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1253991 tn?1300992064

Blood work is this negative for sure? One reactive band and symptoms, help

Hi all I'm a 20 yo guy and since September I've been feeling really sick. I hope someone can shed some light on my blood work and symptoms.

My symptoms:

- I'm fatiuged ALL the time.
- Muscle twitching all over my body.
- "Brain Fog" I feel mentally impaired and slow.
- Increased anxiety and depression.
- Short term memory loss.
- Chronic low grade fever, 99.5 - 100F.

I live in Kansas in the country and this summer I found several ticks on me that had been there for over 24 hours for sure. I just didn't notice them. I was wondering if I should peruse the diagnosis of lyme even though my family doctor says its negative? Does this sound like lyme? I have no joint pain.

I'm just worried, I feel sick and I don't know why. I also have developed markedly elevated liver enzymes which my doc also says is benign for some reason.

Thanks for your help :)
Best Answer
Avatar universal
(part 1 of 2)

Welcome to MedHelp --

Good for you for taking action!  First, to look for a doc, and then to look for another doc to be sure the first doc knew what he was talking about.

I would do exactly what you are doing.  The '24 hour' rule about how long the tick has to be 'attached' is really not useful, but the docs not up to date on these things really cling to that standard.  Ticks don't wear watches, so they don't know how long to wait before spitting the Lyme bacteria into your blood stream.

Finding a Lyme specialist is the next trick.  You will see the term LLMD used here ... it's patient slang for 'Lyme Literate MD', meaning a doc who thinks more progressive thoughts than the doc you just saw.  It's not a credential, and no doc calls him/herself an LLMD.  In fact, most LLMDs fly under the radar because the nonLLMDs try to make trouble for the LLMDs with the medical board for treating Lyme and its coinfections aggressively.

The sooner you treat, the quicker and more sure the cure, so you are wise to keep pressing ahead.  I had all the symptoms you are having, too.

(end part 1)
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1211030 tn?1381137342
I would ask for copies of your bloodwork, sometimes they dont see a positive as it should be read.....
Helpful - 0
Avatar universal
One suggestion for an LLMD to check out -- in the upper right corner of this webpage, there is a line that reads:

                  inbox / logout / my shortcuts

If you click on 'inbox, it will take you a private page that is not visible to the public here.  I am sending you an email there with the name of an LLMD I thought of who might be near you.
Helpful - 0
Avatar universal
(part 2 of 2)

So how to find an LLMD?  Your profile says you are in KS, so I would do three things:

-----------------------------------------------------------------
1 -- email to

                    contact [at] ILADS [dot] org

and tell them what area you live in, like near Topeka or near Kansas City, or whatever, and how far you can travel ... they will send you names of docs who think the ILADS way.  ILADS is short for International Lyme and  Associated Disease Society, which is the main voluntary group for docs who think more progressively about Lyme.
-----------------------------------------------------------------------------------
2 -- Look around online yourself, but putting in searches such as

                    LLMD Kansas City

or whatever makes sense.  
-----------------------------------------------------------------------------------
3 -- You can also search for

                       Kansas Lyme

or Missouri Lyme, or whatever you're near

and see what hits you get.  

There are often local groups you can contact who can give you leads to a local LLMD.  Because of the deep divide in the medical community, LLMDs tend to stay quiet, so that's also why we don't post their names in the open here.  Sounds sketchy, but it's the way things are for now.
-----------------------------------------------------------

Let us know how you do, okay?  If you come up dry on LLMDs, let us know, and we'll brainstorm some more.

Take care –  and hang on!  You're wise to keep pursuing answers.

(end of message)  
Helpful - 0
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