I have a 10 year old son with Ehlers Danlos Syndrome. They recently did an eco and found that he has a whole in his heart, mitr valve prolaps and an enlarged aortic artery or root. My question is what does all this mean for him and should I try to get hom on some kind of prmenant health insurance like medicare? I'm in the proccess of getting my family tested for ehlers danlos. Any answers you can give me will be helpful. Thanks in advance
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