Good idea, mojo! I don't 'facebook', so I didn't even think of that. thx!
I belong to the international Lyme disease awareness campaign. Lyme exists everywhere except for Antarctica. FYI, There is an Australian Lyme Disease support group on Facebook if you want to join.
Welcome to MedHelp Lyme --
Sorry to hear what you are going through.
I just searched online for the phrase
lyme disease australia
and got many, many hits in the search results.
Among them is a link to the Karl McManus Foundation website, and a quick look was quite promising.
The goals of the foundation are stated as:
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-- To facilitate research and raise awareness of Lyme disease (borreliosis and co-infections) and other tick-borne diseases in Australia.
-- Advocate for better testing and treatment of borreliosis and co-infections.
-- Educate doctors and other health professionals about Lyme disease (borreliosis) and co-infections in Australia.
-- Use the media to alert the public about Lyme disease (Borreliosis) and co-infections in Australia.
-- Publicise that there is a potential to misdiagnose Lyme (Borreliosis) as many other serious chronic diseases like Parkinson’s disease, motor neurone disease (MND, ALS), multiple sclerosis (MS), Alzheimer’s disease, fibromyalgia and ME/chronic fatigue syndrome and autism.
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Organizations like this often have quite good information about how to find physicians etc. who understand Lyme disease and its co-infections, and that is the kind of MD that I would want to see.
You are right that there is much misunderstanding and denial about Lyme disease, so finding knowledgeable MDs is the first and most important thing I would do.
Please let us know if we can help further, and do let us know how you do.
Best wishes --