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Avatar universal

hiv-like

Hi and just to say I've had these symptoms on and off for around 7 years After unprotected oral sex. Tested for everything. All negative.
Given up.

Does anyone know if anyone has actually died of this hiv-like virus or is it just sysymptom after symptom? Obviously,  when I say hiv-like, im referring to what everyone else is calling it.
As I say, I think I've had it for a number of years but so far, still alive.
please send Me your comments.
Thanks

Andres12
11 Responses
1415174 tn?1453243103
COMMUNITY LEADER
Hi and sorry you have been ill. We are not doctors on these sites but I am a microbiologist. I will try to see if I can help. Since you have been tested for HIV you are negative. What kind of HIV test have you had? Why do you cal it a "HIV Like" virus? So, what are  your symptoms?  Have you had a complete blood count and is it normal? Any fever/night sweats or cough?  Have you had a CD4/CD8 count done?
thanks,
mkh9
Avatar universal
Hi there,

Not sure about the cd4/8 count. If one or t'other was low would that suggest anything?

I know this is isn't a waiting room and there aren't doctors here but surely after all the threads I read they can't all be wrong. There's just too many for this to be coincidental.

Are you aware of any posts from people who continue to post years after there first one - meaning...they're still hete to tell the tale. I read a few from the same period and then they disappear...

Thanks
1 Comments
Are you referring to the HIV like Chinese virus? In China there have been no known deaths from it. It has mainly been in Asians. The symptoms usually resolve after a year or two.
mkh9
1415174 tn?1453243103
COMMUNITY LEADER
Well, I was asking because I thought perhaps I could figure out what is going on. But if you don't want to discuss your symptoms. There is one group of people on here but they haven't figured out what they have. I go on there to help them off an on when I see that they have something I think looks like a particular infectious disease. The title of the group is called Unknown Virus.

Some people think they have a HIV like virus from China. I won't comment on that as there isn't enough evidence to support that.

The CD4 count would be low if you had symptomatic HIV. Also, your Lymphocyte count would be low on your complete blood count.

That is why I asked. If you tested negative but were immunocompromised then you could get a PCR based test to check instead of an antibody based test. But the 4th generation tests have both so if you had that done you don't have HIV.

There are other viruses besides HIV out there that can make you feel lousy and also cause a lot of problems. That is why I asked what your symptoms are.

There is also the HIV site if you want to talk about HIV. If you are going to focus your conversation on HIV I will switch you to that site as this is for other topics.
mkh9

Avatar universal
Hi yes, I understand what you're saying.

My question was however,  'these' people who think they have or had an hiv-like virus...are they still commenting on this site. I saw some posts from a few years ago, and then nothing from these people. So, I was hoping to find out how they were now...

I have had symptoms ranging from tingling in my legs, sore throat,  bones/joints cracking, conjunctivitis,  mild problems with my gums (now) disorientation,  bad depression ( lasts around 2/3days now) a feeling that my nerves are moving...

I have had hiv tests. Cd4 counts etc all normal. The thing is, I have had this now for around 7/8 years. I now get a mild dose of it for around 3/4 days every 6 months or so so, beginning to live with it now as no tests - certainly for sti /std have shown anything up...

Thanks
1415174 tn?1453243103
COMMUNITY LEADER
Well, there is the one big group called Unknown Virus. There are a lot of posts on there about having an HIV-like virus. Maybe that is the group you are talking about. You would have go back to about 2/23/15 and you will see it on this site.

As for your symptoms some sound neurological but could be related to a virus. Do all the symptoms some at the same time and cycle around the same time? Do you get any fever with it? They haven't found anything abnormal with your complete blood count or blood sugar?

Joints cracking may not be a big thing. It is called crepitus and can be normal aging or due to osteoarthritis, and rheumatoid arthritis etc.sometimes also a fracture.

What does the tingling in your legs feel like? Have you started any new medications around the time you got this?

Have you been to a neurologist? I think I would give that a try to start with.

Did you have any infection like the flu, "stomach flu" , got a vaccination, had walking pneumonia, or bad diarrhea before this?

Also, it could be related to Epstein Barr virus. But, I'm just throwing out some things at this point.
mkh9

Avatar universal
Could i ask a quick question.

Do you know or aware of the longest person who has spoken about these symptom?  
And, have the got worse of time?

Thanks
1415174 tn?1453243103
COMMUNITY LEADER
I don't recall specifics. I know it has been years that they have had problems. I would have to go back and read through them all to find "the worse". Some sounds like they had secondary Syphillis because of their Symptoms or some other problem. But you don't have those symptoms. Why don' t you just go through and read some of them. I know these people still comment from time to time.
mkh9
1415174 tn?1453243103
COMMUNITY LEADER
I found this like to HIV like virus. But it is not actually caused by HIV or a mutation of HIV they call it that because the virus actually causes biochemical changes in the brain to make you think you have HIV so you test yourself over and over again. It does make your CD4 drop but then several years later it goes back to normal. Here is a link so you can see the symptos.

https://sites.google.com/site/newhivaidslikeviruschina/

It is not HIV.  But thought you should see it.

mkh9
Avatar universal
unfortunately andres12 there may not be a quick answer for you I am having the same issues .with no real solution but I have found some things that help to alleviate the intensity of my symptoms.if you would like to correspond I will be here on medhelp I will be searching for the answer  .I do think there is a relation to the china virus as mkh9 suggests .it has been 3 yrs in my case .things you might want to watch are your platlets that has been an issue for me also cd4 cd8 ratio low.i have had extensive testing trying to locate the culprit I did not stick to hiv testing I tried many other tests wich show other indicators such as the  protiens that this infection gives off .so it is evidence that it is there .just a matter of getting the drs to work on giving this a name .if you haven't done so already you should really consider having your vitamin levels checked .d3 ,zinc ,and b12 .this will improve the way your body functions .if you are deficient .most people are deficient .bringing these levels up to the normal levels will be a big benefit .i wish i could answer your question and give you an instant cure .as of yet i have only found pieces to the puzzle .so if you would like to campare notes just drop me a note good luck andres12.be well.
1415174 tn?1453243103
COMMUNITY LEADER
There is a couple of groups that talk about this Chinese Hiv like virus. From what I have read about it there have been no deaths from it. It is really usually spread from saliva as in kissing. It is not really an STD. It usually passes in a year or two. If you have had it longer I'm not sure why. Unless you have something else  but some symptoms of the Chinese HIV like virus can remain permanently but not all just a few. Usually, it is only in Chinese people not spread to other races so far. I'm not sure why. There is a lot they don't know about it.
mkh9
1 Comments
p.s. I have read that Chinese anti-inflammatory herbs and anti inflammatory drugs may help alleviate the symptoms.
mkh9
Avatar universal
Hi Im an Australian woman 32yrs old.  I think I may have the same virus Ive had it since 2011. The things that have helped me most is a paleo alcohol free diet and st johns wort which i think helps because of its anti viral and anti inflammatory properties.

My symptoms started after just kissing someone in 2011. He had just come here from brazil but he turned out to be doing unsafe things like drugs and seeing prostitutes. I had a sore throat for 6 months and lost 6 kilos in 2 weeks despite eating constantly. I eventually put the weight back on. But i got a rash around my mouth and on my feet and hands. The rash around my mouth settled but my hands still peel and are bright red and itchy a lot of the time. My symptoms get periodically worse  for 7 years now. I have chronic fatigue, headaches, sore throats and aching joints a lot of the time.  Unforunately it does seem to spread easy ao Ive stopped sharing drinks with people and dating has become very difficult.  It seems to be an invisible illness in terms of identifying it and continually medicating around it is getting exhausting. Any info would be very helpful.
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