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622466 tn?1254457563

Is Hysterectomy right for me?

HI there, I posted here before and got good info on the subject...But I'm very confused about CIN III.

I've been going to my OBGYN regularly once a year....I have 4 kids and had a BTL... All my paps have been normal except in 1994 before I had kids I had a misscarriage. I didn't have a D&C. Doctor said was not necessary because pregnancy was not far enough... During my follow up after miscarriage I had an abnormal pap... went back 6months later, then 6 months after that.... and all were normal....I've been going once a year since and 4 kids later still normal until this january...My pap was abnormal, had a colposcopy, had a LEEP and afer the LEEP I was diagnosed with severe dysplasia CIN II and CIN III and also HPV+.... This is a shock for me... People are dying from cervical cancer and I don't understand why I'm already CIN III... I understand (after researching the web) that it takes at least a couple of years to dysplasia to progress from mild to severe if unattended.....I've been doing everything right as far as the yearly check ups go....I'm scheduled for a cold-cone biopsy in a few days...and I'm very nervous....should I just suggest my doctor to do a hysterectomy since I'm done having kids....What are the side effects of this??? Is it going to affect my sex life if I do it??? And how is it possible to be CIN III or worse and not have been detected earlyer (like on last check up last yr)???

Also 4 yrs. ago with my last pregnancy I had the routine blood work they do during the second trimester, you know the one to check baby's mental and physical abnormalities if any....my results came back abnormal for spina bifida.. I had an ultrasound the check for this condition and it turned out baby was in perfect condition and the reason for the abnormal blood test was because I was carrying twins and didn't know because the second baby had stop growing and living at about 12 wks.....So dead baby had seperate water sac and placenta but dead baby's placenta was sitting right on the cervix causing some bleeding and doctors said ok it's placenta privia... I was ordered on bed rest for the rest of the pregnancy (it was horrible not being there for my other children)... Doctors were afraid my uterus would try to discharge the dead baby as a regular misscarriage and put the well baby at risk so they told me to take it one day-a-time and my body would just absorb the dead fetus... The reason for this happening was unknown, doctor just figured that me being 115lbs. and 5'2'' I was too small to carry two babies and only one took charge of utero space... ANYWAY,  at about 36wks of preg. my water broke and I gave birth to a beautiful, healthy baby boy!! There were no signs of dead fetus.... I guess my body did absobed it.... NOW, can dead fetus sitting on the cervix all those months cause the dysplasia????? Could that be another reason for this and since it started from the inside rather than the out side of cervix maybe that's why it was not detected before???? becuase my doc said CIN I was on the outside by the vagina and CIN III towards the inside.... Besides after the coloscopy my OBGYN said I had no lesions an my cervix looked (pink and shiny) her words.... she said it looked very healthy but still wanted to do the LEEP just to be sure....PLEASE HELP

P.S. I'm going to ask may question on Monday when I go to pre op... but any info you can give me would be greatly appreciated....
11 Responses
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622466 tn?1254457563
Thank you both for replying.... This site is very awesome... for the last 2 months, since these new worries started, I visist medhelp quite ALOT...LOL... it's very interesting reading everyone's opinions and concerns.... It's also very cool know that there's women out there one can relate to.... God bless...

Helpful - 0
599170 tn?1300973893
What I meant was no more uterine contractions , but you still have your g spot and clitoris, but I did not really word it well, get that concern alot, and I personally, find sex more pleasant post op because my uterus was so enlarged and pushing on other organs,,,making a lot of positions impossible,,,hows this for a Sunday conversation LOL,,,I did all my paper work today wrote a very long resume,,,its due for a class I wont even graduate till Feb,

Cheli she sounds right about your dreams,,,you will find yourself so relieved when this procedure is over and you have all of us here to help if you need it...most women dont write me untill 2 days post op, and usually feel ok enough to get on computer by then,,,in fact the lap top is a good way to pass time while recovering,


(((hugs 2 ya both))))  Cherie
Helpful - 0
106886 tn?1281291572
OK... can you tell I am avoiding starting some paper work on this rainy Sunday afternoon? But, I had to ask... Cheri, just when things were getting interesting... um, you cut it short after the "G-spot" comment.

So, as a nice discussion diversion, I will plow away with this one and offer my two cents. I just was not sure what you meant when you wrote that, and if you were indicating that the G-spot orgasm cannot happen, well, I am living proof that this is not the case. Having said that, it takes research and talent to find the little bugger, but it is on the roof of the vagina (shows up after arousal) ... so, there is no disruption there. Of course, with the Uterus gone, things change, and in my case, they took the Cervix, so that was another change. But, honestly, I will say that other 'areas' of the body do pick up the slack, if that makes sense and although orgasms are different, they can still be powerful and, shall we say, interesting.

I will add, though, that when my hormone balance is off, so is my ability to even achieve orgasm, but when things are good (meaning I have enough testosterone and estradiol) then things are VERY good. Dryness was my biggest issue (per husband's report) and that took some time to figure out.

Cheli, I am wondering if your dreams are just your psyche's way of just getting you moving now that your flu has passed. Almost like you know this is hanging over you and you will be relieved once you have had the surgery... I think your mind is just telling you that things will be okay, just don't wait. I will say though, that it is good you let them know when you were not feeling well. I always worried about getting a headcold before any of my surgeries. I just did not want anything to interfere with my breathing!

Take care all,

Mary
Helpful - 0
599170 tn?1300973893
the HPV could have been dormat for years thats what happend to a good friend of mine, the last sexual partner she had befor husband was 20 years ago,,they bith claim to have never cheated..doc told her HPV can just pop up for no apparent reason/

Ok lets go with the worst possible thing lets say you do have cervical cancer. do you know how curable that is. in the upper 90 percent. If you have problems from cervix being removed, like bladder prolapse, it can be fixed,,,just stitch the bladder up a bit happens all the time.

the likelyhood is you will be just fine,,most of the things we worry about never happen. I totally get the nervousness, most people are more worried about the anesteshia and pain after then the surgery itself..

I agree with you that going through this so young stinks..My doc thought I was young at 45, the younger you are the more you have to be dilegent in preventing bone density issues...

I hope you feel better soon, have you seen a doctor for you current illness? I know theres a few viruses going around one flu like and one sore throat high fever thing.

Let me know how your appointment goes, he will likely post pone..it was good to hear from you...((((((hugs)))))) Cherie
Helpful - 0
622466 tn?1254457563
Hi Cherie, just wanted to say hello.... My flu is finally gone!! Thank Goodness... I just have this annoying little cough.... I got a call from my doc's office last wk... and they just told me to give them a call a soon as my flu symptoms r gone... I think I'll call Monday for an appointment... I was having many dreams about a month ago about my doc calling me and announcing that I had cervical cancer....I never mentioned cuz they're just dreams and I'm trying not to let it bring me down.... but 2 nights ago I had a dream about my doc calling me on monday the 20th... telling me to come in for pre op and to have the surgery on wednesday.... that's weird.... so I'll call monday and make the app. hopefully for the first wk of next month....That wk works out for me....

So anyway... I just wanted to say hi....   :-)
Helpful - 0
599170 tn?1300973893
sorry friend that they had to cancel i know it ( the thing a baby does on a bottle) some of the words they delate are silly especially that one ,,try explaining breast feeding with out it...anyways..its in your very best interest to wait...a Z pack is a really good anitbiotic ,,it will kick your illness,,
your doctors advice sound right on...first things first...

you mention worry about sexuality after,,,you once healed will be fine ,,your procedure will not decrease the ability to orgasm. A hysterectomy does mean no more uterine orgasms...just the g spot kind..and if your estrogen is adjusted it helps with lubrication etc...
Helpful - 0
622466 tn?1254457563
Just wanted to let you know I had my pre op app.... My surgery was cancelled because I have a horrible virus....fever, cough, congested, headaches, tummy ache and diarrhea... It really *****..... we'll try to reschedule for next wk... I hope I get rid of everthing in a wk.... My doc gave Zyromax.... it's a 5 day medication and I hope it does the trick.....
I mention to my doc about the hysterectomy... she said she didn't recommend at this point.... Because removing the uterus at this point can interfere with further findins of dysplasia or cancer..... so I'm just having the cone biopsy and pray....
Thanks for all the advice......
Till next time......
           cheli55
Helpful - 0
622466 tn?1254457563
He Cherie.... I just read your Journal Page "My Hysterectomy Story"... Thank you, it did help cope a little... Sound like you're a very strong woman... I have a cousin/close friend that recently had a hysterectomy because she was diagnosed with ademonyosis... where tissue grows attaching the uterus to the abdominal wall... and causes horrible pain.... Many women are having hysterectomies and it's very common procedure... She claims it was a very good decision to do so, and she feels great.... but I'm still very scare... her cervix was intact....  If I have a hysterctomy because the proble is in the cervix then it'll be uterus and cervix.... I'm afraid on how it's going to affect my sexual life... (I never wanted anyone to mess with "my flower") lol.... I'm 34 yrs. old and didn't expect this to happen yet...  And the fact that I've had a real tuff life already, it's like what's next... I've been trough hell and concider myself pretty tuff.... but this time I'm really really scared.... I know it's normal to feel this way.... I'm still kinda feverish and with a cough.... I see my doc tomorrow in the morning.... and we'll have to discuss the surgery for wednesday... I have a feeling is not gonna happend and I'm very anxious because I just want to get it over with....  I'm also really worry about the HPV.... I have never been positive for this... and eventhoug i got plenty of info on the web.... I'm still not clear of many things.... I will keep you posted and let you know what my OBGYN and I discussed after the app.....  thanks again...:-)
Helpful - 0
599170 tn?1300973893
I wrote a journal page titled MY Hyterectomy story,,I invite you to read it , I am going to try to make some links later to help others to it,,,i want to make a what to expect after hysterectomy health page too, anyways check it out if you wish,,its from my own experiences as a patient...

I know its hard/ impossible to not wonder the cause, my brain works that way too, And your actually wise to investigate the whys...

Cheli,,,please i am begging you do not have the surgery with out full disclosure of any illness and effects( vomiting , cough)  I get not wanting to postpone,,,but I think you already know how potentially dangerous going under general anestesia while ill could be,,

I dont think they would make you wait an unreasonable amt of time to rescheule if needed..and dont let them , be pushy and forceful if you have to,,,I always try "nice" first when dealing with issues like this, second ask for a superior/manager...lastly its ok to switch to not so nice and insist on your rights.

I have been "under" many times Im kinda used to it,,,but I do know what you mean its a feeling you can not convey to some one who has never experienced it,,,the lack of feeling of time passing is odd,,,even when we sleep we wake kinda knowing it its been 3 , or 6 hrs etc,,,,not so with surgery it could be 20 minutes or 10 hours its a strange feeling.

You are in my thoughts and my prayers too, I really do truely care for all of you ladies, that is why I applied to be CL of this community, I " get" what your going through...If you ever have any questions at all or just want to talk talk in private please dont hesitate to pm me...i will do my very best to help,,,,Cherie
Helpful - 0
622466 tn?1254457563
Hi...Cherie762, thank you for your comments....I am trying to focus on taking care of the problem rather than what caused it... but it's impossible to not to wonder what caused it... being that I've had suffer enough with medical issues plus more....And even though it's better to be optimistic and positive I know that it's better to look at the glass half full rather than half empty....but still I can't help to think about how it's possible for CIN I to go to CIN III so quickly...because if this is the case than I want to take care of the problem ASAP.... and on top of everything, yesterday I woke up with flu sypmtoms....cough and fever... and I know that if on wednesday I have this sypmtoms they won't do the surgery....I hate to postpone or reschedule..... I'm afraid that if I wait any longer it might be too late..... I can't help being so scared... this is going to be my 5th time going under and I sure don't like the feeling.... but what ever it take to take care of the proble right....lol... Thank again and will keep you posted.... please keep me in your thoughts....:-))
Helpful - 0
599170 tn?1300973893
I am here and can answer or advise on some of your questions, you have every right to be concerned and I understand that...cin11 or 111 can be many times helped or " cured ' by leep which is surgial removal of a portion of cervix tissue.certainly less extreme than a hysterectomy..
If your doctor thinks a hysterectomy is advisable he will let you know,,,you do have the right to ask any questions you wish ..you have a lot of varied issues I would suggest you write your questions down before your visit...One can only speculate as to the cause of your condition,,do not blame yourself ,,you took all the right steps for prevention.
It is possible for the body to absorb fetal tissue. As to could this be the cause Of your dysplasia..I dont think there is any way to know,,,,In my honest opinion, you need to focus on curing the problem and worry less about wat caused it...I think your gyno sounds wise...when in doubt check it out,,,,,Congradulations on the healty baby boy and I have had several friends get false positives on negative conditons such as downs sydrome tests on their in utero babies,,,it happens,,,good wishes to you pleae let me know how monday goes for you ,,
Helpful - 0
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