I'm hoping someone here could shed light on this report. Similar to other cases, I was misdiagnosed for the last 7 years. Multiple sx that always pointed to MS and as instructed by numerous physicians based on these sx, I was told to follow up with neurologists. Long story short, 6 neurologists (4 MS specialists), one General neurology and a neuroopthamologist, 6 MRIS (brain, LP, T-spine (thoracic etc), all reports indicated just mild disc degenerative disease. Tested for Lyme 5 times via western blot Elissa test and always negative. That said, in 2015, I decided to get tested via Igenex due to worsening sx, and I tested positive for Lyme and most co-infections. I brought this data to my GP and three neuros who vehemently indicated Igenex was not a credible lab. In mid 2016 began treatment with a LLMD but after three protocols, I'm still experiencing sx. I disagree that Igenex is not a credible lab. On the contrary, as the results confirm and parallel my sx. In January 2017 I had another brain CT and MRI. The report seemed suspicious to me, yet when questioning my immunologist, ENT, 2 neurologists, and a neuro-ophthalmologist.... they all mirrored one another in that my report / findings were "normal".
With all that said, my report is very much in line with reports I've read from other patients who have neuro Lyme. In the last month I've experienced significant neck and head discomfort/ inflammation, heaviness, tingling, chills in that region. Also a sense of dizziness / malaise etc with a significant tinnitus problem at this onset. Realizing this is lengthy, and not every detail can be included, I'm wondering if it's possible for someone to provide guidance or similarities they've had with MRI reports who have Lyme. My concern or focus is on the 2nd sentence under findings.
The report as follows:
MRI OF BRAIN W/ AND W/O CONTRAST.
FINDINGS: The left lateral ventricle system is more prominent on the right side and in normal limits. There is a minimal small focus of T2 prolongation in the right frontal opercular white matter. There are no linear peri ventricular lesions. The rural is normal as is the cortex. The midbrain, pons, medulla and cerebellar hemispheres are normal. The orbits are normal. The sellar and pineal region structures are normal. The fovea ethmoidalis, crista galli, cribriform plate - roof of the sphenoid sinus are normal. Mastoid air cells are normal. There is no meningocele and there is no abnormal Dural enhancement.
OPINION: There is no intracranial manifestation of CSF hypotension. No skull base defect seen. There is minimal microvascular ischemic white matter disease in right frontal operculum. No stroke or space-occupying lesion. There is no demyelination.
Thank you -