Looking for anyone who has Acrodermatitis Chronica Atrophicans with Lyme Disease

[Murphgolf]

I have what doctors believe is ACA, a late manifestation of late Lyme Disease. My skin is atrophying and I don't know if it will ever stop, based on what I have read.

Has anyone had this before and stopped the progression through antibiotics or other means?  It is all over my body and getting worse. I'm in a panic as no one in the U.S. seems to know what to do. I've read so much of the same information.

I just want to know if it can truly be stopped and if dermatological procedures can help reduce the look of the atrophy and sunken spots. Without trying to sound rude, I am not looking for what it is how how it manifests. That I have l learned. Just how or can I truly have a prayer of stopping progression and working to get skin and sunken areas back to some degree. I have seen this coming fro about three years but no doctor would believe me until tests now show it to be true.

Thanks so much.  

[terry77161]

I have ACA on the top of my right hand, and now patches coming up on my legs.  I have late-stage Lyme's, and receive alternative treatment from a D.O., but he is not familiar with ACA.  I went to my dermatologist who doesn't know I have Lyme since I'm trying to keep that quiet so I don't lose my health insurance, and he said it was Granular problem, which it isn't.  It's not in circles like that.  My ACA is reddish, and periodically there is a bit of scabbing as though it wants to heal but doesn't.
A while back I saw a Lyme patient on Youtube. who has this.  Her hand looked just like mine.

[Murphgolf]

Did you lose any body fat through all this? And I was on steroids for Sweets Syndrome before all this started. Understand your concern on that. I appreciate your comments and thoughts. Will look into Valtrex and ACA connection.  

[chavigold]

Hi,
I know it's been a while since you had posted your question about ACA and understood you started treatment of antibiotics.
I had horrible skin breakouts that where treated with steroids first (Yahh, very bad! I'm paying for it now...) over a period of 3 years (I used to break out on overage every 3 months and I had 2 very bad ones; disgusting! ;). The bottom line is I recommend you ask your doctor about putting u on Valtrex (If they haven't already..) on a daily basis.
I take 1 in the AM & 1 in the PM; 500mg pills.
The down side of Valtrex is; It's expensive! You can try the generic kind(Valaciclovir); for me it didn't work for some reason. The valtrex did the generic didn't.
I hope this helps, unfortunately I know what u r going throw. Be strong!
I'm in treatment since Feb 2012, I still get little breakouts even-tough their not as nearly as bad!
Be well.

[cave76]

ditto to what mojo said

[mojogal]

Every one is different but within a few days it should happen if you are going to have one.

[Murphgolf]

Question: How long could it take for iv clindmycin to cause a herx. Had first dose today and don't fell any problems. Does it take some time or is it much quicker than oral? Just hopsing this stuff works after going thro9ugh everything to make it happen. Any thoughts? Thank you in advance.