Aa
Aa
A
A
A
Close
Avatar universal

how how how

If my baby is having skin problems,  how can I treat it?  It's called Incontinentia pigmenti!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
2 Responses
546640 tn?1267058557
you should start with speaking to your pediatrician. You need a neurologist , a dermatologist and an eye doctor to start with.
Hopefully they can refer you to some doctors in your area. Good luck and if you need to talk, feel free to send me a message.

D
Avatar universal
You will need the best Neurologist and opthomologist you can find.  Look up NORD, it is the most reliable info.....these little ones have retinal hemorrages which lead to blindness, seizures, and numerous other problems that often require physical therapy and very close monitoring for years.....they also frequently don't  have normal immune systems.  I have raised one daughter with IP and am watching the rest of my children very closely...My mother had 14 miscaraiges and only one surviving child, I was lucky and only lost one child, we did not know about ip until after our last child was born with the skin lesions....it took 3 months to find a diagnosis....and it was finally a dermatologist that told us what it was...the pediatricians told me I was an over protective mother!  If you need help finding a dr that specializes in this disease... you need to start with Genetics....they will refer you to the neuro, and opthomologist and the rest.
you can contact me if you would like more information....I now have a grandaughter with this disease also.

My prayers are with you

***@****
Have an Answer?

You are reading content posted in the Incontinentia Pigmenti Community

Didn't find the answer you were looking for?
Ask a question
Popular Resources
Learn to identify and prevent bites from summer’s most common pests.
Doctors argue for legislation to curb this dangerous teen trend in the latest Missouri Medicine report.
10 ways to keep your skin healthy all winter long
How to get rid of lumpy fat on your arms, hips, thighs and bottom
Diet “do’s” and “don’ts” for healthy, radiant skin.
Images of rashes caused by common skin conditions