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Testing for lupus

Hi, I have been having all kinds of health problems. My joints hurt so bad at times, I have a rash across my nose, get sores in my nose and mouth and so on. Finally found a clinic to go to since I did not have insurance and the dr there was very good. He is sending me for a whole lot of test for a lupus panel, fibromyalga, different blood work and also a ct scan. I guess my question is depending on the results from the lupus panel how can they make sure that is what I have. It's not like I want it but I need to find out what is causing all these problems so I can get on meds to help. Does anyone know how they determine if you have lupus. Thanks in advance for any help on this,.
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434278 tn?1324706225
Hi and welcome to MedHelp Lupus forum.  There are several things they look at and usually the testing takes months and sometimes years for all the puzzle pieces to fit together.  Because the symptoms and blood test wax and wane, and the dr. want possitive results more than one time, lupus is a difficult disease to diagnose.  (I put an * beside the ones that indicate lab results.)

There are 11 criteria for a lupus dx.  You must have at least 4 of the 11 to recieve a dx.

They are:
1. malar rash over cheeks (butterfly rash) (74%)
2. discoid rash, red raised patches
3. photosensitivity - reaction to sunlight, resulting in skin rash (50%)
4. oral and nose ulcers
5. arthritis (95%)
6. serositis - inflamation of the lining of the lung or heart
*7. reanl disorder - excessive protein in urine and/or cellular casts
8. neurologic disorder - seizures, or psychosis
*9. anemia or low white blood count or lymphopenia or low platelet count
*10. positive ANA
*11. positive anti-DNA or anti-Sm, or antiphospholipid antibody or false pos. syphilis test

Other symptoms are:
fever (90-95%)
*low vit D levels
abdominal pain
chest pain
shortness of breath
*blood in urine
hair falling out (27%)
fatigue (90%)
muscle pain and weakness (90%)
dizziness
poor memory
headaches
poor circulation in fingers and toes
tingling in extremities
diarrhea
bloating
nausea
weight loss
blurred vision
depression
palpitations
raynauds (where fingers turn white when cold)
intollerance to cold
sore throat
lymph node swelling (50%)
...to name a few

Please keep us posted.

Helpful - 0
Avatar universal
Thank you so much for your response. I have so many of those symptoms so I guess that's why they are going to do all the tests. I will keep you posted on what I find out. Right now it's just a little scary not knowing anything, The Dr. did put me on Ativan, Lyrica and Prozac so I can say the anxiety is a little better.  Again, thanks
Helpful - 0
Avatar universal
I posted earlier in the forum.  After reading your post, I realize I have the following symptoms below. Is it possible for a person to have the Lupus and not test positive?

shortness of breath
*blood in urine
hair falling out (27%)
fatigue (90%)
muscle pain and weakness (90%)
dizziness
headaches
poor circulation in fingers and toes
tingling in extremities
nausea
beginnings of depression
palpitations
raynauds (where fingers turn white when cold)

Helpful - 0
434278 tn?1324706225
I didn't see joint pain or facial rash.  Most lupus patients have those.  At first glance, my first thought was fibromylagia.
Helpful - 0
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