Feeling hot without real fever??

[mochamommy0816]

Hello, all.  I have been dealing with autoimmune issues for about 15 years now.  I never got a formal diagnosis of anything other than fibromyalgia.  I've always tested negative for the lupus antibodies, though have had ANA's as high as 1280 and as low as 40.   I am on plaquenil and every now and then steroids to get me through some of the rough patches.   I wondered if anyone gets bouts of feeling hot/inflammation all over when going through a flare?  Not really a fever, per the thermometer, but just feeling like you have a fever? I don't really know any good way to describe it.  I feel achy and hot all over, my skin is hot to the touch , and sort of flu-like, but the thermometer always registers as no fever.   Anyone else?

[Exb190]

If you are hot to touch-to other people and feeling unwell, especially on a background of query lupus I'd be looking hard at autonomic dysfunction. This can cause the blood vessels to get it wrong and send blood to the wrong areas, so you will feel hot to touch but not actually have raised body temp. Check out autonomic neuropathy/dysfunction and postural orthostatic tachycardia syndrome for starts. When it happens get doctor check lying and standing BP and also heart rates (PoTS!!) to look for abnormalities.

[Frot24]

I felt exactly this way for many years and always tested negative for lupus.  I knew I had it though no way I could mirror all those symptoms and not have it.  Finally at age 50 had positive ANA saw a specialist and he took one look at mtgy red rash on my face and with my history which is same as yours diagnosed me w lupus put me on plaquenil and even though I still don't feel great I feel like I can deal with it.  I can atleast now get out of bed for parts of the day.  Keep getting labs done each year.

[Frot24]

Crazy but chewing 2 nausene tabs OTC really helps me.  I have lupus and I can't even begin my day until 4 or 5.  Early in day feel like crap!

[Frot24]

I use to feel like this all the time!  Had positive ANA based on labs and history just like yours I was diagnosed with lupus.  Been on plaquenil for almost two years now and the fevers and chills are less frequent.  Still have bad joint pain but take low dose OxyContin to control pain.  I am overweight so I don't do steroids.  I applied for disability and was approved immediately no lawyer needed but now I'm bored and depressed I hardly eat but still don't lose weight.  I digress,  along with your symptoms I have frequent headaches and a few itchy scalp sores that have gone away now. I remember now that I have had symptoms my whole life but as a kid and teenager you can fight through.  I'm 52 now and it got the best of me.  

[amber2day]

Found this thread while doing research on my own feverish feeling. I have dealt with and known others who have several of these complaints. MiniDog47, your comment caught my eye because of the insect bite experience which was the clue I was looking for in all of these comments and you recommended the same thing I was going to do...GET TESTED FOR TICK BORE DISEASES, Lyme and  Ehrlichiosis are the two I have recovered from and dealt with for over 15 years. As of 2015 There are 14 and (new ones found often) other diseases related to tick bites listed at the CDC (Center for Disease Control) web site,,, I have done tons of research into this since 1980 when a wild wolf cub I received from Alaska in Tx came down with Lyme disease at 4 years old. The only thing wrong with the wolf was a nose bleed 4 animal hospitals could not stop and finally a young intern took the time to look more closely at the blood samples and found the Lyme Bacteria, started the wolf on antibiotics and the nose stopped bleeding within a couple of hours. The wolf died of failed kidneys a year or two later and had appeared healthy at 200 lbs until the day then. The veterinarian in 1980 told me to go see our family doctor, to warn the doctor the lyme disease could spread to my children very easily and when I did the family doctor laughed, saying we lived in Tx not Co where you get rocky mountain spotted fever. I showed him the animal health book the vet had underlined the lyme disease is transferable to man but the doc would not listen and now 30 plus years later these diseases are epidemic in several states and the testing is non-conclusive, often positive/negative results because it has been recently discovered the bacteria actually hides inside our DNA where it will lay waiting to strike weakened parts of the body, or for other germs to invade then it attacks the germs which causes the horrible symptoms. Also recent research by scientists has found that fleas,mosquito and ticks carry many of these bacteria...therefore the findings suggest we may not need to of been bitten by a tick only. As for cures, good luck convincing a doctor that this is not one of the common illness in these comments(although it is) all of the illnesses mentioned here have been found in persons who first have had tick diseases. You may want to watch a documentary about the Plum Island Experiments also. Good Luck everyone ! Herbs work for me, Garlic is the best one yet.

[calamfred]

I meant to post this link about IC, too:

http://en.m.wikipedia.org/wiki/Interstitial_cystitis

Regards,
C