Great resources for people new to Lyme Disease

[Ricobord]

Here is a great list of resources for people new to Lyme Disease and looking for information.

http://lymedisease.org/news/touchedbylyme/beginners-2.html

[mojogal]

The part I meant was his list of symptoms.

I know that the whole paper was not meant for the "lay" person.

My LLMD copied his symptom page as part of her paperwork for first time visits.

Many newbies are not even sure what the symptoms of Lyme are.

I agree, there should be something simple for Lyme patients to read as an overall story line of what to expect, etc.

[JackieCalifornia]

When I get a minute, I'll see if I can locate the overview you mention.  

I always have the feeling when reading his guidelines that they were (as the saying goes) 'dictated but not read.'

[Ricobord]

Burrascano's target audience in his guidelines was always doctors. A lot of patients struggle with it.

I seem to remember reading an overview or two, explaining Lyme to the reader. Of course I have no idea where I read them... that would have been when I was still really sick.

[mojogal]

lol, I appreciate your comments on Burascano.
There should be something easy for Lyme brain and others to understand.

[JackieCalifornia]

Burrascano (as much as I appreciate him and his approach) gives me a headache.  It's all good data, but it's almost stream of consciousness ....

I agree with Star -- we need some simple, user-friendly, Lyme-brain-understandable information that explains what's up in the mess the medical community has made of Lyme+.  There may be something out there on the net already ... so if anyone finds it, let us know!

[mojogal]

Is Burascano treatment guidelines to much too?

[Robyn072]

Thanks Rico!

[Stargazer_Lilies]

I wish there was brochure in simple layman language to show to family member who isn't scientific inclined. I couldn't find one that is succinct and concise, as well as easy to follow and understand.

-why LLMD is important, overview about lyme controversy over treatment and diagnosis approach.  
-why combination of antibiotics therapy is important, and a clear explaination of various form of spirochete
-why clinical diagnosis is important even if test result is negative

[JackieCalifornia]

R --
Thanks!  [sorry, trying to type with one hand and eat dinner w the other]  :)