Look up celiac disease. Try a gluten free diet. It has done wonders for many people.
I was going to say the same thing. A gluten allergy can really screw one up. You can experiment with this at home with no medication and see what happens. There is no harm in trying. I had a person with a gluten allergy live with us for a while and learned quite a bit about it and how to avoid gluten, especially when you cook. Once you get the hang of it, it's not so hard.
I wonder sometime if many of us Lupies don't just have a gluten sensitivity! Maybe going gluten-free would do wonders for many of us.
We have been Gluten free for fivemonths and although at first it seemed to lessen the vomiting soon it returned only worse I am very careful because even Nesquik has wheat so I may be missing some but I dont think so we have moved to an almost exclusive diet of deer meat (I heard sometimes beef is feed things that can cause problems) and still nothing. The dr said he has classic lupus, rheumatoid and fibromyalgia symptoms with blood work to match however given his age and that he is a boy they wanted to do further testing the tests from last friday came back again positive (elevated) I feel like I am going crazy he is up all night crying and in the morning has a very hard time walking I am scared to give him all the meds they put him on.
Try the meds for a while at least to get him feeling better. Then maybe discuss with the doctor about cutting them back. I don't think they would prescribe a child meds they don't really need. He sounds very uncomfortable be thankful he is getting help! I went undiagnosed, thus UNTREATED for 10 years and so do many many others on this board. So if he gets diagnosed this early and gets something to HELP him, at least try it.
You can also get a 2nd opinion about the meds from your pharmacist. I have a pharmacist friend and we ask him about everything and he is more than happy to tell us stuff the doctors don't always tell; side effects, what exactly it does, what we do and don't really need.
I'm sure the doctors have told you that autoimmune disease is much more common in females. So I'm wondering if your son has a hormone imbalance. Is it possible he's not producing enough testosterone. Boys need a healthy supply of zinc to keep testosterone levels up. Puberty increases the need for zinc. Zinc is crucial for homrone balance. Look up sources of zinc - red meat being one of the best of them. Many people get white specks on their fingernails when zinc is low. Mention this to the doctor. Many of his symptoms (notion sickness, nausea, etc. ) might be from high copper and low zinc. Copper and zinc are on a seesaw together. When one goes up the other goes down. I've been doing a lot of research on my kids problems and ran across this fact. Hope someone is able to help you. Good luck