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incontinentia pigmenti scotland

anybody in uk with ip
4 Responses
1666434 tn?1325262350
I don't know anyone in the area that has incontinentia pigmenti but I do hope that someone else here will add to the post.  When were you first diagnosed?
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Hi keirasmum. My 2 year old has IP
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hello  lorraine where are you from  xx
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hi seattlemom you will be like wow tht didnt tke long to get a reply lol my daugter is nearly 6 she was dignosed at 3 weeks of age it took them a while becoz they never seen it befor she was born with all the blisters and she had biopsy after biopsy then they seen a little couple of bubbles on my legs nd realised i had it to x
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