MELD score went down but labs worse?

[RickiA]

I have noticed that I have more pain in the liver, am more tired, get more bloody noses, and my labs seem to be getting slightly worse, but my MELD score has gotten better? What does this mean... am I doing things right or do I need to change things up... Vitamins, even stricter sodium, protein restriction? I do have Hep C so I know that it is worsening, but better or worse than others with Hep C sufferers? Just want to make sure I am doing all I can - exercise is less than preferred but I do have a 3 year old. Swelling is doing great with new Lasix and Spiro. regiment. Memory is goin' too, along with appetite. I could take probably 2 naps in a day but i usually take one, 1 - 3 hour nap during the day and probably get about 6-8 hours of broken sleep at night. Is that too much - my MELD score is only 14 right now from a 16. 3 months ago but I am no longer working either... i just get so tired - it will actually make me dizzy weak and sometimes vomit. Sorry so long winded, I just want to make sure I am not doing to little or too much. I take Lactulose, Lasix, Spiro, Prozac, Vitamins (less iron) Vit C, bs, folic acid, magnesium. Thank you!!  

[gilmane]

I went through the process of a living donor liver transplant, ten years ago,  because my health complications did not add to my  priority for a cadaver liver, but were killing me just the same. I found it very difficult to discuss the subject since I knew nothing about it from the viewpoint of the donor.  Just recently the New York Center for Liver Transplantation released a new booklet on what the live liver donor can expect during the process . The information is from individuals who have donated a portion of their liver to a loved one.
For the past three years, they have surveyed individuals who donated in New York State about life after living donation. The forty-four respondents included spouses, siblings or children of the recipients. Parents, friends and other relatives also gave information.
In their own words, it is what these donors said about:
• The Surgery
• Recovery After Donation
• Costs of Donation
• Employment Issues
• Life After Donation
It can be found on the internet at: http://www.nyclt.org/living_donor/index.php
Hopefully this can be of some use. Good Luck

[Thomas D Schiano, MD]

you must maintain your nutritional status.  eat frequent meals and maintain good protein intake even though you still need to maintain dietary sodium restriction.  The longer one can go without a transplant the better.  a live donor would be a good option for you.  try taking SAMe for your fatigue.  Try to minimize if at all possible the diuretics and you will feel better.