Hepatitis Trials and Research Forum

[curiouslady1]

I wonder if it is possible to consider starting a community for Hepatitis C trial/research discussions.  I would think it could operate for a few years at least while the subject is heated up as it is now.  With the recent approval of new drugs on the market, more and more people being diagnosed, a multitude of trials to select from for those who opt out of traditional care with its severe side effects, and the need to share information about treatment experiences with drugs approved for investigational use only, etc, etc, it could really fill a gap in helping people access care.  It appears that there are a few of us who are interested.  I will ask that they express their opinion here.  

[curiouslady1]

Thanks Sandi and all.  I do think that people would use it and that is the important thing I guess.  The other HepC sites are mainly for support, seeking and giving and it is easy for a post on trial information to get lost in the shuffle.  There are a lot of people who can't or don't want to treat with standard of care for one reason or another and want to try a trial if they could wade through the stuff that is out there.  

[OdinLovesLife]

The race to find an Interferon-sparing cure for Hepatitis C is a really hot topic right now. I came back to Medhelp after a break. I had suffered a failed treatment with the standard of care drugs. I was specifically looking for information about the latest developments in treatment. Just like everybody else, I don't want to repeat the same failure with long lasting side effects added. The latest treatment developments are critically important to me and I would say, a huge number of other people.

I was very surprised and pleased to discover that so much progress has been made and that there so many trials underway at the moment. I have been scouring the existing forum for this information. I would welcome a Hepatitis C trials dedicated area, particularly one which is focussed squarely on information exchange.

[Puppyluvur]

I think that a forum for hep c clinical trials research is not only an absolute excellent idea, but also a very needed and useful. There is so muc info one could get and learn that could provide so much help in making well thought out decisions as to what tx's they could look for and what all their options could possibly be. I think this type of forum would be so helpful to so many people. I also think it would be a great asset to the medhep site. Hint, hint :) it's a great idea curious.
Sandi

[OC]

i think this is an absolute necessity...with the current software it's very hard to follow threads, like you can in vbulletin software...

[curiouslady1]

I'm good.  But I am tired.  I have an idea that there can be no misses with my drugs so I have this ritual when I get up.  I sit at the computer and check the forum and then watch the time change so I take my breakfast and my drugs right on the dot.  I am in good shape.  But I had to give up my meds for reflux to be in the study and I get heartburn a lot.  Otherwise pretty fine.  How about you?  You are SVR right?  What was your drug of choice Belle LOL?

[belle19]

oh btw, how are you doing these days?  i hope you're doing better.  belle