It started in Sept. 04 - had an EGD, then the next day, woke up seriously ill, high fever and vomiting. An ER visit revealed spesis and pneumonia, so I was admitted and treated. There begain an 8 month revolving door - 1 visit/permonth for pneumonia treated with antibiotics and breathing treatments. Then, for six months nothing - after a bronch which 'cleared out a bunch of gunk". Between Oct '05 and Feb. '06, there were a few problems, but as of 2/06, I s
http://www.medhelp.org/posts/new/459068#ent my O2 equipment back to the DME provider until March, 2007, when whatever hit me in '05 returned with a vengeance and I returned to being a patient at least once/month (my guess is I've been hospitalized around 50 times now). Each time, my lungsz got worse and each time we tried to figure out what was wrong. I'd been a smoker (quit in 2003) so the doc at first, naturally dx'd COPD until the last PFT not only showed dramatic changes in function (most functions dropped almost 50% or more) but also showed restrictive rather than obstructive changes more notably my my DLco dropped to at least 20% (they cannot do it now - my FEV is too low, they say to measure it).
I've been on the Vent two times now since 2004, both times were a bit iffy - the last time was nasty. We'd gotten to church (I remember part of this - my daughter tells me the rest) and I yelled "call 911, I cannot breathe" then passed out. Daughter performed CPR, someone called 911 and by the time the paramedics got there, I had almost coded (doctor said I DID code). They externally paced me enroute to the hospital (and bagged me too) then put me on a vent upon arrival. (have to start wearing old clothes to church - if they have to keep cutting the good ones off! LOL!
I've been in due to 'co2 narcosis' (one of the Vent visits), fluid overload, and the last time, cellulitis (at least it wasn't lung!). My stamina now is totally shot. I am so very weak, it's hard for me to walk from livingroom to bathroom, and trust me, that's NOT very far! Back in 2008, I had three hospital stays back to back to back, and ended up in a rehab/nursing home for a few weeks - both until I'd gotten my 'sea legs' back and we had to move out of our mobile home due to the plethora of gas pilot lights and the layout (not very good for a wheelchair - those things are built like box cars! Scrambled and found two one-bedroom apartments low income no waiting (a small miracle) period. It wouldn't be hard for me to want to come back - I grew up in Ft. Collins, so Colorado's my home state! Graduated from Loveland High. Why here? How about country kid wants to go to big city (Chicago). I moved from Chicago to Detroit area for work after being laid off from three companies that closed under me in Illinois back in the late 80's and early 90's.
A second opinion with Dr. Flaherty at University of Michigan brought forth a diagnosis of 'multifactorial pulmonary fibrosis' - they tell me I'm 'too far gone' for a biopsy - I wouldn't survive one. I can electronically send you the records if you like - say six months of discharge summaries plus the 2nd opinion from UMICH. ??? Getting out there might be impossible - oh, we have the van and so on, just not the $'s. I MIGHT be able to stay with a friend out there for a few days but it's the drive out there (Knowing areas of CO I'm going to be in like I do, I'd drive) and the price of gas today that has me doubtful. Heck, even a 'short' trip to Chicago (350 miles) from here seems light years away - I have to get a motel room - my daughter's house isn't power-chair friendly.
Please let me know! Thanks!