Anyone else has a family that lacks support?

[ZeezyLindz]

I haven't gotten the official diagnoses yet, but I have had my ANA and it's came back negative. My C-reactive protein is high. A doctor I was seeing said that it could be negative Ana lupus. I have the butterfly rash that feels hot to the touch, especially when I'm stressed. Fatigued, constant pain, flank pain, etc. This list goes on. I'll be seeing my primary doctor soon in order to get a referral to a rheumatologist. To my family, I'm over reacting, and it's my fault (the way they word it) why they are worried. They say if it is lupus, I'll be fine with medicine and that I should stop talking about it because everyone has issues. I've come to peace with it if I have or not, but it's still scary. With any life changing event, it can be scary, or what do you think?

[susysusy]

I can empathize with you.  I read an article a long time ago that Lupus is known as a silent disease.  In a lot of cases, you don't see the illness.  We may FEEL it, but it isn't seen.  Perhaps, that's why people lack support.  I have Lupus and Graves Disease.  People acknowledge the Graves Disease more because my eyes bug out.  I lost my entire career to these and have been out of work for 3 years.  No income.  Its been scary and stressful so now I am in a full flare up.  At several points, I thought I was losing my mind and I don't say that lightly.  I had some very dark days.  I am just now pulling out of it.  My family. including my daughter, have concluded that I am crazy and schizophrenic.  I hope things get better for you.  Susy