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Avatar universal

Low low blood pressure with Lyme!!

Does anyone get really low blood pressure with Lyme and Co?  Mine has been really low the last few days and this morning it was 72/43 with a pulse of 55. I have had back pain central on the right hand side for the last nine days that is worse in the middle of the night while I am sleeping (at least trying to).

I am so used to just chucking everything into the Lyme basket now that I guess I am concerned that I am becoming a bit  to laid back with my weird health symptoms.  My GP doesn't really know anything about Lyme and my LLMD is 2200km away.  Any suggestions????
37 Responses
Avatar universal
Hi -- I just searched for

                   lyme hypotension

and got a ton of hits.  So I'd say yes, it happens.

My BP is always on the low side, always has been, so it was hard for me tell if Lyme affected me that way.  Sitting here at the computer,  my BP is currently 72/47, tho my heart rate is currently elevated due to a ton of carbs I just ate.  

My heart rate is usually in the 70/80s, so you're definitely lower there compared to me.

Do you have a sense of what your stats were pre-Lyme?  When I would get concerned, I would take my BP every 5 or 10 minutes and record it, just so I would have a record to show my doc if it didn't get back to normal fairly fast.  It also gave me some distance from the event so it wasn't so alarming while it was going on.

You could try lying down with your feet up if you feel faint, just so you don't pass out and hit your head.  

Take care, let us know how you do, okay?  And of course see a doc if you are still concerned.  J.
Avatar universal
I do. My blood pressure tends to be around 90/70 or below, around 80/60, and occassionally in 70/50 range.  My pulse is like an athlete--being in 50's or low 60's.

The key is to watch out for is fainting-like upon standing up, or dizziness, and so on.  

Sometimes it is normal for person to have hypotension as long as she/he does not experience any adverse symptoms. I  had natural hypotension (90/70ish) in my childhood and into early adulthood but without severe effects.

By the way my LLMD says it is very common for lyme patients to experience neurally mediated hypotension (suddenly drop in the blood pressure) or syncope (actual fainting).

My neurally mediated syncope & bradycardia  has stopped when I started the treatment. In the past I had to take florinef/atenolol to control it for about ten years prior to proper diagnosis.

If you do feel fainting-like upon standing up often then try to increase the salt intake.

If you experience a fainting-like episode and feeling weak afterward then drink gatorate right away or heat and drink chicken broth as if you were drinking the tea. Those are what I did for myself and it helped.
Avatar universal
Thanks for the reply.  My blood pressure is normally around 100/60 with a pulse of 55-60.  I don't know what it was pre lyme and would probably be irrelevant because I was only 10.  Just seems to coincide with the pain in my back. Probably just a coincidence. Thanks, will do.
Avatar universal
Sorry to butt in here. I have the opposite problem in terms of heart rate. Mine tends to be very fast. It's very rare for me to get a reading under 100 BPM. When I did a stress test, my cardiologist stopped the test early on because my heart shot up to 200 bpm. Is this an indicator that I *don't* have Lyme?
Avatar universal
Thanks, I'll try those suggestions. So sounds like it is normal with Lyme.
Avatar universal
It doesn't mean you don't have lyme, and heart palpitations, including fast heartbeats (tachycardia)  as yours  also can occurs with lyme patients.

Neurally mediated syncope can occurs with tachycardia or bradycardia.
Avatar universal
Ah, thanks for letting me know. Just seemed like everyone in this thread had low BP and a low pulse. My BP can get lowish, but not nearly as low as others have reported in this thread. It's typically around 110/60.
Avatar universal
For years, my BP was 110/70, and my doc was always very happy with that.  I think anything in that neighborhood is considered quite good.
Avatar universal
I have had elevated BP and tachycardia with Lyme. Before I got diagnosed, my PCP put me on a beta blocker which brought my systolic down from 155 back to my normal 120.  I was running a minimum of 100 bpm at rest. I hit a high of 155 once in the middle of the night when my heart was pounding so hard, it felt like it was shaking the bed. That was scary.

Nearly a year later, I am down to 1/2 my original dose of the beta blocker (metoprolol succinate) and my BP is usually about 100/78 and my resting HR is about 85. I am on a small dose of provigil which adds 7-10 bpm.

When I cut out my magnesium supplements to try to help my kidneys, I had three episodes of tachycardia again where it went up just over 100 while I was just sitting. All three times I was about an hour overdue for my next dose of metoprolol. I added magnesium back in and I haven't had any since. I suspect the magnesium is helping my heart in addition to my nerves.

I look forward to the day when I am back to a normal HR and BP.
Avatar universal
Big variation of cardiac symptoms......my eldest sons pulse sits regularly 45-48 bpm and arrhythmias  while my daughter who also has arrhythmias, heart murmer and chest pain will commonly sit 120-150bpm.

My question was posed more from the point of is my low low bb lyme related or is it related to my newly acquired right sided back pain....or are both actually symptomatic of lyme disease.  I have no idea, other than the above posts let me know that at least low bp  is common in lyme.....and I probably need to go and see my GP (who doesn't know anything about lyme disease) about the back ache that wakes my up and keeps me awake every night.

We are all walking this rotten path together, bouncing our thoughts, frustrations, concerns, knowledge and treatments off each other.....makes the journey just a little less lonely.
Avatar universal
What dosage of Magnesium are you on Rico?  I have magnesium in my mega multivitamin but am wondering if it is enough.
Avatar universal
I also take magnesium ... and have continued to do so even after Lyme treatment was finished.  Before I found my way to a Lyme doc, I had episodes of heart irregularities in one week that put me in the ER twice.  

I take a brand called Magnesium CAO, that includes three varieties of magnesium (Mg):  citrate, aspartate and orotate.  I have read that any variety ending in -ate is most absorbable, and there are others, such as Mg malate.  I tried several varieties and found the Mg CAO works best for me, but everyone is different.  I am very sensitive to meds, and take 200 mg twice a day.

I had a nonLLMD sneer at me when I told him what I was taking, and he told me I would damage my kidneys taking Mg supplements.  (Yes, it could cause damage in gigantic doses, but this doc was one of those old stooges who thinks ALL vitamins and supps are nonsense.)  There are limits, however, so more is not always better when it comes to Mg and other things too.  Another doc told me that if I took too much, I'd get diarrhea before I got kidney damage, and to back off the dosage if I got diarrhea -- it never happened to me, tho.  

I still take Mg even tho my Lyme treatment is long over.  The American diet is said to be generally deficient in Mg, so I'll just keep taking the stuff.  Helps sleep and other stuff too.  

Heart irregularities can, so I read, be due to low Mg levels, because muscle needs Mg to carry messages among muscle cells, and the heart is ... a muscle.
Avatar universal
That makes perfect sense....have to see if we have that brand down here. Thanks Jackie!
1211030 tn?1381137342
both low blood pressure  and low  blood sugar, passed out a few weeks ago because of it
1763947 tn?1334055319
I had it so badly before I got so sick, that I use to pass out, did a tilt table test, which I failed and they named it Neurocardiogenic syncope. So yes, that seems to be a common thread. I also have a very low body temp.
Hang in there.
Avatar universal
I get mine online ... haven't seen it in stores.  Google/search it and you'll find it, but other formulations may work all right for you.  I've heard others say some Mg types worked better for them than others, so it's a bit of trial and error.  Mg malate was my second favorite, and I know that's in stores.
Avatar universal
Me, too...I failed the tilt table test and it scares the hell out of nurse.  

Neurocardigenic syncope is another term for neurally mediated syncope, and I notice most of the doctors never heard of "neurocardigenic syncope" so I used neurally mediated syncope or hypotension.

Avatar universal
My blood pressure tends to be normal however my heart rate is usually 115 resting an sometimes shoots to 130
Avatar universal
I just searched for

                        lyme disease autonomic dysfunction

and there are lots of hits and discussions and publications.
Avatar universal
Went to the Dr's and couldn't get in to see my regular GP.  She didn't even write down my low bp (or take my bp during my appointment), she said she was more worried about my back pain and has sent me to go and get a renal ultrasound.

Bp 78/35 today. Feeling like garbage. :-(
Avatar universal
I'm glad the doc was interested in what might be going on -- low blood pressure and kidney function can be linked somehow in ways I don't know.  Hope you feel better soon -- do you have a follow up appointment scheduled?
Avatar universal
I was taking a 200mg pill three times a day for about a year. I am very sensitive to when my blood level drops. My shortness of breath gets noticeably worse. After I take a dose, it eases up within about 20-30 minutes, depending on how empty my stomach is.  I went without it for a week or two before my last round of kidney tests, and I definitely missed it.  

My nephrologist said that magnesium will only be hard on a kidney that is diseased/compromised and since mine are not (yet), she said magnesium supplements were fine and I could resume them. I went back on two a day, which is 400mg.

The only time I had diarrhea on magnesium was when I took Epsom salts orally. Either I took too much or I am sensitive to it, but now I know I can use it as an effective and inexpensive constipation remedy. ;)

I first read about how low magnesium can lead to difficulty taking a full or satisfying breath while I was searching for answers about why I felt so bad.  I found a post on an MS board where a MS patient reported that a pharmacist had told him to take it to ease his "air hunger." But he also warned not to take it at the same time as Vitamin D as the Vit D would "monopolize" the magnesium.  Or maybe it was that the magnesium would monopolize the D. Hmm.  That was back in the day of poor short term memory.

I wasn't able to confirm this conflict elsewhere, but I just decided to take them two hours apart just in case.  Both are important to a Lyme patient, so I want to make sure I can actually use both.

Two of the meds I was on earlier this year said to take separate from magnesium, as magnesium would absorb the medication.  So be sure to read the info sheets on your meds. You wouldn't want to thwart an antibiotic.

On days I feel like garbage, I go take a 20 min soak in an Epsom salt bath. It is very calming. Being more relaxed seems to ease the "garbage-y" feeling.
Avatar universal
A resting heart rate of 115 is too high. When mine was in that range, I felt really crummy. I felt a lot better on the metoprolol succinate.

Definitely ask your doctor if you can take something to bring your heart rate down. I have no idea how being pregnant factors into it, but that is obviously important.  

If you have low BP already then a beta blocker is not good as it also lowers BP.  I had to reduce my dose because I was dizzy every time I stood up. My Systolic got down to the low 90's and I don't do well that low.

Clearly my BP has made a bigger move back towards normal than my HR has.
Avatar universal
Rico's message triggered a thought ... when I told one doc (not a Lyme specialist) that I was taking Mg supplements, he sneered at me (as he had been through the whole appointment, not being a 'believer' in Lyme) and said that taking Mg supps would cause kidney damage.  I then asked one of my other docs that I trusted if that was true, and this doc said that I would get diarrhea from too much Mg before I got any kidney damage.

So, that's the long way of saying that I too have heard indirectly that there can be a tie between kidney function and Mg intake, so it's a good thing to follow up with your doc further.

Epsom salts *are* magnesium, only absorbed through the skin.  I don't know if there's a magic cutoff mechanism when your body stops absorbing the salts if it's gotten enough, but I'd ask the doc what the interplay is among your kidney ailments, Mg supplements, and Epsom salts, just so that you are both on the same page about what's going on and what effect the Mg and the salts might be having.

I got in the habit of taking to all doc appointments a current list of all vitamins, supplements and prescriptions I was taking, with dosage -- some docs didn't care, but some were very interested because of the interactions and effects that can result.  But I'd def. follow up with the doc about the Mg and its effect on your kidneys --

Let us know how you do, okay?
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