Oh my question!!!!! sorry....
What is normal therapy after failing to biopsy enlarged lymph nodes and with Interventional radiology unwilling to take a chance due to the risk of hitting blood vessels. It seems that the approach they are taking is to wait and see, but is this the only thing to do? or should i be doing something more. I have started the enzyme therapy for the pancrease. Aside that, i don't know what to do. I don't even know if all this is related. Any thoughts? We already excluded viral or bacterial causes for the positive PET scan but it seems to me that this is something important to get to the bottom of, not something that we should just wait and see.
Hi, I'd guess they say to wait and see, not because what you have is unimportant but because they don't know what it is and therefore don't know how to treat.
Here is some complete speculation: a virus nor only is in the bile duct, but also the pancreatic duct and is causing the insufficient enzymes to be released into the gut. I'd guess HPV. Did they test for it? Maybe it's a rare strain that doesn't show up on normal testing.
There is some connection of HPV to pancreas. Did you ever have Gardasil?
I'd guess that your lymphocytes are what are making your WBC high, correct?
Thank you for your response! i got HPV many years ago (1996) which turned into cervical cancer. Had a radical hysterectomy. And they took 24 nodes all neg. originally the radiologist said they thought the positive or (max) FDG uptake on the PET, was due to reoccurrence of the cervical cancer but my gynecological 5ndvw-***@**** said it could not be due to that because I had been free of cancer for, what? 15 years. The chance of reoccurrence was almost non existent. And I didn't think I could get it without a cervix. I do have a cyst on my ovary but was not shown on the PET with any uptake so she moved me to a gastroenterologist. And no I don't think they tested for it. I'm just lost. I can't even manage a normal day without begging to put my head down n sleep.
I don't really know about the stuff you describe (I have a blood cancer so it's different) but something is going on and u deserve some explanation.
My diagnosis was very difficult, saw many many specialists before finding out I had Multiple Myeloma so I can sympathize. I was finally diagnosed at the hospital when I was refered to an internal medicine clinic for difficult to diagnose / complicated multiple diseases clinic. (a la Dr. House)
Interesting! I have never heard of such a clinic. I do have multiple things going on at once and that seems to be what's complicating everything. It's crazy! My doctors don't even know which way to send me anymore. They start out with a happy Manor self about them yet in the end it always seems that some result for a test in turn confuses them and they clear themselves of their specialty then find something unrelated To the greater issues going on. Yes I am very frustrated so the idea that there is a clinic out there that deals with multiple issues it seems late that would be a good place to go or to bring up at My next doctors appointment. I would like to thank you for the feedback I very much appreciate it!
U are welcome. The clinic was a referal only clinic at the hospital where I had already seen several specialists. I was finally referred there by an Emergency Department doctor when I presented with fainting and an irregular heart beat from being very anemic. He knew something was going on and refered me to the clinic on an urgent basis which in this hospital means follow up the same week. The clinci is run by the resident doctors in Internal Medicine but had staff physisicians overseeing it. Before my appointment they had me do about 10 vials of blood for testing and chest xrays. So when my appointment came they had mostly figured out it was cancer, but I needed a bone marrow biopsy (done that same day) to confirm the type