Yes, feeling so alone. Fortunate to find therapist whom I have seen now for 6 years, along with several antidepressants at same time. Was so sad, wanted to be dead often. Had severe lyme in central nervous system. I have improved sooo much, but it is a long, tiring road. After IV rociphen (5 months in 06) followed by nearly continuous oral antibiotics I have made progress I never dreamed possible.
You could be having a herxheimer reaction which is from the toxins that are released when the bacteria die. You can google it and read on it.
HI iv been ill for about 4 years i was first diagnosed with addisons disease then stenosis of the spine along with a syrinx and fybroymyalgia i was diagnosed with late lymes 3 weeks ago and have been on antibiotics since then.can anyone tell me if its normal to feel worse the pains in my neck and head are terrible and the feeling of numbness mixed with pins and needles in my arms and legs are driving me mad .can anyone please give me some advice.
Thanx hun, i just ordered it. just send me a private note or whatever it is on here. i sent you a friends request.
Didn't realize they cut out the emails :) jrodgers33 (at) gmail (dot) com or sirjoey33 on aim!
Hang in there Starluv...now that you know what you're fighting there is hope. The longer you've had this horrible bacteria in your body...the long it will take to eradicate it. The CD 57 test is a newer and promising marker for making progress on Lyme Disease. Treatment will not cause it to shoot up right away...most LLMD's will explain that often it won't budge for quite a while and then will eventually go up quickly. I have suffered for over 2 years and have seen multiple MD's only to finally seek out a specialist on my own when the was no other option for what I have. I am currently on oral antibiotics and seeing a Doc that is 8 hours from me...needless to say...not the optimal situation. I'm trying to see another specialist, but they are in high demand and it takes time to get in. I have done a LOT of research on Lyme over the past several months...as like you...i'm young (29) and determined to get my life back to where it was. Some words of advice for you: Follow a strict diet from now on, no alcohol...it totally kills your immune system, cut out sugar wherever you can, no empty carbs or white breads/pastas...wheat whole grain ok but don't over do it. Sleep and stress reduction is vital for your immune system to get stronger. If you prefer, i'm here to talk in other ways if you have questions. I can be reached at ***@**** or sirjoey33 on AIM. If you aren't aware of this documentary...check it out...it is possible to come back from where you are. www.underourskin.com. Ok...now I have to get back to studying...i'm in school right now to become a Nurse Practicioner which quite a challenge while having Lyme...big Anatomy test on Monday!