I am copy pasting a post i made on a b12 deficiency site , it lists all the symptoms i have been having since mid 2010 , i have spoken to four doctors about these symptoms possibly being lyme disease but was told everytime i dont have all the symptoms so its not lyme just b12 deficiency , one of the doctors a physician wasnt even aware of what lyme disease was , the other doctors i spoke to were all neurologists, i would greatly appreciate any suggestions
Post -
1) Around June 2010 i started feeling crawling sensation all over my body , like some insect crawling , went to three dermatologists , a physician , took various allergy medicines given by the dermatologists , no relief till date , i am still feeling the crawling sensation while i am typing this , dermatologists gave up & told me to see a psychologist.
2) Jan 2011 - I got a complete heart evaluation , i had no heart problems
3) Feb 2011 - I went to a ENT because I was having difficulty in swallowing for about a year , It started 2-3 days after i started doing Kapalbhati Yoga ( https://www.youtube.com/watch?v=mD2_zyuztos ) , my throat had swollen due to acid reflux which started after i did this yoga exercise for two days . ENT diagnosed me with "reflux pharyngitis" & "dislocated septum with DNS e spur" , prescribed
esomeprazole tablets for two weeks , i took the medication for two weeks but did not see the ENT again.
4) May 2011 , started suffering from heart palpitations about 2-3 times a week which also caused some breathing difficulty , the frequency of the palpitations decreased after a month . i started feeling tingling sensation on my head & also felt pain like someone pulling a strand of my hair at different parts of my head. Numbness in limbs , I have a habit of pressing my arm on my forehead while sleeping , during this period when i would remove my arm from my forehead my forehead would become numb.
5) June 2011 , Numbness become more severe , the small fingers of both my hands & both feet would always feel slightly numb throughout the day.
I started feeling dizzy sometimes , while walking sometimes i would feel my legs are about to collapse , i would have these attacks where i get slightly blurry vision , felt like someone was squeezing the right side of my head , if someone was talking to me during this i would have difficulty in understanding what they are saying . Ringing in my ear ( tinnitus ) - which i have till date.
I went to a physician , he did some blood test , all were normal , i had already done heart tests in January so no heart tests were done ,cervical xray which showed stiffness in the neck area, prescribed esomeprazole again , Vitamin E capsules , some nerve medicine ( forgot name ) plus some other medicines , took medicines for a month , no relief .
6) Went to a neurologist , he told me after clinical examination ( i.e hammer on knees & all ) that i have no neurological issues , he got B12 & vit D-25 tests done ,
My B12 was 193 pg/ml & D-25 was 22 ng/ml .
Also got nerve conduction velocity test done , result was " predominantly axonal motor sensory neuropathy" .
I was prescribed a B12 Capsule twice a day which had cyanocobalamin 750 mcg + 500 mg Omega3 and pregablin 75mg twice a day . , took these plus some other antidepressants / anxiety tablets for four months .
6) July 2011 , now i started getting muscle twitching all over my body including my face , same medication as above continued.
7) October 2011 , I started getting pain & stiffness in all my joints , even in my fingers , I never had any joint issues in my life before this , a month back i used to walk on a manual treadmill without any joint pain ,same medicine continued by the neurologist, Calcium with Vitamin D3 tablets was added , i was able to reduce the stiffness & pain by regular joint exercise & massage.
8) January 2012 I checked my B12 again , it was 225 pg/ml , my father became very ill , i was with him in the hospital for a month, i stopped taking any medicine during this period & till date have not taken any medicine or seen a neurologist since then.
9) August 2012 Went to a ENT for the tinnitus mentioned in "5) June 2011" , audiometry test showed slight hearing loss , which according to the ENT was the cause of the tinnitus , ENT also checked my neuro history & prescribed gingko tablets & piracetam 1200 mg , I have not started this medication yet.
10) October 2012 - B12 blood test shows 193 pg/ml again , I still have numbness , muscle twitching , tinnitus , sometimes feel dizzy , I have a appointment with a neurologist this week.
Also the last few months i get a feeling of something poking from inside in my chest near the heart area ,whenever i lie down to sleep immediately my heart rate goes up & i have difficulty in breathing , when i get up & it goes away or i fight it till i fall asleep. i got it checked by a physician who said clinically everything was normal & recommended upper GI endoscopy & cardiac review. I have been avoiding the endoscopy , will get it done soon.
11) From october '12 till january '13 i took b12 injections , i felt a little better when i was taking the injections but after stopping the injections the symptoms are back .