Hi,
I've been having symptoms for a year now, and have seen many doctors and specialists.
My symptoms:
Weakness, Weight Gain, Purple Stretchmarks on stomach, arms, breasts, and the insides of my legs (they tend to die down then get redder every few days) joint pain, insomnia, fatigue, fast heart rate on average 100-130, acne, back pain, swollen hands, swollen ankle on one leg, a dry cough, nausea and sickness, bad reaction to alcohol, hot flushes (any time can drench my neck and back)
Last summer i was bitten by a tick and the rash came up. Went to gp and he gave me antibiotics, however they made sick, so he changed be to others for only 5days. Following the tick bite i had a sinus/ jaw infection in October. Then the weakness started in my upper arms in November. From then on the weakness spread to the whole of my body and slowly all the other symptoms started. I had a lymes test in January and came back negative.
I went to a rheum spec who sore me for 5minutes and said i had fibromyalgia, i had a neck and head mri which showed nothing. I was prescribed antidepressants to treat the fibromyalgia, but nothing happened.
I went on holiday, and the nausea and sickness started. I was so sick for hours I was taken into hospital by paramedics, but they sent me straight home with anti sickness tablets (I am now on them several times a week)
A few weeks later i was taken to a and e because i have fainted, i spent five hours in resuscitation unit because my heart rate was so high, they associated it with it being a hot day...so sent home.
My GP then noticed I had put on a lot of weight in a short amount of time, and had started getting purple stretch marks on my stomach and on one arm. He thought I had cushings diesease, so I was referred to an endocrinologist. All blood tests came back fine except vitamin D. He sent me for a ct scan on my adrenal glands, and had urine tests and a dexa suppression test. All came back clear.
My specialist still thinks i have a rare form of cushings, because the stretch marks have spread to my other arm and onto my legs and all the way up my stomach.
I am wondering whether any of you have been mis diagnosed with cushings or if you have any comments on my symptom history. I have lost my job and i am unable to do anything. I am on Cocodamol all the time, which doesn't do anything.
Thank you for reading :)