Kidney Stones Community
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Avatar universal

Completely GIVE OUT & I have no clue what to do anymore

I have dealt with kidney stones since I was 14 years old (1999) and have passed around 300 since then. My last CT scan showed about 20 stones in my kidneys and I also know I have at least 5 stuck in both ureters that they can't see on imaging. October 1st, I passed one of the large stones that has been stuck since March. I have seen 3 different urologists over the years. The first one gave up on me after several years, the second was a complete A-hole and lied to an ER doctor (and also, my husband overheard him talking crap about me to the nurses when I was under anesthesia for a scope) so I fired him, and the last one told me flat out "There's nothing I can do for you, so don't come back." ER's treat me like a drug seeker because I have to go with almost every stone because the pain is completely unbearable. I'm so tired of hurting ALL THE TIME and dealing with this but I don't know what to do anymore. I'm out of options...and hope...at this point I just want to cut both of my kidneys out.
2 Responses
Avatar universal

I'm so very sorry to hear about your condition. I'm not sure I've ever heard about anyone with your situation before. I've had many, many years of personal experience with these nasty things but nothing like you are experiencing. My only suggestion would be to keep trying to find a Urologist that you can get to understand your particular situation and go from there. I agree that it may take a while, but it will be worth it when you finally do. I'd be speaking way out of my league to suggest anything to you but that due to your very special situation.  Good Luck and please let us know how you're doing.
Solution to preventing kidney stones from forming: excess amounts of Vitamin D synthesizes kidney stones: thus, do not take supplements of vitamin d nor eat alot of food containing vitamin d such as cheese, milk, eggs etc. nor excess sunbathing since sunshine produces vitamin d in your body. You're better off living with a vitamin d defeciency than taking supplements advised by your doctor. Also, do not take calcium carbonate mineral pills since it could contribute to kidney stones because kidney stones are actually pellets of calcium carbonate !! Only drink water which already has dissolved calcium carbonate in it.
Avatar universal
Hi,  I pass a stone about every three to five weeks and have for about 6 years.  I'm very sorry you have to go through this.  I have been very lucky with my Urologists and most of the ER docs I have dealt with.  My suggestion would be keep looking for a new Urologist.  Not that they can do much more than give you pain medication.  (I have Dilaudid and Toradol pills)

Another suggestion would be Bragg Apple cider vinegar.  I take one table spoon 3 times a day.  Normally, I add it to a 1/2 cup of apple juice and 1/2 a cup of water (it makes it taste better).  When I first started the vinegar I passed about 30 stones in 4 weeks. (I had two CT scans that showed this)  Then I didn't pass another stone for about 6 months.   I think my body has adapted to the vinegar and I'm now back to passing stones again.  However, 6 months without pain really helped my state of mind.  
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