Aching restless legs

[Corgymommy]

Does anyone else get restless legs and hurting legs keeping you up at night?  Neuropathy?  RLS?  What do you do for sleep?

[kenatwood]

I do, I take trazedone yo sleep and gabapinten for the pain although it doesn't  do much good

[Ken_PA]

My father had lymphomam so that's where my background comes from in this. Though CLL is the leukemia that is like lymphoma (and some say it is a non-Hodgkin's lymphoma), still I'm not versed in the particulars of CLL.

There is no one here who answers CLL questions, so you might do well on  another forum.

There is the point that *usually* lymphoma nodes are not painful or sore, but that's not always true.

There's also something having to do wth CLL creating nodules (not cancerous nodes) in the lungs. I don't know much about that but it could be an alternative to suspected infections in the lungs.

It seems that you've been through a lot already in your past. I hope this turns out okay for you.

[Corgymommy]

Thanks Ken

[Ken_PA]

I'm sorry, I had you confused with a different poster. So there'e no need, of course, to show that study to your doc(s). I apologize.

Is your high WBC due to high Lymphocytes? Otherwise, if it's from high neutrophils, then that would not be directly from CLL and would probably be from infection.

[Corgymommy]

Lymphocytes

[Ken_PA]

Along with your other post, I'd wonder if you have an overactive immune system or a chronic infection -- either of which leads to systemic inflammation and which might lead to RLS. You might ask your doc to do an hs-CRP test. I would.

"RLS is strongly associated with systemic inflammation, in that nearly 90% of the medical conditions known to be associated with RLS are inflammatory or infectious..."

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3468666/

That is what's called an "authoritative source" and you can print that out to take to any doc.

[Corgymommy]

I'm constantly sick with some sort of upper respiratory illness. Achey and glands sore... Thought it may be part of the high WBC. The Dr did do a test for CRP inflammation and it came back good.
But the calcium still high. And calcium/creatine ratio high.  Will find out more from onc, but suspect the same as you from previous post of CLL or MM.