Lyme symptoms?

[Phoenixreal]

Cross posted from Undiagnosed community:
So this is long but I'm very frustrated and every doctor thinks these are unrelated.  I have had acid reflux and pmdd  for a while.  In Feb of 2012 I got this bite looking thing on my neck.  I went to urgent care and my doctor looked at it.  Suddenly, I almost pass out, blood pressure tanks, so I lay down.  She thinks she palpated the spot that slows the heart.  For an hour, each time I sit, my blood pressure drops and eventually I go to the er by ambulance.  They load me up with fluids and antibiotics and no one knows what happened.  Two days later, go to my doctor, and the red patch from my neck had migrated to my collar bone, so she says I was lucky because I apparently had septis.  No idea why, but okay.

I brought up Lyme but she said there was no bullseye rash so it wasn't that.

I start suffering from extreme exhaustion.  And in April 2012 it's found I'm both hypothyroid and have moderate sleep apnea.  Since my tonsils are enlarged, I qualify for the survey, which I have in July 2013 and my sleep apnea is gone.

So now I'm on prozac, prilosec, and levothyroxin.

My anxiety worsens so I start vistaril prn, and requip for my restless legs which started 2014.  

Then 2015, September I think, I started having breathing problems, so I get inhalers, which don't help, and repeatedly have steroids for this.  I started advair and singulair, saw no improvement, so I have a pulmonary test where there's no real sign of asthma.

I go back and this time I'm having exhaustion again, get bloodwork to check my thyroid, and ask for an iron panel at my gyn request.  Comes back low iron, so I start iron twice a day.  Period starts to be tall hell.  Go back and after two months of iron, my levels dropped again.  So now I'm on iron three times a day for three months and I'm so exhausted all I do when not at work is sleep.

I am just frustrated and feel that this all can't just happen coincidentally.

I also have high cholesterol, but two months of lipator dropped it from 260 to 193.   Thanks in advance for any insight.

[JackieCalifornia]

No worries, I wasn't lecturing you, just wanted to alert newbies coming here who don't yet know about the split in the medical community about Lyme.

Take care, and keep us posted --

[Phoenixreal]

Thank you, I know that posting information on MDs isn't done, I actually did some research right after I experienced the hypothryoidism and sleep apnea, but life got rather busy at that time so I didn't get a chance to follow up, and I lived in St. Louis at that time.  :)

[JackieCalifornia]

Welcome to MedHelp Lyme, but sorry to hear all you are going through.

There is much ignorance in the medical community about Lyme disease, which has spread rapidly through the country in a relatively short time, leaving the docs flat-footed until more years and studies have gone by to clarify the situation ... and all the while the docs are adapting to the new disease, the infections keep spreading and changing.  Sigh!  

There is good news, tho:  You are in Missouri (right?) and one of the great Lyme docs is near you.  I will send you a 'private message' through this website with the name and city.  We do not normally put in public here the names of Lyme specialists who really know what they are doing, to avoid causing problems for the docs by 'old-think' MDs and medical boards who don't follow the more progressive approaches to diagnosing and treating Lyme.  (My own Lyme doc [in another part of the country from you] is an ILADS member, and several years ago, he got me well, as well as another family member of mine.)

(If you can't find the 'private message' I'm sending on this site in a few minutes, post back here and say you can't find it -- we'll give you more specific directions to locating the hidden post here.)

Also check the ILADS [dot] org website for names of other MDs who specialize in Lyme.  'ILADS' is short for the International Lyme and Associated Diseases Society, a nationwide voluntary group for MDs who specialize in Lyme.  Search for 'ILADS' online, and you'll find it.

You are doing well in approaching your situation so far, and that's a good sign!  Let us know how you do, okay?  All good wishes to you --

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     --- >  NOTE TO ANYONE READING THIS:  We do NOT normally put MD's names in this website, because there are many good MDs who do not want to identified as an ILADS-type MD.  There is a serious divide in the medical community about how to diagnose and treat Lyme, and the older views (that Lyme is rare, hard to get, and easy to cure) are still held by many MDs, so it's important not to cause problems.
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