I just saw your post for the first time. I don't know where to start. You do seem to have a lot going on. One thing I will say is the gastro doc cannot always see your celiac and there is a gene test for it to. You should maybe think about getting that done. If you do have lupus then IBS goes with it most definitly. The thing about lupus is it shows up in everyone in a different way. I think I would ask for an ANA test to start out. That would tell you if you have any antinuclear antibody stuff going on in your body. There are over 100 autoimmune diseases and you might want to also put this post on the Autoimmune Forum as well if you haven't already. Lupus can mess with every single part of your body, especially the kidneys, liver, heart etc. Have you gotten anymore answers or had anything else happen since you made this post?
There are a number of things that could be going on. In other words, you could have more than one thing happening. It sounds like your doctors are taking you serious and are trying to help you get better.
Have they checked for MS, your TSH (thyroid level), Vit D, parathyroid (which can cause kidney stones), and lymes disease.
I agree with Joni, it would be a good idea for them to check your ANA. But as far as I know, lupus can not cause kidney stones. But again, there could be more than one thing going on here.
Here are a few conditions and their symptoms. Hopefully they will help you narrow down your search.
fever, headache, chills, severe muscle pain, fatigue, nausea, vomiting, rash, cough, lymphadenopathy (?), arthralgia (?), stiff neck, erythema migrains (?), leukopenia (low WBC), thrombocytopenia (low platelet ?),elevated AST, elevated ALT & anemia
Rocky Mountain Spotted Fever is another possiblity:
all of the above except no stiff neck, no erythema migrains, and no leukopenia.
(I ended up testing possitive to RMSF) I was a very sick puppy last year. Fibro, lupus and RMSF
fatigue, headache, short-term memory loss, muscle pain, difficulty concentrating, joint pain, depression, abdominal pain, lymph node pain, sore throat, lack of restful sleep, muscle weakness, bitter or metallic taste, balance disturbance, diarrhea, constipation, bloating, panic attacks, eye pain, scratchiness in eyes, blurring of vision, double vision, sensitivity to bright lights, numbness or tingling in extremities, fainting spells, light headedness, dizziness, clumsiness, insomnia, fever or sensation of fever, chills, night sweats, weight gain, allergies, chemical sensitivities, palpitations, shortness of breath, flushing rash of the face and cheeks, swelling of the extremities or eyelids, burning on urination & hair loss.
reported to follow a # of infections like Epstein Barr, Mono, hep C, lyme, etc.
muscle pain, morning stiffness, insomnia, musculoskeletal pain, joint pain w/o swelling, fatigue, tingling, pricking or numbness, skin tenderness, light headedness (dizziness), fluid retention, stress or anxiety, poor memory, vocabulary problems, tender points, irritable bowel, chronic headaches, jaw pain, painful menstration, restless leg syndrome
fatigue, hair falling out, sores in mouth and or nose, sores in head or even on your face and other parts of your body, joint pain (sometimes w/ swelling), Raynauds (in some), cold intollerance, occasional hot flashes, muscle aches, nausea, diarrehea, severe headaches, tachycardia, weakness, heavy feeling on chest, abdomen swells, elevated ANA, rash on face. (to name a few)
Praying for you.
one other thing to check is GALLSTONES!!!