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Avatar universal

Did Lyme do this to me?

Hello everyone

I have recently been diagnosed for lyme and have began treatment with 2 100mg capsules of doxycycline twice a day for 3 weeks.  I know a lot of people may say that thats not enough treatment but i am going to finish it out and see how i feel.

Like many I'm sure, my lyme symptoms seemed to have come out of nowhere as i never recall being bitten by a tick.

As my lyme developed i seemed to be hit very hard neurologically, i did not experience the pain that most describe.  My biggest manifestations were muscle twitching, crazy mood changes and just an overall crazy brain fog that is extremely difficult to explain.

My problem lies here, ever since these symptoms started about 5 months ago i have not felt the same psychologically.  My body seems to not be responding properly to certain stimulus and it is quite concerning.  It feels as if my brain has completely shut off all feeling.

For example, I never feel hungry anymore and it not really as if i don't want to eat but nothing TELLS me to eat.  The system that says "hey your hungry" seems to have completely stopped working.  There have been times where i have gone a whole day without eating and know i should be hungry but the hunger pangs are non exsistent.  The same goes for when i am full.  My brain seems like it never tells me when to stop eating because i never feel it.

This one is weird to me as well.  I have always been an active person and usually know how my body responds to excercise.  Whenever i exercise my body seems not respond properly.  When i excercise i know i should feel tired but i don't feel it..I don't feel anything my heart will be beating really fast and i should be breathing heavy but i just don't feel anything  I can lift weights and not feel my muscles get tired i just can't FEEL.

Finally the same goes for emotions I just feel blank it like my brain has just shut off! :(

Like i said this is as weird to me as it is to all reading, but i am just wondering if anyone has lost all  feeling when they have dealt with lyme  and did it come back? i hate not being able to feel things i feel like a zombie.  Please leave your input if this has happen to you?
6 Responses
Avatar universal
Welcome to MedHelp Lyme --

Sorry you are going through 'Lyme World', but it's fixable.  

Doxycycline ('doxy') is often the first choice of antibiotics some Lyme docs will prescribe, and from what I read, that can work fine, if the initial infection (when you were first bitten by the tick) is very recent.  

[While your current bite is the first one you recall, you could have been infected previously and not had strong symptoms because your immune system could keep the earlier symptoms at a low level, and that can need somewhat longer treatment, but it works.  Not to worry.]  

If the current doxy treatment works well, that's good ... *but* if you still have symptoms after the current doxy treatment is finished, then I would go back to the doc *very soon* for additional treatment with different antibiotics that can reach into places in the body that the Lyme bacteria are hiding in and the first round of treatment couldn't reach.

The dosage you mention (200mg twice a day for 3 weeks) can work fine, but if you don't feel back to normal when the meds are done, then get back to the doc promptly (call and get a follow-up appointment).  It's hard for a doc to know exactly when you were first infected, so what's important is getting back to the doc without delay for more (and maybe different?) meds.  A wise doc will understand.

You say above, "I have recently been diagnosed for lyme and have began treatment with 2 100mg capsules of doxycycline twice a day for 3 weeks.  I know a lot of people may say that thats not enough treatment but i am going to finish it out and see how i feel."  If the doxy works at that dosage and length of time, then you're good to go ... but if it doesn't, then get back to the doc quickly so the bacteria don't get stronger.

You say, "Like many I'm sure, my lyme symptoms seemed to have come out of nowhere as i never recall being bitten by a tick."  Me either!!

You say, "As my lyme developed i seemed to be hit very hard neurologically, i did not experience the pain that most describe.  My biggest manifestations were muscle twitching, crazy mood changes and just an overall crazy brain fog that is extremely difficult to explain."  One thing about Lyme is ... that it hits everyone differently, and that confuses the docs sometimes.  I didn't have much pain either ... I mostly felt like I had a constant hangover, till I got treated.    

You say:  "My problem lies here, ever since these symptoms started about 5 months ago i have not felt the same psychologically."  This means you've been infected for a while ... so the basic short-course of doxy against Lyme may not be enough ... but that's what your doc is for, so be sure to tell the doc everything you've said here.  You could even print out your post here and carry it with you to the appointment so you can refer to your notes and not forget anything.

You say:  "My body seems to not be responding properly to certain stimulus and it is quite concerning.  It feels as if my brain has completely shut off all feeling."  Be sure to tell your doc all of this -- it's very valuable data -- put it in your notes for the appointment.  When I had Lyme, my memory wasn't very good (we sometimes call it 'brain fog'), and it's important to tell the doc about this and about how long it's been happening.  It helps the doc know how to tailor the treatment to be most effective.

I think you're going at this in a sensible way, and that will help you a lot to get through this.  I had Lyme and another infection the same ticks often carry, and I still am fine now, more than 5 years later.  Go for it!  Keep us posted.  
Avatar universal
My wife was diagnosed with lyme 10/15 after being bitten around 4/15 based upon blot testing. She did 200 mg
/day doxy and is currently taking the vital plan lyme proto and colloidal silver but she doesn't seem much better. She forgets to take her pills about half the time. Any help or suggestions? We are in WV
1 Comments
So it was six months between initial infection and the start of treatment?    Doxy may not work because it *often* is not effective when treatment begins so long after initial infection.  

Doxy is the old standby treatment for Lyme, but more progressive MDs who understand Lyme would likely treat differently.  I would get a second opinion from another Lyme doc (preferably one who is an ILADS member -- search online for that organization:  International Lyme and Associated Diseases Society -- and ask for a referral near you).
Avatar universal
I checked out the Vital Plan Lyme protocol and it's got a good mix of herbals and supplements to address Lyme disease.  It takes time, though, and I'm guessing she's been on it barely a month.  It needs more time.  Also, no medication will work if it's not taken properly.  If she takes it only half the time she might as well not bother.  The Lyme bacteria, a spirochete, is a nasty bugger and it's worth the time and discipline required to get rid of it.  The vital plan protocol only requires 3 pills from each bottle morning and night.  That's not THAT difficult!  She needs to take it twice a day.  DO IT!!!!  (I know she can!!!)

I have seen many testimonials but no scientific research supporting the benefits of colloidal silver, so I personally do not include it in my regimen.  If she likes it, just be careful not to take too much.
Avatar universal
grdner,  are there any reliable published studies that comfirms these plans and others similar to them are as effective as antibiotics?
Avatar universal
Sorry, Jackie, I haven't been logged in for a few days.  Yes, there is substantiation for the effectiveness of herbal antimicrobials.  They work differently and they may take a little longer but they do work.  The herbal mix in the Vital plan contains plant extract combinations that would be effective, but the quality of their extracts has to be excellent.  I am by nature a little suspicious of companies who provide both the plan and their proprietary (and required) supplies... I guess the whiff of the potential of a purely profit motive puts me off.  Not to say that there's anything wrong with this company, I just don't know them or their product.
Avatar universal
You say, "My wife was diagnosed with lyme [October 2015] after being bitten around [April 15] based upon blot testing. She did 200 mg
/day doxy and is currently taking the vital plan lyme proto and colloidal silver but she doesn't seem much better. She forgets to take her pills about half the time. Any help or suggestions? We are in WV"

Have you considered a second opinion from another doc?  Doxycycline is, to my understanding, not particularly useful when the Lyme bacteria have hidden themselves into cyst formations, which happens a fairly short while after infection, as I recall.  Other antibiotics are needed, as I recall, to pierce the cystic covering the Lyme bacteria create after a while in residence.  Is it possible that your wife's infection has proceeded into a cyst form that the antibiotics cannot pierce?  Whether colloidal silver or something else, the ability to pierce the Lyme cyst forms could be blocking progress.  Just a thought.

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