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Avatar universal

i'm so sad

I have just been diagnosed with genital hsv1.  I am so so sad.  I rationalize but it just sucks.  I have kids and feel like a bad mom.  I have my husband ( who seems to be doing ok with it all)  he hasn't been tested yet.  I feel so dirty.  I'm afraid to even touch myself to clean, go to the bathroom etc. cause I might come in contact with my own secretions.  My husband and I haven't had sex yet.  I think he may see me as dirty.  Can he even touch me?  I am on Valtrex.  For How long? Does it mean anything for our sex life?  I don't feel like I am sexy and can even think of being wanted because I am infectious.  Can I get over this.  Everyone notices a change in me.  I need to have my life back.  Will I?  I feel like every itch, every twinge means its there!?  I hate having such a secret.  Thanks for anything anyone can share.  I have been reading all the older ques and comments and even if they don't directly relate they are all informative.
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Avatar universal
It's probably both, just because statistically for most people it's oral. But you also have it genitally if you have lesions in the lower back.

Aren't you embarrassed by your screen name?  I think all these negative end-of-the-world screen names put off really bad vibes. Self-esteem issues, and all.
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Avatar universal
I'm not sure since my outbreak is on my lower back neither my mouth nor my genitals????
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207091 tn?1337709493
COMMUNITY LEADER
Good for you!!

Attitude is everything.

Do you have it orally or genitally?  If you have it genitally, here is a good article for you to read - http://blogs.webmd.com/genital-herpes-intimate-conversations/2006/02/type-i-herpes-transmission.html

AJ
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Avatar universal
I too just found out today that definately have herpes 1. I was upset at first (Friday) wrote off ever finding someone to be with (since I’m a single mother). Felt dirty and didn't even want my daughter to touch me. I'm over it...I'm not gonna let something so miniscule in the scope of things blow my light out. There is no reason not to go on with life and use it as a reason to appreciate what we have even more! Life is short, delicate and beautiful. Don't let something like this take away your presence in your family and children’s lives. They need us...all of us! We can't be distracted by what we can't control! I smile brighter and love deeper! In a way...it's been my little blessing (as weird as it sounds). ;0)
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Avatar universal
Sarahcruz, I have to disagree on not believing there is a moral obligation  to tell. If you know you have genital herpes, whether it's type 1 or 2, I feel you do have an obligation to tell your potential partners.

"Food, drink and vitamins" won't help you with controlling herpes or its outbreaks. Just live your life. If you have outbreaks, you have them. If you don't, you don't.

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207091 tn?1337709493
COMMUNITY LEADER
Sadness?  Slice of hell?  It won't get better?

Come on people.  Look, I get its overwhelming at first, but this is not the gloom and doom you all are putting on it.

This is a stupid virus with a bad reputation, and if you are buying into the stigma of it, then that's on you.  You all have ghsv1.  It sheds less, will have fewer and milder obs.  

If you aren't getting better with dealing with this after a few months (if it takes that long), then you should seek help for depression.  Herpes (and life) is what you make it.

And to Jwls - if your husband still won't test, he's an *** and you deserve better.

AJ
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Avatar universal
Honestly, no one has an obligation to tell anyone that they have genital herpes.  It's your principles and morals that decide whether or not you want to put that person at risk before or after you tell them.

Granted, lots of people have HSV1...do you really want to risk NOT telling your partner and potentially infecting them...even if they do have it and you don't know that, they may not either.

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Avatar universal
From what you have mentioned above, is there a moral obligation to tell a new partner that one has HSV 1 genital since its so common?
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Avatar universal
"Join an[sic] pool and worry about the NCAA tournament."  

I love that! :o) Great advice.

It's difficult for me to get worked up over the sob stories about HSV1. It's really common. You are more likely to meet someone who has it than who doesn't have it. If your husband refuses to be tested and continues giving you a hard time about this non-issue, find another husband.
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Avatar universal
HSV1 really is so common its like worrying about having had chickenpox (which can also cause other outbreaks in your life). Most people have HSV1 on their mouth/face. You just happen to have it on your genitals. Like Slacker said, it usually does not repeat itself that often.

Your husband is being a *******. If this is really that important to you, it could solve alot of problems if he just got a blood test. If he has HSV1, which he probably does, then you can forget transmitting it to him!

This really is not something to worry about. Join an pool and worry about the NCAA tournament. That is far more important.

If you are really intent on medicine, ask your Dr about Acyclovir instead of Valtrex.
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Avatar universal
Hey jwls, you may never experience an outbreak again!! HSV1 on the genitals sheds less than 2 and the outbreaks are far less than 2. Some get the initial outbreak with never having a single outbreak ever again!! Not saying you will fall into this category but if you are going to have herpes, this is the 1 to get :). Forget the Vitamans and I wouldn't even waste money on the Valtrex. Doctors push so many medications on us... Let it go and see where this takes you!!! Keep us advised..
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Avatar universal
I felt the same way that you feel when I found out that I had genital HSV1.  That was 2 months ago, and I have hardly had time to think about it lately.  I'm happy, healthy otherwise, and I know that this has no affect on who I am as a person.  I'm even single, and not worried about meeting 'the one' because I know that he will love me regardless.  I hope that helps a little bit.  We're all here to support you.
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Avatar universal
Thanks for the info.  I bet he does too.  He won't get checked though(at least not yet).  My gyno said to go ahead and have sex.(unprotected)  I was so surprised.  The Valtrex is so expensive.  They are going to keep me on it for six mo. I've read alot about food, drink and vitamins that help, maybe thats the way to go.  Thanks again.
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Avatar universal
You are right.  It's on my mind daily in one way or another.  Even if its just hearing the commercial on TV for Valtrex.  Yes, we can only hope for a cure.  I will be researching where there at with it once I can get my head out of my butt.  This little slice of hell is correct.  Hopefully I don't deserve any more pieces of that pie.
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Avatar universal
You need to understand something; LOTS LOTS LOTS of people have HSV1! I bet your husband will be positive to HSV1 and if so, you both will have the normal sex life since you are both equally infected and nothing is going to happen! You're acutally lucky you don't have HSV2. HSV1 have a LOT less outbreaks than HSV2 and shedding happens a lot less than 2. To be honest, you will probably have 1 maybe 2 more outbreaks and that may be the last 2 you ever have for the rest of your life!! Don't even waste your time with Valtrex!! I know doctors love to script that drug for all herpes but it really is meant for the HSV2 people!! Statistically, about 70% of the population has HSV1 so just calm down and don't get so upset over this!!!!! your sex life will be fine and you're not dirty!! Just pray to God you don't have the HSV2 disease since that's the one you want to be on Valtrex for and shedding and breakouts happen a lot more!!! :)
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Avatar universal
im sorry
this is all our personal slice of hell. everyone says its supposed to get better over time, it doesnt.  i recommend daily meditation. i say eat what you want, because diets are stressful.

you may have your life back soon, you have to let it happen.  good luck

lobby for gene therapy, that is our only hope for a cure for this disease.  herpes sufferers need to get together and push for a therapeutic cure from the pharma companies.
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