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Hidradenitis Suppurativa (HS) Community
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Avatar universal

5 years free of HS due to diet! Must read

Hi everybody,

I just want to share something that might help you overcome HS, because for me it has been a life changing discovery.

I've been diagnosed with HS at the age of 15 and I've struggled with it for 10 years. I've had horrible inflammations in my groin area. It caused me pain, but the shame I felt and the influence it had on me mentally was probably even worse.

Around 5 years ago I stopped eating refined sugars due to intestinal problems, plus I developed a much healthier diet. I still eat sugar, but mostly natural sugars (fruits), and an occasional candy, but in moderation. The point is that I reduced my SUGAR consumption DRASTICALLY.
(refined sugars are hidden is almost every product nowadays, so I learned how to read food labels and cook with natural products)

Surprisinly, my HS vanished and it has been gone ever since.
Even my scars have faded.

However I did not see the connection between HS and my diet. I figured it was hormones.
Untill 2 months ago. I went traveling and grew tired of my healthy eating habbits. I took ALOT of sweets during that period. Chocolate/icecream/cake/cookies, you name it.
And guess what: for the first time in 5 years I began to feel that familiar pain and pressure in my groin again, lumps were starting to show aswell.
Then I started to put the dots together and figured that, all these years, it must have been my nutrition.

Since 3 weeks I've been back to my healthy (mostly sugar free) diet and the HS is, once again, gone.
No medicine.
No operations.
No scars.
No antibiotics
Just healthy food.

So my point is, I can STRONGLY recommend having a look at your diet. What nutrition does for your body and the HS. For me it is sugars, but for you it could be something else. For example, I read about HS patients reacting to nightshades aswell.
The most important thing is that apparently there is a link between nutrition and HS, and you can influence it.
Nutrition is highly underrated in western medical care.

And what is so bad about having a healthy life style anyway? It takes a little effort, but once you're used to it, you'll never want to go back. I feel stronger and fitter then ever :-)
Give it a shot!

Greetings from the Netherlands

1 Responses
Avatar universal
YES - I agree 100%.  Here is my daughter's story!  We lived a nightmare for so long.  Her #1 trigger was sugar (all sugars except honey and some maple syrup).

My daughter turned 15 and was immediately met with acne on her face and back that progressively got worse. We started treating it with homeopathic remedies. That seemed to keep it in check but didn't heal it. The acne was severe and we learned it had a name - cystic acne. The medical options had adverse side affects - so just continued the cleaning and supplement regimen to keep it under control. Two years later she was 17, she had her first boil in her groin area. We had no idea what it was - actually thought it was an ingrown hair and so we treated it as such. Then she began to get one after another. I googled, I questioned friends and family. We adjusted her supplements, thinking perhaps it was tied to the cystic acne - adding coconut oil, Spirulina and Chlorella as well as probiotics. Sometimes she would get through a couple of weeks without any boils - then to have them back to back.  She was so embarrassed and overwhelmed. Then came the rashes. Rashes like what infants get with diaper rashes - on her privates and her female areas. She was miserable. Boils & Rashes! Rashes and Boils!

Our family is on a budget and cannot afford huge medical bills. In February of 2017, I cried out to God for answers. That very night - He graciously helped me find the right combination of words in google.  I'd been trying different combinations of words for the last 2 years! I saw a correlation between her cycle and the frequency of the boils - so I googled "boils and rashes that pop up in groin area during a woman's menstrual cycle" - I found the name - Hidradenitis suppurativa.  Coincidence or not (NOT!) - I had an answer. As I read article after article and blog after blog, I shook my head. As I looked at the photos - I had an answer!  My daughter had an answer!

We began reading about treatments. What we kept seeing was that DIET played a huge part in the answer.  That was 7 months ago that we began. I am happy to say that my darling daughter has gone 3 months without a single boil. And we discovered what triggered the rash. And we have seen the cystic acne on her face and back clear up!

This is her protocol that works for her. We have read many who write that everyone's journey and recovery is their own and unique.  That is the truth!  Keep searching, (keep praying), keep experimenting until you too are free from boils, rashes, acne and HS!  My daughter now follows the AIP (Autoimmune Protocol - Paleo) diet. She did elimination diet slowly, from February to June. I will list in order what she eliminated. ALL of these foods triggered either boils or rashes!

No gluten, no corn, no grains (except brown rice she can eat), no almonds, cashews, pistachios, no dairy, no legumes, no nightshades at all (no white potatoes, no tomatoes, no peppers, no eggplants, no paprika, no cumin, no cayenne, no chili powder).  AND for her the most important one to avoid - ALL sugars!  For sweeteners she can do pure raw honey, pure maple syrup and stevia in moderation - but that is ALL.  If she has something that has a hidden sugar she will get a rash.  

As she got the boils at the beginning - we treated by washing the area, doing apple cider and Epsom salt baths and keeping colloidal silver and tea tree oil on the wound. That helped them from becoming infected.

And one more thing - she always had sensitive skin. She has always been allergic to avocado oil lotions and perfumed lotions. We also knew she was allergic to latex - we found out when she was little with Band-Aid reactions.  But we discovered this summer that she is allergic to feminine hygiene products which was triggering rashes during her cycle. She purchased Thinx period panties - and she used them for her cycle and that was the first time she did not get a rash during her period.

For such a long time she was so devastated by an unknown illness. Then shocked to find out what it was but scared when she read that she would suffer from it forever! But we kept praying and searching and now she is on a journey to healing!
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