Tingling - The path to recovery

[Francy66]

I'm beginning to have problems in opening the forum and also writing is very slow. What about starting the third chapter? Coriecl, give your contribution!

[cup12]

hey everyone! i am actually feeling much better today! the tingling has def gone almost completely away (hopefully im not jinxing myself).  i am left with a little prickling and some small muscle twitches but my body is def on the mend. my anxiety is way down...i only get worked up when i get my mind going! but i just keep saying TEMPORARY! u guys have def saved me sanity!! feeling a little more positive! no more flu shots for me!! :)

ps has anyone talked to their dr about any long term effects?? hope there aren't any! i'm relying on this forum for my info seeing as none of my drs will even consider this being a result of a flu shot, even tho i kno it is...i kno my own body! so glad i found you all! :)

[reenie123]

I am new here.  My hands are tingling like crazy --- I am so scared.... it feels like someone punched me in the right arm (not where I received my shot) --- I am calling my GP when he opens in 1/2 hour.  Please everyone - tell me I don't have gbs!!!!! I shouldnt have taken this stupid shot, but I have asthma - so I thought I was being wise --- biggest mistake in my life.

[cathy54321]

Hello newcomer :) While I am sorry you are here, I must tell you that you are in very good company with tons of new experts on this horrendous condition.

cup12, I had EVERY symptom you had exactly the way you explained, plus numerous other symptoms. I am 6 weeks post vacc and have been posting on Ch. 2/Path to Recov. I spent 2 days in hospital getting re-hydrated, and sick as hell, with a numb tingly body that felt like it was vibrating. Was bedridden for 5 days.My symptoms hit in the exactly the same way/exact same time as you... especially the headaches/upper back/ear pain. Same stomach issues, plus serious nausea...You are not alone - many folks on this site share the same symptoms - it is all vacc related and has been diagnosed by numerous doc's as an auto immune reaction that has affected the peripheral nerves:look up neuropathy. Also, I needed sedatives to calm a constant anxiety like feeling - it is normal to have high anxiety around this illness - your nervous system is also more sensitive...


I suggest you read all the posts from the very beginning (all three chapters) you will find them informative, comforting, helpful and a solid tool for your recovery. Lots of great suggestions, dialogue, recommendations and support when we hot rock bottom (we are all in agreement that this affliction has tested our metal in ways we didn't know could be tested)

It does get a bit confusing as we are posting between Ch.2 and Path to recovery, so just go back and check them all out - you will find it very helpful.

Let us know how you are doing - the vitamins/juices/diet suggestions were super helpful.

The best medicine by far is the people - they literally saved me and my sanity.

Take care - write back,

Cathy

[coriecl]

There you go...the neuro said not to worry and it will go away!

I didn't have that problem...both my neuro and doctor agree that it's from the vaccine.

[cup12]

Good to know! No I didn't have an emg bc all other tests were normal. He said I should not worry and is confident it will go away in time, however he does not think it was from the flu shot.

[coriecl]

gen49: Got it! thanks.
cup12: Yes, definitely temporary! or else something would have shown up on all those tests you had. My doc explained that it was an over-reaction of the immune system (to what in the vaccine we're unsure of) and it attacked the sensory nerve system, thankfully not the central nervous system. The sensory nerve system can repair/heal itself. But it does take time. I looked at the list of tests you had but it didn't say anything about a nerve conduction or an EMG test. Did you have one or both of those? If not, I would ask your neurologist if it should be considered.