look for answers on the internet, or would you line them up with a professional therapist? I think we both know the answer to that.
Please, please seek a professional therapist. I feel like even your writing has deteriorated since you last posted here, you are clearly so distressed.
Terri
Hi, Terri, I just wanted to update you
have been having severe groin pain and rectal area is very sore every five days and lasts for days. In the last month, I have had flecks of blood on my toilet paper the days right after my groin just is so painful. There is a sore, reddened area the same place everytime and I went to the doctor today, they cultured it PCR swab and did the IGG once more. They said it is a reddened area which is bleeding and this happens weekly. No yeast, no hemorrhoids, no BV........... My girlfriend had herpes and she did say they bleed and my rectal area just hurts so bad. Herpes is something that is not the work of our Lord. I am a christian and am really trying to have the Lord help me with this.
I will let you know what the culture says and then I really need help if it is positive because doctor says area is the same place and the s/s and outbreak is almost nonstop
the case would be if positive
my guy was 1 in 10 that was false negative
a one time encounter
no intercourse happened because he did not achieve an erection but tried
genital 1 to genital 1- rare not even intercourse
oral from one time encounter- rare
I have all the 1 percent but they all are rare and all occured
on valtrex 1-3 gms daily for 4 months, no relief
mouth sores continue to reoccur.
genital 1 reoccurring rare- outbreaks constantly and weekly for 4 months
rectal area burns
how can I ever have a relationship and risk giving this to someone.
That night, was a mistake and I pray the Lord will forgive me so i can actually have a life to be the mom I was, and be the nurse I was. Chronic pain and the fear of this my whole life is almost more than one can handle.
tired of this taking over my life.
I am really upset with myself for allowing me to be ignorant and also upset that that night happened
how one night and moment in life changed your whole being.
I am a Christian and feel guilt and shame
Thanks for listening, I really need support and solutions if this culture comes positive because the antivirals don't help
Thanks
teres
have been having severe groin pain and rectal area is very sore every five days and lasts for days. In the last month, I have had flecks of blood on my toilet paper the days right after my groin just is so painful. There is a sore, reddened area the same place everytime and I went to the doctor today, they cultured it PCR swab and did the IGG once more. They said it is a reddened area which is bleeding and this happens weekly. No yeast, no hemorrhoids, no BV........... My girlfriend had herpes and she did say they bleed and my rectal area just hurts so bad. Herpes is something that is not the work of our Lord. I am a christian and am really trying to have the Lord help me with this.
I will let you know what the culture says and then I really need help if it is positive because doctor says area is the same place and the s/s and outbreak is almost nonstop
the case would be if positive
my guy was 1 in 10 that was false negative
a one time encounter
no intercourse happened because he did not achieve an erection but tried
genital 1 to genital 1- rare not even intercourse
oral from one time encounter- rare
I have all the 1 percent but they all are rare and all occured
on valtrex 1-3 gms daily for 4 months, no relief
mouth sores continue to reoccur.
genital 1 reoccurring rare- outbreaks constantly and weekly for 4 months
rectal area burns
how can I ever have a relationship and risk giving this to someone.
That night, was a mistake and I pray the Lord will forgive me so i can actually have a life to be the mom I was, and be the nurse I was. Chronic pain and the fear of this my whole life is almost more than one can handle.
tired of this taking over my life.
I am really upset with myself for allowing me to be ignorant and also upset that that night happened
how one night and moment in life changed your whole being.
I am a Christian and feel guilt and shame
Thanks for listening, I really need support and solutions if this culture comes positive because the antivirals don't help
Thanks
teres
MEDICAL PROFESSIONAL
Once again, the tests show that you are not infected with HSV 2.
Terri
Terri
Just got a call from i.c on my May 24th
HSV 1 6.6
Hsv2 0.2
hsv igm 1.8
June 16th
hsv1 2.89
hsv2 o.2
igm 6.887
HSV 1 6.6
Hsv2 0.2
hsv igm 1.8
June 16th
hsv1 2.89
hsv2 o.2
igm 6.887
On June 16 my blood was somehow sent to two different labs.
Mayo clinic igg hsv 1 pos igg hsv2 neg igm neg
Mayo only has reactive or nonreactive for tests and if reactive then they put a number on them so my igm was neg
Iowa city also did my blood
igg hsv 1 2.89
igg hsv 2 0.2
igm 1/2 6.887
I guess i just would like your impression on this and how the igm tests are so different and my number for hsv 1
thank you and i will not bother you again.. just want to be so careful and you have been the best source of help.. the doctors around here don't understand the testing well so I have been educating them with your info even though i have been a basket case.. thank you terri, my pcp would like to know your interpretation of this and if we should go with one lab over the other.. thanks.
Mayo clinic igg hsv 1 pos igg hsv2 neg igm neg
Mayo only has reactive or nonreactive for tests and if reactive then they put a number on them so my igm was neg
Iowa city also did my blood
igg hsv 1 2.89
igg hsv 2 0.2
igm 1/2 6.887
I guess i just would like your impression on this and how the igm tests are so different and my number for hsv 1
thank you and i will not bother you again.. just want to be so careful and you have been the best source of help.. the doctors around here don't understand the testing well so I have been educating them with your info even though i have been a basket case.. thank you terri, my pcp would like to know your interpretation of this and if we should go with one lab over the other.. thanks.
The Western Blot, in my opinion, is the way to go for testing. Helped me resolve all my issues...
Just was wondering if you had thoughts on my previous post I am going to Mayo for further testing but am a single mom and this medical condition is causing alot of financial issues. I was just wondering what your thoughts are with my previous post. thank you so much.
Tests
April 11th
Mayo in rochester clinic lab
Igg for 1 postive
Igg for 2 negative
Igm negative
May 24
Igg for 1 pos
Igg for 2 neg
Igm postive lab was iowa city hygeinic lab
June 16
Igg for 1 postive
Igg for 2 neg
Igm neg with the rochester lab but we sent it also to the iowa city lab and get this
Igg for 1 pos
Igg for 2 neg
Igm pos
this is the flaw in the igm, correct? you guy have been great...
my exposure was march 24, could my igg for hsv 1 change to postive from then to april 11 with my first test. ??/ I saw Dr. H said one changed in 10 days. I don't know my status for hsv 1 prior to the april 11 the test.
3 months no hsv 2 yeah, can i be safe to say it's not
partner negative for everything.
Just worried my pos hsv was this terrible pain and 3 months of nonstop misery. ? Please answer and can I start living again.
Thanks.
April 11th
Mayo in rochester clinic lab
Igg for 1 postive
Igg for 2 negative
Igm negative
May 24
Igg for 1 pos
Igg for 2 neg
Igm postive lab was iowa city hygeinic lab
June 16
Igg for 1 postive
Igg for 2 neg
Igm neg with the rochester lab but we sent it also to the iowa city lab and get this
Igg for 1 pos
Igg for 2 neg
Igm pos
this is the flaw in the igm, correct? you guy have been great...
my exposure was march 24, could my igg for hsv 1 change to postive from then to april 11 with my first test. ??/ I saw Dr. H said one changed in 10 days. I don't know my status for hsv 1 prior to the april 11 the test.
3 months no hsv 2 yeah, can i be safe to say it's not
partner negative for everything.
Just worried my pos hsv was this terrible pain and 3 months of nonstop misery. ? Please answer and can I start living again.
Thanks.
MEDICAL PROFESSIONAL
You are clearly in pain, I'm so sorry.
But my advice stands. You don't have herpes, you desperately need help thinking differently about this.
Terri
But my advice stands. You don't have herpes, you desperately need help thinking differently about this.
Terri
I will stop, this is not me. sorry.
Terri, pelvic pain less today but anal area red, raw, burns when i have a stool, on 3 grams of valtrex a day. mouth sores gone today but now my anal area is breaking open and burns. How can this keep going on, does it never stop, mouth to pelvic to anal sores. This has been three months since i was with this guy and i never had this prior. i can't even work anymore. How can i get some relief either in my mouth of down below it's bad enough to have it in your mouth or down below but both places. He is negative, unless he lied to me and was with someone within the last 3 months. could be, he is gone. i am miserable. i am so sorry but what can i do, i have been to every doctor around, no answers and all my tests are negative except my igm pos and hsv1 pos
sorry, Terri, I am going to try to change my thought processes and get back to what a real nurse thinks. I am such a logical person until this. I will try to listen to you and your fellow people who really know herpes instead of these doctors that are making me scared and thus I am really becoming frightened. Thank you and I will work to get my thoughts with you herpes specialist.s ... thank you so much.
But my igm at 9 weeks was positive and at 2 weeks was negative. the next test will show the igg for 2 positive. igm first and converts to igg at 3 months. I took the test and am waiting and know the answers. in my heart and maybe that is why i am not myself, this guy is long gone and i am left with his "stuff" it makes me sick and feel used and i am too smart to have been to ignorant. I am beating myself up for being ignorant and not safe. I have children who need their mom and mom has so many doctor bills and hurt so bad everyday from the pain. My PCP put me on neurontin and said she has many gals like me with genital herpes that have extreme non stop pelvic pain. I do feel my life is over. thank you, will wait for tests but i really feel he is a false negative or was not honest about his last sexual encounter. he's younger than i and that makes me wonder especially since he is gone. Thank you, I will talk to someone. my PCP said many of her patients with genital herpes like my symptoms end up with chronic fatigue syndrome and cannot work like they used to and have a hard time finding a good relationship because they are so messed up and on antidepressants.
MEDICAL PROFESSIONAL
Your tests are negative, you don't have herpes. The rest of the questions that you posted have to do with situations in which you have herpes, and you don't have herpes, so they aren't relevant for me to answer.
You desperately need psychological help. If you spent as much time working on your obsession with herpes as you do seeking information about something you don't have, I believe you would be starting to get a handle on this problem. This is a good time to start
Terri
You desperately need psychological help. If you spent as much time working on your obsession with herpes as you do seeking information about something you don't have, I believe you would be starting to get a handle on this problem. This is a good time to start
Terri
i am frightened Terri, scared to death and am so worried this guy gave me herpes. I am 45 and am such a smart girl, how could i have been so ignorant. please help me believe it will be ok and what is life after herpes. I know my friends want nothing to do with people with herpes,. you are like a plague. I want a life for me and my children. please pray for me. this is so frightening.
Can a person contact a lawyer and get the papers from a person that are his when it comes to this if i turn out positive or do i just get to live with it and he runs around infecting others.
Can i ask you one more question, my daughter is sleeping in my bed for a nap. If this would be herpes, do I have to be careful with sheets. just loosing my mind, i know, this is so not me. please tell me I can trust the 9 week tests even though i have been on antivirals the whole time.
Terri I did have them repeat my igg for hsv 2 at 3 months the one previous was at 9 weeks. Do you think that was a good idea or a waste of money. I am just worried if I do have 2 then it's in my mouth and genitally. and I wouldn't want to pass this on... This is about the worst right to have two in mouth and genitally.
MEDICAL PROFESSIONAL
Your herpes tests are negative. You don't have herpes. I can't know or say anything about the veracity of your partner.
Terri
Terri
You are reading content posted in the Herpes Forum
Herpes spreads by oral, vaginal and anal sex.
Herpes sores blister, then burst, scab and heal.
STIs are the most common cause of genital sores.
Millions of people are diagnosed with STDs in the U.S. each year.
STDs can't be transmitted by casual contact, like hugging or touching.
Syphilis is an STD that is transmitted by oral, genital and anal sex.
