Aa
A
A
A
Close
Interstitial Cystitis Community
440 Members
Avatar universal

What steroid can I take that won't flare the hell out of my IC?

Everything flares my IC. The only antibiotic I can take that doesn't feel like battery acid is Keflex. Every NSAID I have tried feels like battery acid (ibuprophen, mobic). My doc put me on methylprednisolone as a last ditch effort and EVEN THAT feels like battery acid, but unlike with all the others.. after the medication left my system I felt 100% like a normal, pain free, human being. I desperately, desperately want to continue with steroid therapy but I don't know what to try next. I took half a pill (2 mg) and even that hurt, but it was bearable but it still flared me.

Any ideas of anything with anti-inflammatory properties that is hopefully safe would be a huge help.. I'm so close to losing my job over this pain. I'm already on all of the supplements and Elmiron. Steroids are usually used in instills or to inject into the bladder for IC so I don't understand how this is even flaring me when its used as a regular treatment.
1 Responses
649848 tn?1534637300
COMMUNITY LEADER
The steroids that are used as injections or instills for IC have different ingredients than pill forms of steroids.  It could be a filler/binder or dye that's causing the burning feeling.

Are you doing the steroid therapy for your IC or another condition?

I'm not sure if it will work, but you could try taking something like Prelief with the steroid medication to see if that would help - talk to your doctor first to make sure the Prelief wouldn't block the action of the steroid or cause some adverse reaction.  

You could also try drinking marshmallow root tea, which helps a lot of us with flares/irritation.

Some also get relief with Desert Harvest Aloe.  I've never tried that, but I understand it's quite expensive.
Have an Answer?
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Dr. Jose Gonzalez-Garcia provides insight to the most commonly asked question about the transfer of HIV between partners.
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Here’s how your baby’s growing in your body each week.
These common ADD/ADHD myths could already be hurting your child
This article will tell you more about strength training at home, giving you some options that require little to no equipment.
In You Can Prevent a Stroke, Dr. Joshua Yamamoto and Dr. Kristin Thomas help us understand what we can do to prevent a stroke.