Hy there !
In the first place please escuse me for my english...but english its not my first language but I will try to do all my best for you to understand me.
I was diagnosted with Hep C in 2006, started treatment with interferon (pegasys) and Ribavirin in 2008, cleared the virus and I am undetectable since then.
In 2012 I started to have funny skyn rash on my upper abdomen. I`ve been to a lot of dermathologists, they run a lot of blood tests, everything was fine, they told me that I have a alergy or something. In 2-3 months the rash dissapered without any medications.
After that in 4-5 months I started to have joints paint, funny numbness all over me body, terrible fatigue.
My doctor runs for me another blood tests. Everything was fine, but my ANA was 1:100 speckled , and the reference lab results was less than 1:100. All the others blood tests was OK. The GAP refered me to a rheumy,buy the rheumy told me that everything is fine, the ANA results is quite small and she didnt think that its something wrong.
I repeated ANA in 1 month and it was the same, 1:100 speckled, but the rheumy told me not to worry.
I 2013 I had some pain in my chest, so I went to a cardiologist, they did me a heart echography and he told me that I have what they called bicuspid aortic valve, with ejection fraction of 63%, but no regurgitation, no nothing.
Since 2015 I was ok, just some joint paints, but not something very bad.
In august I`we been in Greece for 1 week, I spent a lot of hours under the sun, and after I arrived home I run some blood tests as well:
Lupus Anticoagulant - POSITIV
ANA - negative ( and I know that in people with Lupus ANA can go way up if are staing a lot in su exposure )
anti-dsDNA - negative
VSH - 2 (normal <15)
Serum urea - 35 ( normal <43)
Serum Creatinin - 0.76 ( normal <1.2)
C3 - 133 ( nromal 90 - 180 )
C4 - 20 ( 10 - 40 )
I visited the cardiologist as well, and my ejection fraction decreased from 63% in 2013 to 53% in sept 2015, and now I have mild regurgitation.
I dont feel good at all, I am very very tired, I have terible joint pains, heart palpitation, but the rheumy told me that it is not Lupus or another autoimune diseases, but I am not sure.
I am scared that my treatment for hepatitis C triggered Lupus. At the moment my symptoms are:
- Extreme fatigue (tiredness)
- Painful joints.
- Abnormal blood clotting ( lupus anticoagulant positive )
- I had 2 positive ANA during the time ( both 1:100 speckled pattern, last one negative in september after 1 week off sun exposure )
- anti-dsDNA - negative
My rheumy didnt given me any treatment till now, nothing at all. Please tell me your opinion....is Lupus or not?
Thank you !