Would you mind sharing the 5 diagnoses you were given? My son also has pain for approx 8 months and multiple punctate stones on right and we are continually told they should not be the cause of the pain because they are in the kidney. But when he's passed things he seems to have periods of relief a few days before or a day or two after. His pain seems to be spasma though, not consistent. Still, when his sono only showed one small stone he had no pain, when his pain returned he again had blood in urine and multiple stones.
I wish I had some answers for you, but I don't. Your symptoms appear to mimic a kidney stone attack at times, but the lack of blood in your urine at this point would seem to show something else is going on. I am not a physician so I don't want to advise you of anything under these circumstances. Please let us know what you find out and our prayers are with you.
It's your friendly urologist here.
I often see patients with CT scans done for other reasons such as liver problems, colon, etc, and we "accidentally" see kidney stones. Many of these are small <5mm and nonobstructing, meaning there is no swelling or hydronephrosis in the kidney. Most of these patients do not know that these are present and are surprised to hear that they have kidney stones.
I do have some patients that swear they feel their nonobstructing stones. After we rule out other causes I am ok with treating the stones with either ureteroscopy or ESWL, so long as the patient agrees with me up front that the stone removal may, or may not treat their pain.
Good luck to you!