Kidney Stones Community
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Avatar universal

kidney stone problems

I am 39, have Primary Immune Disease, dont make igg, and have had kidney stones 2 times a year since 2001. At moment i have a stone stuck in right ureter and awful right kidney pain.  Drs cant figure out why i am getting the stones. I am on potassium citrate 3xd and it does not help. went to ER last nite and they wouldnt do a CT scan because i have had too many over my lifetime(radiation). urine showed high concentration of calcium oxalate so stone is verified. they thought kidney may be swollen due to stone and gave me a shot of dilaudid, which didnt even touch pain and sent me home. I have put myself on cipro to stave off infection and started vitamin d supplement to help reduce calcium in urine. I study online and merck manual etc to try to treat myself.  I have two nephrologists and both are worthless, say i am a fascinating case but have no suggestions to stop stones. this is my 12th one and my life is put on hold everytime. some pass quick others dont. i am used to the pain and can deal with it, what scares me is the kidney pain. normally i dont get kidney pain with the stones. i had to have only one stone removed surgically, it was stuck in the lining of my urethra, total pain on that episode before and after! Does anyone have any knowledge on preventing calcium oxalate stones that i havent tried already? i cant take diuretics because of a sulfa allergy, the potassium citrate does nothing, and i have slowed down on tea and cheese. i have no health insurance as my hubby was laid off 2 weeks ago and am waiting for state insurance, hopefully they will pay ER! my only recourse at moment is to return to ER but i cant see what they could do for me? HELP!
4 Responses
351246 tn?1379685732
Welcome to the MedHelp forum!
You must try and find a good nephrologist. Recurrent kidney stones are found renal tubular acidosis, medullary sponge kidney, Dent's disease (genetic disease of the kidney), hyperparathyroidism, primary hyperoxaluria and Crohn's disease. For oxalate stones you need to restrict (not totally stop) foods which are high in oxalate like beans, legumes, dark green leaves, egg plant, spinach, beets, chocolates, wheat barn, rhubarb and nuts and fruit cake. Avoid Vitamin C as its metabolism produces oxalates in the body. Also you have to find a dietician who specializes in nutrition in renal diseases. Hope this helps. Take care!
Avatar universal
Every year im urinating culcium stone 97% culcium two times i laser them but still coming back doctors tall my nothing sept water but is any one got idea some remedy or tea is anything what cant stop this, my culcium in urin is abnormal that what makes stons so i have to drop culcium in urin, please halp
168348 tn?1379360675
Here's a super MedHelp link to FAQ's with areas such as discussed in easy to read terms about kidney stones.












MSK w/kidney stones
Avatar universal
Hey. hope someone can help.  I have some pain in my left side and back. Sometimes i get aching pain where my kidney is. When i sleep on my right side it starts to hurt but if i sleep on the left side ( the  side that hurts) the pain stops.  I also had surgery and was given pain pills. i noticed if i would take one at night  in the morning/ throughout the day i would get those pain in my left side. Could i have kidney stones? people say the pain pills might effect it because my kidney filters out the toxins from the pills.
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