Muscle Spasms

[mizgahobin]

Does anyone diagonased with lupus suffer from crazy muscle spasms and twitching.

[Swfl34119]

Soy can cause lupus flares.

[slp928]

I have been having twitching throughout my body that gets worse when I try to fall asleep. My rheumatologist started me on low dose neurontin and it has helped a lot with the muscle twitching. Magnesium supplements have also helped but the neurontin really did the trick.

[lorr1911]

Ive just been diagnosed with Lupus and have had painful muscle spasms in my legs at night which wake me up.It all started before meds but they don't seem to help them x

[karajo]

Yes, dsDNA is very specific to systemic lupus.  So sorry they are giving you the runaround.  

[hamheff]

Oh yeah and one other thing that I'm not sure is related. They found cysts on my kidneys through my family doc. Never mentioned it to my Rhuemy cause I didn't think the 2 were related but now I wonder??

[hamheff]

So here's something interesting. My rhuemy tells me last week she is at the end of what she can test me for. She won't give up on me but is really at a loss. So, today I see my family doctor and tell her I need to see someone else since the pain in my hands is severe now. She says to me that she already told me I have Lupus and that's what's causing my hands to swell. I tell her the whole story, how I've been tested 3x, the EMG's, the X-rays, Ultrasounds.... I said there must be another condition that's causing this. She looks through my paperwork and says there are only 3 conditions possible - carpal tunnel(negative 2x by 2 different doctors), RA(negative 4-5x through bloodwork as recent as last week) and Lupus. What my family doctor found interesting is that the positive was Ds-DNA. She says it's specific to Lupus but none of the other doctors I have seen have tested for that specifically. I confirmed today that my rhuemy has never re-tested for Ds-DNA. Anyone else out there have Lupus like this? After all these years, I can't believe this is the first time I'm being told this information but I still don't know if it even means anything. Doctors are so frustrating.....