I recommend you go to the Interstitial Cystitis Association website: ichelp.com. You can find IC friendly doctors in your area who you may need to see. Even if you go for a single appointment as a second opinion, you cn get a treament plan established that your local Urologist can follow. Many patients need to be seen in a special pain clinic and a regimen of pain medication recommended. Its not uncommon for an IC patient to need a local Urologist and Gynecologist, a pain management specialist and possibly a regional IC expert to help coordinate care make suggestions. Elavil is a good drug to start for IC and the dose often does need to be increased. Usually 25- to 75 mg is the effective range for IC. Good Luck. ------------- David
From; Diana641 Dr. Burks,I have been diagnosed with intersitial cystitis and I DO get a sensation similar if not identical to what CAlise was describing. I would describe it as a swarm of bees in my vagina stinging though, not tickling. Maybe my perception of this sensation is warped due to the lack of care rendered by the medical community here. I am having a real problem with receiving pain relief as doctors are reluctant to prescribe it and pass me from one to another(and on and on) So, to keep from having a nervous breakdown, I am trying homeopathic meds and they aren't working. Just need a break from the doctors on some sort of control trip for awhile. I did receive some Elavil from one Urologist and it did really help for about 3 weeks. She never said I would need to increase my dose, which makes perfect sense to me. I refuse to go back to her because even with written documentation that I have IC, she wants to do her own cytoscopy test in her office(for insurance money,I feel). I was under general anesthesia for the first one. I don't feel my body can withstand another painful test at this point.Totally burned out! Just had a blood filled cyst on my ovary burst and the tech.(ultrasound) said to get some strong pain meds from my gynecologist(as I had to travel that week) He of course refused, don't you know opiates are addicting!!!! Thank you for the info on Elavil. Sincerely, Diana641
Hi, Urgency is a symptom of many disease processes. A bladder infection can cause urgency by irritating the bladder lining and wall. Overactive bladder is another common problem seen usually in the elderly but can occur in 5% of 20 yr old women. You typically get urgency, urinary frequency, and possibly urge incontinence. Interstitial Cystitis (IC) is an inflammatory condition of the bladder that causes urinary frequency, urgency and pain, pressure or discomfort in the bladder, usually with bladder filling. You didn't mention your age but I assume you are healthy with no neurologic problem like Multiple Sclerosis, or a stroke that can also cause urgency. There are another group of unusual problems that can cause urgency like a bladder tumor or stone, retaining urine in your bladder after voiding, overintake of caffeine or alcohol, poorly controlled diabetes etc. Its unclear whether your "tickling sensation" in the vagina meets the definition of bladder pain. You need a basic work up for urgency by a urologist or gynecologist to rule in/out the above issues. Without clear cut bladder pain, its unlikely you have IC. I would start with your gynecologist to rule out a vaginal infection or other local vaginal problem first. Good Luck.