I don't know anyone in the area that has incontinentia pigmenti but I do hope that someone else here will add to the post. When were you first diagnosed?
Hi keirasmum. My 2 year old has IP
hello lorraine where are you from xx
hi seattlemom you will be like wow tht didnt tke long to get a reply lol my daugter is nearly 6 she was dignosed at 3 weeks of age it took them a while becoz they never seen it befor she was born with all the blisters and she had biopsy after biopsy then they seen a little couple of bubbles on my legs nd realised i had it to x