Bitten In Mexico

[Brandii]

I know I have Lyme Disease..I saw the red bump and the large bulls eye rash.I neaver quite put  the two together because I have neaver heard of Lyme Disease before. I was in Mexico horseback rideing when I first saw what was a large bump (red) ..I thought it was a horse fly bite or mosquito or something.But it was tender to the touch. I neaver bothered to check it out via a doctor. Then I started to see a large ring like rash on my left leg on the underside..keep in mind I neaver knew what it was. I was bitten in Aug. of 91...and then frightening symptoms started to appear..I remember the first one was extreame vertigo..I was laying flat on my bed and the room was spinning....I was terrified!This happened once while I was in a drug store to pick up lotion..a lady had to help me to my car..and I'm saying outloud to myself "what's happening to me"? !.I could not drive the car get to the emerc. room plus the fact I was embarrased. I knew It was serious...when I would get a stiff neck and pain in my joints wich spread from one arm to another. Still...I didn't know what was happening to me with headaches from hell to depression and throwing up. I went to a doctor who did a brain MRI and found 2 white spots in the frontal lobe and two in the back ..in the white matter. Also went to the emergency room and my white blood count was sky high. My gait was neaver the same neither was my health..it all went south.. I have a heart  problem now/my joints have deterorated/muscles are like myasthenia gravis /blood pressure problems /severe panic attacks/stomach problems /eye pain/blurry vision/poor balance /fatigure which feels like I ran a marathon.Can't sleep with it interrupted/burning sen./tremors/mood swings ..I misplace things all the time..cognitive memory/twitching of eye lids/periphal waves in corner of left eye sometimes a carasol ( swirling pattern) which blocks my vision. Stiff neck /sensitive to light and sound..which is unbearable! Extreme fatigue/fevers/alergys  and flu like symptoms to name a few.When I did do research...I went to many doctors that were so horrible to me I went home in tears...most were condescending and would not listen. I finally took the standard tests and all still come back neg. for results. The reason I think is ..it went to the joints/muscles and brain and the antibodies are no longer present to be detected as it already went to the areas it infected. ILADS sent me information that says that antibodys mutate and may be inadequate after years of non treatment. I have been on crutches now in a wheelchair. My husband needs to be present when I go anywhere because my balance is so off.  This is a wicked disease that needs to be addressed..I'm young and I cannot complete my  degree in college. New symptoms have now occured and this will be going on ten years. I know this diease is killing me but no one will treat me. I had such as many do) high hopes for the future as far as education..now that's all taken away. I have high blood pressure now and do not know if it is caused from lack of treatment due to the nervous system. I would love to find a Lyme Literate doctor in my area ..but if I have to travel to Mexico or up north it may be well worth it to put this diease in remission for some time.Please address this someone and maybe give me some feed back on what I should do next. Thank You

[Ini29]

You need to see a llmd right away.  
Cats claws , help for Lyme, raw garlic help for hbp and Lyme because that's a natural antibiotic , lemon help for Lyme too and it help with your blood been thick, 2 tsp if apple cider vinegar in 8 onz of water help for Lyme and bp too, aloe Vera juice 99% natural help alot too.    
I got Lyme and I didn't got no idea of what Lyme was but I start searching right away , i start taking all that plus vitc 2000 mg , omega 3 and my dr said is gone and I don't know if is gone but I know is in remission and I'm feeling very good I could everything like before    .
You could take the gralic and lemon and aloe Vera juice the same day different time I think when taking the venager do it a different day.    Hope u feel better.  

[gorbybelle]

Have you not found an LLMD.? -

[Brandi141]

The only doctor in my area is in Tampa Florida and he does not accept Medicaid. I just wrote someone out of state what wants me to call this tomorrow. I hope they can help because I will continue to fight untill I get some kind of treatment. Your statement on sitting up and going to the store fits me also the same way. Can't do makes  normal things , I'm lucky  if I have one day of peace where I feel somewhat ok. If I can find someone or anitbiotics that work and get semi-normal I'm for that, much better to have a half life with this disease then none at all. I need some feed back on these symptoms please....sleep disturbance that makes you wake up in a rage/ ( I have to tell myself to calm down,,,it will passit does ). Other things I'm concerned about is if anyone experienced this . Symptoms like your circulation being cut  off. Blood pressure that's not under control due to stress or it decides to go crazy . Nerves play an important role in the nervous system..it controls alot of functons in the body. Does anybody experience pin pricks /tingling /pressure on the back of the neck? My lymph glands are painful whether under the arms or back of neck and under my jaw. Thick blood/fevers /hot and cold chills. None of my tests come out positive , as by now they have mutated and went to my muscle tissue so on. I have connected all the dots and it all leads to the same thing ..Lyme.  I just at my primary doctors  yesterday, he checked for clogged arterys in my left neck where I feel the most pressure, he said and I trust him , "that there was no blockage. On the other hand without an echo card. (I say) it's hard to rule out. I have stomach problems where I cannot eat /drink exessive fluids or  the average  portions of food ...I'm sure it's effecting my stomach also. I rarely go to doctors unless I'm terrified and it's the last resort, but now I'm forced to . I know this is killing me and one usually can sense their bodys something terrible . I stay in bed most of the time because if it's not my nerves..it the debilitating symptoms that I  have that not allows me to function . I do not not remember at this stage ..what it's like to have all that energy back and I miss my old life so that I really grieve for it. I seriously would trade cancer over this disease then this..no joke maybe the lesser of two evils. Anyone that wishes and shares my symptoms please contact me . I don't wish to bring down anyone around the holidays but I'm sure we all have this in common ...facts and the disease and we are all being earnest about our fellings.

Happy Holidays To Everyone!! *****

[patsy10]

Many people have gone through what you describe, including myself.  I had the bullseye rash too but had never heard of lyme at the time.  I got absolutely nowhere after multiple appts. with different doctors.  I ended up traveling out of state and got treatment.  I am not completely well but much better and able to function, work etc....I had the rash 15 months prior to getting any treatment.

[jkv44]

I read your story and am so sorry about your terrible health issues. You need to be seen right away to be evaluated. The sooner the better.

Keep us posted as you can be helped. Many people here have had lyme for a long time others not as long.

The key to getting well is patience, treatment, and commitment to getting well. I had it about three months. I went to so many doctors that just said it's nothing. MY own primanry though I needed to see a psychiatrist.

I ended up going to LLMD who has helped me and although it will take time I'm much better and can even sit up, go to the store and resume a quite normal life.

Good luck and if you need anymore help, please let us all know. JKV

[wonko]

I am sorry to read about your story.  If you do have Lyme, know that even the very sick can respond to treatment.  Late is better than never!

The doctors who treat challenging Lyme cases are referred to as "Lyme literate" doctors, or "LLMD" for short.  Try an internet search of LLMD plus your city/state, you may come up with some names.

People are hesitant to post doctor names publicly because in many states, the medical board comes after doctors who consider aggressive treatment for Lyme.

I'd write more, but I'm 1/2 out the door to work.  Keep us posted and take care!