I was diagnosed with SLE and secondary Sjogrens few yrs back. I also have IC-Interstitial Cystitis, and started having kidney stones in my early 20's, have had over 25 so far. I am really having a time with insomnia (can't fall asleep..usually 7-11 am before I do). Of course this makes the exhaustion worse. I also have a lot of stomach issues. One biggie is low level nausea most of the time. Of course this interferes with me eating. And when I do eat, often the "after taste" makes the nausea worse...no matter what it is I eat. I am hyper sensitive to tastes and odors.
Any suggestions on what has helped you? Or someone you know? I've been on Plaquenil since diagnosis. I also am on other meds for other issues. No new meds, so not thinking that making symptoms worse. I have had tum problems since I was a small girl.
Rheumy has been mentioning Methotrexate at my last few check ups. Saying just a small dose, to see if it helps. I have told him no so far..anyone on it, and how's it doing for you?
Thanks for listening, hope you all are doing as good as you can be.