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Endometriosis or Something Else?
Thanks for your quick response Cherie, and all the best to your son. My report reads:
"Impression: large multilocular cystic and solid mass containing multiple septations.
Possibilities include bilaterial endo and cystadenoma.
In midline extending to both the right and the left is a complex septated cystic and solid mass measuring at least 10 cm in its greatest diameter. Although more than likely dealing with bilateral endo, a pelvic tumor such as a cystadenoma cannot be excluded."
My hysterectomy in Feb. 08 was due to multiple fibroids; a problem for many years; had a mymectomy approx. 5 year prior. Just curious as to why they are speculating on Endo since I had my hysterectomy in Feb., and was back in the doctor's office in July 08 due to excruciating pain during intercourse (so soon after surgery). My surgery is scheduled for July 10, although doctor suggested surgery in April (when I had my last u/s). Maybe I'm being paranoid, but I haven't had issues with Endo for years and can't rationale in my head why it would be an issue post hysterectomy.....not looking forward to surgery, but I need to get it done, and put my mind to rest, for sure ....
"Impression: large multilocular cystic and solid mass containing multiple septations.
Possibilities include bilaterial endo and cystadenoma.
In midline extending to both the right and the left is a complex septated cystic and solid mass measuring at least 10 cm in its greatest diameter. Although more than likely dealing with bilateral endo, a pelvic tumor such as a cystadenoma cannot be excluded."
My hysterectomy in Feb. 08 was due to multiple fibroids; a problem for many years; had a mymectomy approx. 5 year prior. Just curious as to why they are speculating on Endo since I had my hysterectomy in Feb., and was back in the doctor's office in July 08 due to excruciating pain during intercourse (so soon after surgery). My surgery is scheduled for July 10, although doctor suggested surgery in April (when I had my last u/s). Maybe I'm being paranoid, but I haven't had issues with Endo for years and can't rationale in my head why it would be an issue post hysterectomy.....not looking forward to surgery, but I need to get it done, and put my mind to rest, for sure ....
Hi Laney8463, and thanks so much for your "2 cents." There was no mention of vascular flow. Your right about the radiologists in regards to making their best efforts at interpreting the pics, but the waiting game is painful! ugh! I've read alot on the forums about gyn/onc; my doc is an ob/gyn. The pain is constant, but bearable at this point as I have sustained from sex--EXCRUCIATING!!!
This information is very helpful. Thanks so much Cherie. I go for bloodwork next week so I'm not sure about my white blood count. Can you tell me how I can get to the journal page you mention. Thanks so much Cherie762.
Hi there,
Just wanted to chime in with my 2 cents. I too had severe endometriosis, that I didn't even know I had. I had multiple ultrasound after ultrasound and just got sick and tired of the guessing game and decided to have everything taken out. My doc thought I might have endometriomas on both ovaries. They show up quite frequently on ultrasound as complex masses with vascular flow. They are usually solid and cystic, meaning mixed areas of different componets. Mine had vascular flow also with septations.
It could be that, due to the way the image shows on ultrasound, that is why they are suggesting a possible endometrioma. Cystadenomas are also similar in appearance on the ultrasounds. I had one of those too. The too grow to be quite big. Radiologists can only make educated assumptions based on the appearance of the masses on ultrasound etc.
I know it is very unsettling to have these buggers growing on your ovaries, but they are almost always benign.
Was your previous surgery done by a gyn/onc? They are really the best qualified to be doing complex female surgeries as they have 3 more years of training than a regular gyn. By suggesting you see a gyn/onc, does not mean I think any of this is cancer, just means they are the best candidate for the job.
I hope you get your surgery taken care of quickly and feel better really soon. It certainly is no fun being in pain.
Take Care and good luck. God Bless
Laney
Just wanted to chime in with my 2 cents. I too had severe endometriosis, that I didn't even know I had. I had multiple ultrasound after ultrasound and just got sick and tired of the guessing game and decided to have everything taken out. My doc thought I might have endometriomas on both ovaries. They show up quite frequently on ultrasound as complex masses with vascular flow. They are usually solid and cystic, meaning mixed areas of different componets. Mine had vascular flow also with septations.
It could be that, due to the way the image shows on ultrasound, that is why they are suggesting a possible endometrioma. Cystadenomas are also similar in appearance on the ultrasounds. I had one of those too. The too grow to be quite big. Radiologists can only make educated assumptions based on the appearance of the masses on ultrasound etc.
I know it is very unsettling to have these buggers growing on your ovaries, but they are almost always benign.
Was your previous surgery done by a gyn/onc? They are really the best qualified to be doing complex female surgeries as they have 3 more years of training than a regular gyn. By suggesting you see a gyn/onc, does not mean I think any of this is cancer, just means they are the best candidate for the job.
I hope you get your surgery taken care of quickly and feel better really soon. It certainly is no fun being in pain.
Take Care and good luck. God Bless
Laney
Hi I can explain some of the terminology if you dont already know, multiocular cysts ar many numerous very small fluid filled cysts, can be painful depending where they are located for example if you still have ovaries , also if they landed on kidneys those are very sensitive tissues,do not want to panic you but I am always honest with my ladies,,a solid mass is a bit more concerning than a fluid filled mass, there are several things it coule be and since youve had surgeries very recently in the past it cant really in all lodgic be anything too progressive , but I know your concerned and I would be also. ok,,septaions simply means the walls with in a cyst, which basically means your cysts are complex cysts.
ok more about the mass, I have to agree with you, I am leaning towards not believing its endo, doesnt seem to fit or sound right, unless whoever gave you your hyster did, a really crappy job cause visable endo tissue is always removed during a hyster.
there are many many things that growth could be,,,how was your blood work , as far as white count etc? ,,My room mate when I had my hysterectomy had a 20 lb mass that was a begnine growth, she was as skinny as could be and 80 years old and she whipped right through that surgery...I think your going to be just fine, my huch is to agree with you about it not being endo, could be,,dont think so,,we will find out soon, I know its scary and not any fun to have multiple surgeries, but we really must do what we must do,,,I know you already had your hyster and other surgeries, so you likely got the drill down as for prep and post surgery,,,I got a journal page on my home page with many tips on hints to prepare for surgery ( any female operation) and some ideas of how to make it easier to recover check it out if you get a minute,,may be some things you had not thought of before,,,,all the best,,Im here if you have any more questions.
cherie
ok more about the mass, I have to agree with you, I am leaning towards not believing its endo, doesnt seem to fit or sound right, unless whoever gave you your hyster did, a really crappy job cause visable endo tissue is always removed during a hyster.
there are many many things that growth could be,,,how was your blood work , as far as white count etc? ,,My room mate when I had my hysterectomy had a 20 lb mass that was a begnine growth, she was as skinny as could be and 80 years old and she whipped right through that surgery...I think your going to be just fine, my huch is to agree with you about it not being endo, could be,,dont think so,,we will find out soon, I know its scary and not any fun to have multiple surgeries, but we really must do what we must do,,,I know you already had your hyster and other surgeries, so you likely got the drill down as for prep and post surgery,,,I got a journal page on my home page with many tips on hints to prepare for surgery ( any female operation) and some ideas of how to make it easier to recover check it out if you get a minute,,may be some things you had not thought of before,,,,all the best,,Im here if you have any more questions.
cherie
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