Aa
Does it stay or go away?
I was bitten by a deer tick in 1998, I was very sick for months and took a ton of antibiotics. I had the classic bullseye rash and very high fever. Ever since then I am always sick, there is always something wrong with me. I am only 39 and I feel like I have arthritis in my legs. Somedays I cannot even get around. I haved asked many doctors if this stays with you or does it go away? Never got a straight answer. Does anyone know?
Can't seem to get out of my own way this week. Tried to send you a correction to a previous email to you, but accidentally addressed the correction to myself. Duh. It's the message just above, beginning 'MY ERROR.'
MY ERROR:
I was scanning through this comment thread just now and realized that the whole last paragraph of a recent post from me includes a paragraph starting: "You need to see a doctor right away. I had similar symptoms, along with numbness in my left leg. I saw a doctor after being misdiagnosed with MS and then was rediagnosed with Lyme, and recieved treatment with antibiotics and vitamin supplements. ..."
That was from a post by someone else here, and I had copy/pasted it into my message to refer to as I was responding .... but forgot to delete the other text before posting.
Sorry for the confusion! Those aren't my words, so please *ignore* them in any post from me.
I was scanning through this comment thread just now and realized that the whole last paragraph of a recent post from me includes a paragraph starting: "You need to see a doctor right away. I had similar symptoms, along with numbness in my left leg. I saw a doctor after being misdiagnosed with MS and then was rediagnosed with Lyme, and recieved treatment with antibiotics and vitamin supplements. ..."
That was from a post by someone else here, and I had copy/pasted it into my message to refer to as I was responding .... but forgot to delete the other text before posting.
Sorry for the confusion! Those aren't my words, so please *ignore* them in any post from me.
... and to be more blunt about it: after diagnosis and treatment by a Lyme specialist who follows the ILADS views, my symptoms are all fully resolved and I have no symptoms of Lyme or babesiosis, which I had tested positive for. I would encourage you not to simply accept your condition and to pursue more effective treatment. You may be firmly convinced that Lyme and its miseries are with you forever, but I know that my Lyme symptoms were all resolved several years ago due to appropriate diagnosis and treatment tailored to my infections.
To each his own, but let us know if we can help.
To each his own, but let us know if we can help.
Welcome to the Lyme page.
Have you considered consulting with a Lyme specialist? Lyme is a new and spreading infection, and the medical community is learning (slowly, but learning nevertheless) how to better diagnose and treat Lyme and its companion infections.
Much has changed in recent years, and I would encourage you to take another look at your situation with an LLMD. Glad to share with you how to find one.
Best wishes to you -- feel free to visit this site going forward -- I've found it very helpful.
Have you considered consulting with a Lyme specialist? Lyme is a new and spreading infection, and the medical community is learning (slowly, but learning nevertheless) how to better diagnose and treat Lyme and its companion infections.
Much has changed in recent years, and I would encourage you to take another look at your situation with an LLMD. Glad to share with you how to find one.
Best wishes to you -- feel free to visit this site going forward -- I've found it very helpful.
All i can say is i had Lyme when i was 10 or 11. I had it so bad i remember waking up looking like the exorcist cramped up in my bed. I was treated for months. finally the test were coming back negative. still to this day from that point forward i have experience severe joint pain in knees, hip, and back. I just learned to live with it. I am a firm believer that it stays with you the rest of your life. just have to push threw it.
Greetings --
Sorry you are not feeling top notch.
Did your Lyme doc explore the possibility that you have an undiagnosed co-infection that may have been hiding behind the Lyme? The 'Lyme' ticks carry additional infections about half the time, and they often require different testing and different antibiotics, and sometimes longer treatment for the Lyme and the co-infections.
It's also possible you have or got a systemic yeast infection that are causing the symptoms you are having now. So it could be diet-related too, but so be sure the infections were thoroughly wiped out. Lyme has a very slow reproductive cycle, and it is when reproducing that the cell wall is broken and the antibiotics work best, so it takes a longer treatment time than most other bacteria.
What does you doc say?
You need to see a doctor right away. I had similar symptoms, along with numbness in my left leg. I saw a doctor after being misdiagnosed with MS and then was rediagnosed with Lyme, and recieved treatment with antibiotics and vitamin supplements. This was 2 years ago. After my 5 month long treatment, everything went back to normal, no fatigue, no eye problems, no heart problems. So i got comfortable, ate tons of sugar, didn't watch my diet, stopped supplements. Now it's back again: fatigue, eye problems and heart issues. Go see a doctor before it gets really bad and please don't relax with your diet because you think that you're cured. Unfortunately, this is something to watch out for all your life; I learned that the hard way
God bless
Sorry you are not feeling top notch.
Did your Lyme doc explore the possibility that you have an undiagnosed co-infection that may have been hiding behind the Lyme? The 'Lyme' ticks carry additional infections about half the time, and they often require different testing and different antibiotics, and sometimes longer treatment for the Lyme and the co-infections.
It's also possible you have or got a systemic yeast infection that are causing the symptoms you are having now. So it could be diet-related too, but so be sure the infections were thoroughly wiped out. Lyme has a very slow reproductive cycle, and it is when reproducing that the cell wall is broken and the antibiotics work best, so it takes a longer treatment time than most other bacteria.
What does you doc say?
You need to see a doctor right away. I had similar symptoms, along with numbness in my left leg. I saw a doctor after being misdiagnosed with MS and then was rediagnosed with Lyme, and recieved treatment with antibiotics and vitamin supplements. This was 2 years ago. After my 5 month long treatment, everything went back to normal, no fatigue, no eye problems, no heart problems. So i got comfortable, ate tons of sugar, didn't watch my diet, stopped supplements. Now it's back again: fatigue, eye problems and heart issues. Go see a doctor before it gets really bad and please don't relax with your diet because you think that you're cured. Unfortunately, this is something to watch out for all your life; I learned that the hard way
God bless
You need to see a doctor right away. I had similar symptoms, along with numbness in my left leg. I saw a doctor after being misdiagnosed with MS and then was rediagnosed with Lyme, and recieved treatment with antibiotics and vitamin supplements. This was 2 years ago. After my 5 month long treatment, everything went back to normal, no fatigue, no eye problems, no heart problems. So i got comfortable, ate tons of sugar, didn't watch my diet, stopped supplements. Now it's back again: fatigue, eye problems and heart issues. Go see a doctor before it gets really bad and please don't relax with your diet because you think that you're cured. Unfortunately, this is something to watch out for all your life; I learned that the hard way
God bless
God bless
Let us know how it goes with the new doc. As a group, rheumatologists are not great believers in the serious nature of Lyme ..... they sometimes talk about "post-Lyme syndrome" or start calling something fibromyalgia because they simply don't believe that Lyme isn't always cured with a couple of weeks of doxy.
Fibromyalgia is not a defined disease or illness: it is instead a collection of symptoms which have been given a made-up name (myalgia means pain, so 'pain in the muscle fibers' -- not very specific.) Even the tv commercials say that fibromyalgia "is thought to be" overactive muscles or something vague.
Are they giving you hydrocodone or hydrocortisone? Hydrocodone is a strong painkiller; hydrocortisone is an immune suppressant, which is the kind of med that Lyme specialists do not generally prescribe because the immune system needs to be up and strong when faced with a bacterial infection like Lyme.
Anyway, let us know how it goes -- sending you good thoughts!
Fibromyalgia is not a defined disease or illness: it is instead a collection of symptoms which have been given a made-up name (myalgia means pain, so 'pain in the muscle fibers' -- not very specific.) Even the tv commercials say that fibromyalgia "is thought to be" overactive muscles or something vague.
Are they giving you hydrocodone or hydrocortisone? Hydrocodone is a strong painkiller; hydrocortisone is an immune suppressant, which is the kind of med that Lyme specialists do not generally prescribe because the immune system needs to be up and strong when faced with a bacterial infection like Lyme.
Anyway, let us know how it goes -- sending you good thoughts!
Thank you so much for your advice. I will be seeing a new rheumatologist this week, hopefully have different input than last one. Just can't imagine after three years of all these meds that my liver can be in a good state. And this week I'm having the worst " fibro flair up" in 3 years. Now they got me on hydrocordone on top of all my other meds. I just want my normal or near normal life back, for my young granddaughters sakes.
and PS --
I always forget something! No doc will call him/herself an LLMD .... it's patient slang for docs who think bigger thoughts about Lyme than your current doc seems to have. An LLMD can be any specialty or none, but they are seldom found among neurologists and rheumatologists (!), because those specialists are part of the groups that first identified Lyme, and the orthodoxy runs deep. A neuro who treats Lyme like an LLMD would get run out the clubhouse pretty fast.
LLMDs are sometimes infectious disease (ID) docs, but they can also be GPs, internist, immunologists, and others. What counts is their point of view and openmindedness.
That said, there are some nutjobs out there who say they are LLMDs, but they really are too far out there for my taste. Take it one step at a time, and you'll find the right doc. And if you get the wrong one the first time (like one who wants to sell you a boatload of vitamins from his office), keep looking. Vitamins and supplements were a big part of my recovery, because of the ravages of Lyme, but I got mine at the store, not from my doc.
I always forget something! No doc will call him/herself an LLMD .... it's patient slang for docs who think bigger thoughts about Lyme than your current doc seems to have. An LLMD can be any specialty or none, but they are seldom found among neurologists and rheumatologists (!), because those specialists are part of the groups that first identified Lyme, and the orthodoxy runs deep. A neuro who treats Lyme like an LLMD would get run out the clubhouse pretty fast.
LLMDs are sometimes infectious disease (ID) docs, but they can also be GPs, internist, immunologists, and others. What counts is their point of view and openmindedness.
That said, there are some nutjobs out there who say they are LLMDs, but they really are too far out there for my taste. Take it one step at a time, and you'll find the right doc. And if you get the wrong one the first time (like one who wants to sell you a boatload of vitamins from his office), keep looking. Vitamins and supplements were a big part of my recovery, because of the ravages of Lyme, but I got mine at the store, not from my doc.
Welcome to MedHelp Lyme --
Sorry to hear about your illness -- I have one big suggestion for you: find a new doctor for a second opinion.
There is a huge split in the medical community about Lyme disease, and many MDs do not recognize Lyme as a serious or long lasting illness that requires more than a couple of weeks of antibiotics. Lyme is a complex infection that is not as simple as that, unless it is caught almost immediately after the initial bite.
The doc who believe that Lyme is hard to get and easy to cure have a very closed mind about continuing symptoms such as you have, and one of the dodges they use is 'fibromyalgia' -- which even the TV commercials for painkillers say "is thought to be caused by" a whole assortment of vague and unrelated possible causes, including "overactive nerves". In other words: the docs don't know really what causes fibro or how to treat it.
One leading possibility is that fibro is really Lyme disease, the symptoms of which line up very closely with those of fibro. The MDs who would most naturally be experts in Lyme include rheumatologists, but rheumies and infectious disease (ID) docs are among the leading deniers of Lyme as the cause of much misery. The docs who first identified 'Lyme' disease around Lyme CT a couple of decades ago did some preliminary research and decided that Lyme was hard to get and easy to cure with a couple weeks of doxycycline, and that is where their research stopped. Those docs are still highly active in the medical world, and their views are cast in concrete.
More research by others has found that Lyme has peculiar characteristics that make it difficult to cure with a couple weeks of doxy, unless the infection is discovered almost immediately, which it often is not, and that there be a tick seen and a circular red 'bullseye' rash, and that Lyme occurs only in the NE and parts of the West coast. Not true, because ... ticks can't read maps, and they hitchhike rides cross country every day on dogs and people, and the bacteria are IN docs and people everywhere as a result.
Your doc sounds openminded enough to call your ailment "fibromyalgia Lyme disease", so he's aware of Lyme as an issue related 'somehow' to the collection of symptoms called Lyme .... but it also sounds like your doc has drunk the koolaid about what the Lyme deniers call 'post Lyme syndrome' -- meaning that you HAD Lyme, were treated with a couple weeks of doxycycline, and still have symptoms, but you by definition do not have Lyme because you had 2 wks of doxy. Therefore they call your symptoms a phantom of a now-cured infection, and you're stuck with it. Hence the fancy tag of 'fibromyalgia.'
This makes no logical sense, and more progressive thinkers in Lyme diagnosis and treatment have determined that for reasons specific to Lyme and a few other diseases, two weeks of doxy doesn't do it.
Your current doc probably believes sincerely in what he is telling you, but if you were my best friend I would drag you to a Lyme specialist without delay for a second opinion. After 19 docs told me they didn't know what was wrong, or that I was just anxious, or I was at 'that stage' of life with lots of family changes going on, blah blah, the 20th doc in desperation ordered a Lyme test, which came back positive. The doc told me however (this is a direct quote), "Oh, you could not possibly have Lyme. I have patients with Lyme ... and they are all ... near death." Gee thanks, doc.
I took the test results and found a Lyme specialist, was diagnosed with Lyme and another infection often carried by the same ticks, was treated and cured. It took about a year, because Lyme has particular characteristics that make it a long treatment course, and I can bore you with those another time ... but I would most definitely find a Lyme specialist for a second opinion. Your doc means well but is following the current (mistaken) medical orthodoxy about Lyme. You don't need to tell your doc you are seeing another doc for a second opinion -- none of his business. But do this for yourself.
Lyme will not go away, so your rheumie is right that what you have is 'ever lasting.' That is, ever lasting if you don't get treated properly. I don't know that we have anyone posting here from SC, but here are two suggestions:
1 -- post a new comment here, by clicking on the brownish/orange box near the top of the page 'Post A Question' and title your inquiry something like "Need LLMD near Charleston SC" or wherever you are, or just say "Need LLMD in South Carolina area". Then in the body of your message also say how far you can travel.
We do NOT post the names of Lyme specialists (LLMDs) in the open here, because local and state medical boards often run them out of business, so any replies to you would probably come as a 'private message' on this site -- in the upper right corner of this page, you will see:
Inbox / Logout / My Shortcuts
When someone sends you a private message in response to your post, you will see a number next to Inbox, like "Inbox (1)". Click on Inbox, and you'll find the message easily.
(2) The other thing I would do at the same time is send an email to
contact [at] ILADS [dot] org
and tell them you are in Charleston SC and how far you can travel to see an LLMD. They will respond with one or more names of docs who are members of ILADS, short for International Lyme and Associated Disease Society, which is the main voluntary group for docs of all types who think broader and more progressive thoughts about Lyme.
(3) Also search online for something like
LLMD Charleston SC
and LLMD South Carolina
and LLMD Carolina
so that you are throwing a broad net. I don't know how the politics of Lyme are expressed around Charleston, but in some states, the medical boards do not allow docs to treat Lyme aggressively. Texas for example has virtually no LLMDs for that reason.
(4) Do not give up. I know I was ready to give up, but I am incredibly stubborn and knew there was something seriously wrong with me that wasn't because of hormones or family issues or any of the other garbage docs will throw at you because they are clueless.
Let us know how we can help -- we've been where you are --
Sorry to hear about your illness -- I have one big suggestion for you: find a new doctor for a second opinion.
There is a huge split in the medical community about Lyme disease, and many MDs do not recognize Lyme as a serious or long lasting illness that requires more than a couple of weeks of antibiotics. Lyme is a complex infection that is not as simple as that, unless it is caught almost immediately after the initial bite.
The doc who believe that Lyme is hard to get and easy to cure have a very closed mind about continuing symptoms such as you have, and one of the dodges they use is 'fibromyalgia' -- which even the TV commercials for painkillers say "is thought to be caused by" a whole assortment of vague and unrelated possible causes, including "overactive nerves". In other words: the docs don't know really what causes fibro or how to treat it.
One leading possibility is that fibro is really Lyme disease, the symptoms of which line up very closely with those of fibro. The MDs who would most naturally be experts in Lyme include rheumatologists, but rheumies and infectious disease (ID) docs are among the leading deniers of Lyme as the cause of much misery. The docs who first identified 'Lyme' disease around Lyme CT a couple of decades ago did some preliminary research and decided that Lyme was hard to get and easy to cure with a couple weeks of doxycycline, and that is where their research stopped. Those docs are still highly active in the medical world, and their views are cast in concrete.
More research by others has found that Lyme has peculiar characteristics that make it difficult to cure with a couple weeks of doxy, unless the infection is discovered almost immediately, which it often is not, and that there be a tick seen and a circular red 'bullseye' rash, and that Lyme occurs only in the NE and parts of the West coast. Not true, because ... ticks can't read maps, and they hitchhike rides cross country every day on dogs and people, and the bacteria are IN docs and people everywhere as a result.
Your doc sounds openminded enough to call your ailment "fibromyalgia Lyme disease", so he's aware of Lyme as an issue related 'somehow' to the collection of symptoms called Lyme .... but it also sounds like your doc has drunk the koolaid about what the Lyme deniers call 'post Lyme syndrome' -- meaning that you HAD Lyme, were treated with a couple weeks of doxycycline, and still have symptoms, but you by definition do not have Lyme because you had 2 wks of doxy. Therefore they call your symptoms a phantom of a now-cured infection, and you're stuck with it. Hence the fancy tag of 'fibromyalgia.'
This makes no logical sense, and more progressive thinkers in Lyme diagnosis and treatment have determined that for reasons specific to Lyme and a few other diseases, two weeks of doxy doesn't do it.
Your current doc probably believes sincerely in what he is telling you, but if you were my best friend I would drag you to a Lyme specialist without delay for a second opinion. After 19 docs told me they didn't know what was wrong, or that I was just anxious, or I was at 'that stage' of life with lots of family changes going on, blah blah, the 20th doc in desperation ordered a Lyme test, which came back positive. The doc told me however (this is a direct quote), "Oh, you could not possibly have Lyme. I have patients with Lyme ... and they are all ... near death." Gee thanks, doc.
I took the test results and found a Lyme specialist, was diagnosed with Lyme and another infection often carried by the same ticks, was treated and cured. It took about a year, because Lyme has particular characteristics that make it a long treatment course, and I can bore you with those another time ... but I would most definitely find a Lyme specialist for a second opinion. Your doc means well but is following the current (mistaken) medical orthodoxy about Lyme. You don't need to tell your doc you are seeing another doc for a second opinion -- none of his business. But do this for yourself.
Lyme will not go away, so your rheumie is right that what you have is 'ever lasting.' That is, ever lasting if you don't get treated properly. I don't know that we have anyone posting here from SC, but here are two suggestions:
1 -- post a new comment here, by clicking on the brownish/orange box near the top of the page 'Post A Question' and title your inquiry something like "Need LLMD near Charleston SC" or wherever you are, or just say "Need LLMD in South Carolina area". Then in the body of your message also say how far you can travel.
We do NOT post the names of Lyme specialists (LLMDs) in the open here, because local and state medical boards often run them out of business, so any replies to you would probably come as a 'private message' on this site -- in the upper right corner of this page, you will see:
Inbox / Logout / My Shortcuts
When someone sends you a private message in response to your post, you will see a number next to Inbox, like "Inbox (1)". Click on Inbox, and you'll find the message easily.
(2) The other thing I would do at the same time is send an email to
contact [at] ILADS [dot] org
and tell them you are in Charleston SC and how far you can travel to see an LLMD. They will respond with one or more names of docs who are members of ILADS, short for International Lyme and Associated Disease Society, which is the main voluntary group for docs of all types who think broader and more progressive thoughts about Lyme.
(3) Also search online for something like
LLMD Charleston SC
and LLMD South Carolina
and LLMD Carolina
so that you are throwing a broad net. I don't know how the politics of Lyme are expressed around Charleston, but in some states, the medical boards do not allow docs to treat Lyme aggressively. Texas for example has virtually no LLMDs for that reason.
(4) Do not give up. I know I was ready to give up, but I am incredibly stubborn and knew there was something seriously wrong with me that wasn't because of hormones or family issues or any of the other garbage docs will throw at you because they are clueless.
Let us know how we can help -- we've been where you are --
I was diagnosed with rocky mt spotted fever three years ag from a dear tick bite, but only after weeks of misdaignoses. I didn't show classic rash or fever just aches pains and weakness. This is said to be cause of my now fibromyalgia. I take 29 pills a day and have many flair ups. My rheumatologist says I will never be off these meds due to special circumstances, says it's call fibromylgia Lyme disease, is this true, that it is so rare and ever lasting
To my understanding, RMSF is not as hard to cure as Lyme can be when it gets entrenched. A couple weeks of doxy is the usual treatment, from what I read.
these are the same symptoms i had. i have lyme,get to a doctor .i was treated with the first round of antbotics an i feel 95% better.
I am not as familiar with Rocky Mountain Spotty Fever as I am with Lyme and some other co-infections. If it works like Lyme, Lyme can be dormant until your immune system gets suppressed, then symptoms appear. Did you get tested for Lyme and other co-infections also? It's possible that if you have one co-infection, you might have others and/or Lyme as well. Is there a chance you were bitten by a tick again? You don't always get a rash.
I have been having trouble walking, my legs feel like lead and my hip hurts terribly. So tired all the time, floaters in both my eyes worry me to no end! I can't even walk around town with my husband to look in any of the shops because my legs give out so quickly. Had several tests done all came out okay, then the doc ran a test for tick bite and said it showed a possibility Rocky Mountain Spotted fever. I did have a serious tick bite 3 or 4 years ago, why is it just now showing up? I hope the antibiotic works! I am so sick of not being able to do anything!
thank you so much for putting all of your information up on this site! i am going to the Philmont boyscout ranch in New Mexico in about a month (BTW im a girl haha). My friend who is also a girl is coming with me too. she got diagnosed with lyme disease about a week ago and i was so scared that she wouldn't be able to go with me! Hopefully she can.
-L
-L
Yep dx'd in childhood...had it all my life....thanks for the insight...good luck to you also. I already have the AVN so i think the Doc is thinking I can't make it any worse lol
That's horrible about your hip. Perthes is dx'd in childhood, isn't it? have you had it for that long? I've heard that some people have an adverse reaction to cortisone and actually develop Avascular Necrosis from it.
Lyme disease can cause Osteo & a host of other issues when the bacteria dessimate so I think there is no way to know for sure. Osteo is a trademark of so-called classic lyme disease although ppl can have it with absolutely no joint/bone involvement whatsoever.
Testing negative for lyme doesn't mean you don't have it, as I'm sure you know.
Sorry I can't provide more insight. A LLMd may be able to. Good luck to you.
Lyme disease can cause Osteo & a host of other issues when the bacteria dessimate so I think there is no way to know for sure. Osteo is a trademark of so-called classic lyme disease although ppl can have it with absolutely no joint/bone involvement whatsoever.
Testing negative for lyme doesn't mean you don't have it, as I'm sure you know.
Sorry I can't provide more insight. A LLMd may be able to. Good luck to you.
Oh boy...haven't been on in awhile...I was diagnosed with Lyme almost three years ago now...went through alot..rash,flu like symptoms, neck problems, floaters, went on doxy and herx badly...my tests now are negative..but guess what now i am having hip problems, had a cortesone shot yesterday, I have AVN wondering if it's from my perthes or from Lyme. I am leaning toward the Perthes disease, but not completely sure. Any suggestions. i may need a new hip soon. Take care everyone long time no talk..lol
I think I've had it since the 80s, so I'm being treated with orals by an LLMD....I am doing much better. Hang in there!
I am currently being treated for Lyme disease... 3 weeks of abx (6 days in now)... I WAS feeling so much better but today the burning sensation in my elbow is back. I suspect I've had LD for 7 mos, but had accelerated symptoms (the Drs think) b/c I'm also HLA B27 positive. I'm not an expert, though at times I feel I know more than the drs I've seen re: Lyme, definitely keep pushing for treatment... keep searching for a dr to LISTEN. I went to a Neurologist, Rheumatologist and my PCP - all of which disregarding me b/c my blood test was negative. My Opthamologist was the only one listening and taking me serious b/c of the Iritis I developed, but he backed off once the Rheumatologist said "no way is this lyme - your blood test is negative" and then I developed some skin condition (web-like markings on my arms and legs - Livedo Reticularis - he said "Drs know this is hard to treat all of your symptoms - I can't believe no one has" and he treated me there on the spot. Now I'm just hoping we are right b/c you do feel unsure when there is no blood test to confirm, but many LLMDs say "treat based on the symptoms not the blood test" I'm hoping they are right and I will feel better and it won't be 'chronic lyme." All of you, be your own advocate and I hope you will find wellness!!
I was diagnosed & treated for chronic lyme disease back in 1994. I had the I.V antibiotic treatments at home. They told me the treatment can only be given for 3 weeks & that I still wasn't 100% but that there wasn't anything else they can do. I had fluid drawn from my knee, I had the memory problems, the severe joint pain, migraine headaches... you name it I had it. Now 15 yrs later I am going through every symptom all over again. I have yet to see my Dr about it because the symptoms just got worse. I will be making an appt very soon. I just found out about recurring Lyme Infection. I had no idea this could happen. We'll see what the Dr. says
Wow, most definitely see a Dr....sounds like lyme, all the symptoms I had most definitely. Starts outs with the rash, then flu-like symptoms. After that I had the neck/head pain. I had MRI's done on my neck and head. Your head feels like it's swollen...very weird feeling. I kept telling them I thought something was wrong with my brain...had the tests done, I do have the white matter, they aren't worried about that, however I am after reading the Cure Unknown book, seems very common in lyme. Although there are no lesions Thank God!!!. I went through therapy for the neck, really helped me. Sure hope that does not come back. Wonko, that book is fantastic. Wolf you have to read it, Cure Unknown by Pamela Wintraub, something like that.
Good luck to you!!!
Good luck to you!!!
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