Welcome to the Leukemia & Lymphoma Community!

[Dnmh]

Being diagnosed with, or even thinking you have leukemia or lymphoma is a scary thing. There are so many questions and uncertanties that go along with it. This community is here to help you along your journey after diagnosis, or help you understand what questions you may want to ask if you think you may have either.

Please keep in mind that I'm not a doctor, and I have health issues of my own, so I may not be able to reply right away. I will do my very best to help in whatever capacity I am able. While I don't have either, I am knowledgable with both and when I don't have an answer, I will search for you.

If you haven't already, please check out the Health Pages
on Lymph Nodes:
http://www.medhelp.org/health_pages/Cancer/Your-Lymph-Nodes/show/597?cid=90

and on understanding why your doctor ordered certain labs:
http://www.medhelp.org/health_pages/Cancer/Understanding-Lab-tests/show/596?cid=90

There are also some great trackers available!
http://www.medhelp.org/trackers/list/90

This link has CBC, Pain and Chemotherapy Trackers. These can be valuable tools when working with different doctors and to help you keep track of things!

My mother is not only a breast cancer survivor, but she also has Chronic Lymphocytic Leukemia and I just lost a cousin on my fathers side in July 2008 to either ALL or AML. (My aunt doesn't know) but it was very aggressive.

These have made me interested in both leukemia and lymphoma, since my mother having CLL puts me and my sister at a higher risk of lymphoma.

If your post gets pushed to the second page before I or anyone else has had a chance to respond, feel free to reply to your post with the word "bump" or a question such as "anyone?" This will post it back to the first page and give me a chance to see it!

Again, welcome to the community!

Dnmh

[joannHA]

I am 42 yrs old. In April of 2011, after months of exhaustion, pain and a progressive swelling in my neck and little bumps on the back of the neck I went to the er. My chief complaint was swelling in the neck, exhaustion, and pain. The Dr dismissed the swelling as a pulled muscle (yea...now I know better). They ordered lab work but didn't wait for it before releasing me stating I was in pain and seeking pain meds (wrong, I was already on pain meds). Little over 2 months later, almost the entire time in bed, my husbands Dr noticed the lump on my neck which he immediately knew to be a "huge" lymph node. It was larger than at the visit to the ER.  Needless to say, the blur of surgery and chemotherapy came....I have CLL and sll.  I requested my records from the ER... First, the labs weren't even part of my file, I had to get them separate because they were never reviewed. Second, my wbc was 15.9x10(3). My plates were unreadable, my lymphocytes and monocytes are tagged as "low" and neutrophils "high'.  The Dr/surgeon that operated said any, and I mean any Dr should have known that the node was not a pulled muscle, and together with the labs would have indicated at the very least a serious infection.....and at the worst....cancer. they dropped the ball, never called me to tell me....nothing!!!!   Those 2 months were the worst, not knowing what was wrong. I could have saved the node with chemotherapy and radiation had they diagnosed me properly. Am I wrong to to after the ER?  They were rude, thought I was a drug seeker and just dismissed me.    Any help is appreciated

[edmondbernardmd]

hi everyone. im glad to be part of the community. let's continue reaching out!

[Ashley0011]

hello, I'm 20 years old.

I'm worried I have lymphoma.

I don't have many signs or warming signs besides really itchy skin. I also have a lump on my right clavicle bone near shoulder. Painless. Non movable.

I don't know what else could it be?

[JDS75]

how do I post in any of the forums my situation?

[nancyb54]

I am a 55 year old woman that has been diagnoised with CLL.  I found a another small lump on my right breast.  Went to have another mamogram done yesterday and the radiologist that reads the xrays compared my last mamo with this one and said it was a lymp node and they are getting bigger.  Does this mean my CLL stage is getting worse and will probably have to start treatment?  I called my oncologist but they have not returned my call. Scared

[Lanie0215]

Hi, I am 31 years old and recently diagnose to have abnormal blood count for i have elavated WBC and high lymphocytes, double the max of normal lymphocytes count (20-40). Do you think it is one type of leukemia?

Please advise

[shan444]

i am a 22 yrs old lady,who have been under stress for quite some time now.lately i ave been having symptom of lymphoma am not sure but think,i dont have a family history of cancer but anxiety disorder runs in my family.i ave a small painless not to really painless ,when i squeeze it it have a slightly pain and its movable lymph node in my neck cant be seen by eyes only by feel,i have itchy skin bumps that looks like a ants bite,i have no other symptom only symptom of anxiety,and sometimes i even feel symptom of brain tumor.can this cause from a terrible i had months ago are a bad tooth in my mouth.

[bgrif]

Hello,
You said your mother is a breast cancer survivor and she also has Chronic Lymphocytic Leukemia. So is my mother who is 87 (mastectomy in 2000) She had to have treatment for the CLL due to pain and swollen lymph nodes.She has been very ill fighting off infections, so her treatment has been stopped. Now my older brother (64) found out he has CLL too.  Any info on running in the family??

Thanks.

[bugga123]

Thank you so very much for all of your help.
God bless you