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Tingling after Swine Flu Vaccine Chapter 2

Here is the continuation of surfnsand247's original Tingling after Swine Flu Vaccine.
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Avatar universal
Thanks Cathy for the welcome.
Sorry you are in the downward spiral, sending empowering thoughts your way.
I am a Johnnie Knows Nothing, but I emplore anyone on here NOT to take further synthetic prescription drugs of ANY kind, unless your live depends on it!! Sorry, but I guarantee you prolonged suffering if you do so..ALL synthetic drugs create side effects, read the leaflet inside...I know...all we want is pain relief....I tried that and suffered 2 years! of hell...lucky to survive one suicide attempt...now this from a freaking flu jab!! Five years ago I also recovered from terrible muscle wastage and pain caused by Lipitor anti chol drug...that alone nearly killed me...
Media hype scared me enough to say yes to their poison again....what a fool...
Should I remind everyone this event is EXTREMELY rare....does that make us famous?
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Avatar universal
Hi Cathy

I have had vibrations/twitching  and numbness everyday  since January ,does not go away or come back nothing stops it ,it is relentless.
Goes at night if it wants to it  is my life right now.Sort of got used to it as it is now me.Dont like it but it keeps on going and going and there is nothing I can do to stop it
So I know how you feel, and by reading alot of these posts I count myself lucky
Have got some serious medical apts in July but I dont think they will offer any cures or advice except just wait and see!
Its as though my whole nervous system has been short circuited and the fuse box is locked!!
I think you have coped pretty well
Keep on and hope you are having a better day today
Remember the sun always rises and dark days will go.
best wishes
Paul
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Avatar universal
Hi Cathy  What a bu**er. But you know what, it might have come on anyway working or not!!
All of my symptoms partly went away and all have come back and then partly gone again.
The part numbness on my head went then appeared again.
I was just thinking maybe its to do with how your body absorbs your ativan tablets it jusr lets it through a bit sometimes also I read that Amitryptaline can have a side effect of pins and needles and I think I remember you said you took that
But I think it sounds like your body getting used to a new situation and I bet its better nexr week.
Get lots of rest if you can this w.end.I bet it will be all easier next week . I bet the nerves are just have to get used to a new you


All the best  Chris
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Avatar universal

Hey everyone -

In response to noVax and Chris - yeah I have definitely experienced all those symptoms at one point or another - not fun.

Alot of folks talk about brain fog - which may or may not be another way to describe this noVax - not sure if it resonates with you.

I am super down today. Lots of tears and anxiety. I hate this and have had a remergence of all these troubling symptoms, like back at the beginning, which scares the crap outta me. What has happened all these months? Have I healed at all?
I feel defeated in some ways. Like this is some type of endurance test that may only end in another 6 to 8 months.
This is really no way to live when you need to work, take public transport and apply yourself 100 to work. Feel like at my wits end. I keep scouring the Internet for answers but keep coming back to the same thing: Peripheral Neuropathy from the vaccine.

The only thing that helps is Ativan - I guess because it calms the nerves down somewhat (and me) It's like the more intense the vibrations and buzzing in my feet and legs accompanied with nausea/etc, the more the anxiety mounts and it's hard to keep in check. So hard to handle this part when it feels like it has all come back - what does that mean? Has anyone had the buzzing and vibrations and numbness come back?

Has anyone been off work and then gone back and had a relapse with all sorts of symptoms that seemed to have gone away, but come back intensely?

How did you manage?

Am looking for words of wisdom...all posts welcome.

Hope all are well.

XO

Cathy
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Avatar universal
Hi  Yes I have something similar I have it all the time. But I also have this pressure feeling in the head as well. I do sometimes have this bruised eye feeling. The doctor sent me to have my eye pressures checked but they were ok

I too feel tired a lot of the time but curious enough it seems to abate a bit by night-time
It just feels that you are unstable all the time with this balance issue and as if you have been hanging upside down .

Cheers Chris
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Avatar universal
Just curious if any of you have been having or have had any balance issues. Lately it's been getting worse for me and not sure what to make of it. It almost feels like I'm slightly drunk or high. I have slight pressure behind my eyes and can't seem to walk without feeling that i'm slightly off-balance. I never fall over or have had to grab a wall to regain my balance, at least not yet. But something is definitely not right. Almost a drowsy sensation.

At first it only happened for a couple of hours a day and then went away. Then it progressed to a good chunk of the day. Now it seems like I wake up and I'm already drowsy. Usually it starts to subside by the evening.

Anyone else experience this? Did it go away? Or are you still dealing with it? At least this one doesn't affect my sleep too much. but it makes getting through the day a little tougher.

Thanks all!
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