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Looking for anyone who has Acrodermatitis Chronica Atrophicans with Lyme Disease

I have what doctors believe is ACA, a late manifestation of late Lyme Disease. My skin is atrophying and I don't know if it will ever stop, based on what I have read.

Has anyone had this before and stopped the progression through antibiotics or other means?  It is all over my body and getting worse. I'm in a panic as no one in the U.S. seems to know what to do. I've read so much of the same information.

I just want to know if it can truly be stopped and if dermatological procedures can help reduce the look of the atrophy and sunken spots. Without trying to sound rude, I am not looking for what it is how how it manifests. That I have l learned. Just how or can I truly have a prayer of stopping progression and working to get skin and sunken areas back to some degree. I have seen this coming fro about three years but no doctor would believe me until tests now show it to be true.

Thanks so much.  
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9052491 tn?1405978555
I have a lot of reason for being excited. The ACA on the back of my hand seems to be going away. It's fading and feeling more and more like normal skin. I've been using the BioTox Lyme homeopathic remedy as well as Banderol and Teasel, plus added an herbal formula for adrenal support and liver cleansing last week. I definitely have more physical energy and less pain, too. I am still very much affected by weather changes, however. Rainy weather makes the fibromyalgia really difficult. But I'm going to keep chugging.
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Avatar universal
That's great to hear! Not the feeling bad part, but the aftermath.

I have started the Buhner Protocol, which includes a large number of supplements, but not the banderol or chlorella. Could you keep me posted on how things go? I'll be hoping for you.

Most opf my body is impacted by the ACA, or what seems to be ACA. I haven't lost any strength, just the loss of fat/collagen, headaches, fatigue. It became better on Bicillin IM, but has slowly gotten worse again. But today was the first day is a few weeks I haven't felt like sleeping between 3-6 p.m.

Hope all goes well.Look forward to hearing back on your progress.    
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9052491 tn?1405978555
I happened to stumble upon ACA recenlty while researching lyme. It was a major "aha!" moment because I have had this wrinkly patch of dry skin on the back of my hand for YEARS and never remembered injuring it or burning it. The thing never got better or worse, just stayed there dry and discolored, didn't itch, didn't grow. When I discovered the definition of ACA it all fell into place. Now I don't have to spend thousands of dollars on fancy blood work to see if I have lyme.

Last weekend I added a homeopathic remedy to the herbal lyme protocol I've been using (banderol, samento, chlorella, and vitamin D3). The results were startling. The homeopathic remedy is marketed by Dr. Theresa Dale as Lyme or Bio-Tox, and I used just five drops twice a day. Within hours I was deathly sick, headache, nausea, then vomiting, diarrhea, and sleeping for about 8 hours. For a little while I wasn't sure I would survive whatever it was, but now I know it was a "herx" from the die-off of the lyme critters. What really got my attention, because my right arm was in a cast from an accident, was that the ACA on my hand began to burn during that time, like someone was holding a hot iron on it!

The next day I was shocked to find how great I felt. It was as though I had knocked out so much lyme I felt almost normal again, and it's been a long, long time since I have felt that way. Today I started back on the Bio-tox again. I will keep an eye on the ACA as well as the other symptoms and reactions and share whatever I find. So far, this is really exciting.  The last herx I had was a year ago using just banderol and samento, but I was kind of in a holding pattern without a lot of improvement since then. To have mobility back in my legs is really encouraging. I am walking more every day.
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Avatar universal
Thanks for the information. Do you have loss of fat under skin and atrophy of skin?
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Avatar universal
I am currently undergoing treatment at Sierra Integrative Medical Center in Reno, Nevada. I highly recommend this place, the doctors specialize in the holistic  treatment of Lymes. I am also suffering from Lymes that is being expressed through my skin,  but with the recent treatments I am healing and my skin is clearing up.
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Avatar universal
I never have had scabbing, just light red bluish circles or ovals that eventually atrophy. Your hand have lines in it that seemed to develop quickly? Like quick aging?

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